Three Reasons Why Your Thyroid Medication Isn't Working | Chris Kresser

Three Reasons Why Your Thyroid Medication Isn’t Working

by Chris Kresser

Last updated on

This article is part of a special report on Thyroid Disorders. To see the other articles in this series, click here.

In the last post I explained that, for the vast majority of patients, hypothyroidism is an autoimmune disease. This isn’t just an academic distinction. It’s the reason both conventional and alternative treatments are so often ineffective.

Want to learn more about thyroid disorders?

Download This Free eBook

Find out how a thyroid imbalance could be causing your biggest health problems.

I hate spam too. Your email is safe with me. By signing up, you agree to our privacy policy.

In this post I’m going to show you why taking replacement thyroid hormones without addressing the underlying immune imbalance is doomed to fail.

The ultimate effect of hypothyroidism, whether it’s caused by iodine deficiency or autoimmunity, is to decrease the amount of thyroid hormone available to the body. The conventional approach is to simply replace these hormones with either synthetic or bio-identical forms.

On the surface it seems like a reasonable approach. Patient doesn’t have enough hormones? Give more hormones. Simple, right?

Not so much.

Once again the conventional approach falls short because it ignores the underlying cause of the problem. It’s like taking Advil when you’ve got a pebble stuck in your shoe. It might work for a little while, and might even be necessary to dull the pain. But you’d be a lot better off if you took the pebble out of your shoe. Right?

Let’s take a closer look at why thyroid hormones often don’t work, or stop working over time. The following diagram illustrates how autoimmunity affects thyroid metabolism:

hashimotos

Immune dysregulation is another term for autoimmune disease. We still don’t know exactly what causes it, but most researchers agree it’s a mixture of genetic susceptibility and environmental factors such as iodine (excess), infection, pregnancy, diet and intestinal permeability.

In autoimmune disease the body attacks itself. It does this the same way it attacks foreign invaders like bacteria and viruses: with T-cells, B-cells, natural killer cells, and cytotoxic T cells. The immune response also involves proteins called cytokines, chemical messengers that pass messages between cells.

This self-attack by the immune system increases inflammation. And inflammation has a profound effect on all aspects of thyroid metabolism and physiology.

First, inflammation suppresses the hypothalamus-pituitary-thyroid (HPT) axis. One study showed a single injection of the inflammatory cytokine TNF-alpha reduced blood levels of TSH, T3, free T4, free T3 and TRH for 5 days. This shows inflammation disrupts the production and regulatory mechanisms of thyroid hormones. Thyroid medication will increase the levels of T4 (and possibly T3), but it doesn’t address the other effects of HPT axis suppression.

Second, inflammation decreases both the number and sensitivity of thyroid hormone receptors. If there aren’t enough receptors, or they aren’t sensitive enough, it doesn’t matter how much thyroid medication we take. The cells won’t be able to use it. It’s like when my grandpa used to turn down his hearing aids while he was watching the football game. It didn’t matter how much my grandma yelled at him – he couldn’t hear a word she said.

Third, inflammation decreases the conversion of T4 to T3. T4 is the inactive form of thyroid hormone. The body has to convert it to the active T3 form before it can be used. Most synthetic hormone medications on the market are T4. If you give a T4 medication (like Synthroid, Levoxyl, Unithroid, etc.) to someone with inflammation, it’s not going to work because they can’t convert the T4 to T3.

Patients who don’t convert T4 to T3 well do better on bio-identical hormones like Armour, because it contains both T4 and T3 (in a 4.22:1 ratio).

Inflammation disrupts thyroid metabolism in several other ways, but I think these three examples make the point.

Now let’s review.

Inflammation causes HPT axis disruption, decreased receptor function, and decreased conversion of T4 to T3. Thyroid medication only increases the levels of thyroid hormone (usually T4) in the blood. No matter how much we take, it’s not going to restore HPT axis coordination, improve receptor function, or increase conversion of T4 to T3.

The only way to do that is to address the problem at its root by regulating the immune system and decreasing inflammation. Unfortunately, this is rarely done in either conventional or alternative treatment of thyroid disorders.

Before I sign off, I just want to make one thing clear. I’m not saying thyroid medication isn’t necessary or useful. In fact, I think it’s an important part of treating Hashimoto’s – especially when TSH is consistently elevated and T4 and T3 are consistently low. My point is thyroid medication is only one piece of the puzzle, and it won’t be effective on its own unless the autoimmunity and inflammation are addressed.

If thyroid medication is the fantasy magic bullet of conventional medicine, iodine is the equivalent in alternative medicine. In the next post I’m going to explain why supplemental iodine may cause more harm than good in Hashimoto’s patients.

641 Comments

Join the conversation

  1. First the labwork (drawn Friday):
    TSH > 100.00 u(IU)/mL HIGH (normal range 0.4 – 5.5)
    T4 100.00 u(IU)/mL HIGH (normal range 0.4 – 5.5)
    T4 < 0.5 ug/dL LOW (normal 4.5ug/dL – 12.0 ug/dL)
    T3 Free 0.8 pg/ML LOW (normal 2.4 – 6.8)
    My biggest health issue has been the gastroparesis. I've not had solid food in over 5 years, everything is liquid. I've had feeding tubes, several surgeries, etc and stomach is still essentially paralyzed. I am nauseous most of the time and vomit 5-25 times a day (worse when severely constipated, causing me to throw up bile frequently). Last month I saw a surgeon who specializes in gastroparesis and he said that he wanted to ensure my thyroid levels were normal before he does a colectomy (remove my colon). I am now more concerned about my thyroid though. I can't find any information that is helpful to me online because all the articles are written with the assumption the thyroid is still present. I'm feeling a bit scared. Anyone been thru similar? Or similar labwork? I need hope. Thank you all, Julia

    • I worked for a chiropractor who had a client with that condition. She couldn’t eat food and was severely depressed. At her appointments he rubbed her stomach twice a week for two months and then she didn’t have gastroparesis anymore and could eat food again and has been living a healthy full life ever since. I have him rub my stomach and it helps me so much with bloatedness and diarrhea. He rubs the muscle over your organs that are all tight and notted up. It definitely hurts when he rubs the stomach, but you feel so much better after! It loosens the muscle so that your organs are no longer tight and paralyzed. He practices in Orem, Utah but I bet there is some info about this process online. If your stomach gets healthy, that will probably help your thyroid issues too!

  2. I’ve had symptoms of hypothyroidism since my teens, my first pregnancy at 18 significantly worsened my symptoms. All the doctors I saw continuously monitored my thyroid hormone levels, but they always came back “normal” or “within normal limits.” Over the years the symptoms continued worsen, I was sent to countless psych doctors because all of my medical doctors couldn’t do anything else, I was then treated with a multitude of SSRI’s and anti-psychotic medications which in turn made my whole body malfunction. It wasn’t until the premature birth of my 3rd child in 2004 that I was sent up to Endocrinology who diagnosed me with ‘Post partum thyroiditis”. I was put on my first run of synthroid (25mcg X 90 days). I underwent several other tests in the meantime and my diagnosis was changed to Hashimoto’s Syndrome. At the end of the 90 run my thyroid hormone level was showing “within normal limits” so they downgraded my diagnosis back to post partum thyroiditis, and all medication stopped. I quickly returned to feeling completely run down, which having 3 children under the age of 8 including a preemie newborn, and a husband who was deployed over seas was very bad. I couldn’t lose any of the baby weight despite dieting and exercising, my hair started falling out in clumps (AGAIN), and my skin was so dry and itchy that I wanted to crawl out of it, and to this day I have been extremely constipated. I had to endure all of these symptoms until 2007 when an MD in Germany took pity on me and changed my diagnosis to “Sub Clinical Hypothyroidism” and restarted my low dose of Synthroid. That helped alleviate some of the symptoms but I still never felt “good”. Fast forward to 2010, I had a thyroid biopsy where they found several goiters, but being on my low dose of synthroid my levels were still WNL, so they recommended no further treatment. In 2013 I was assigned to a new doctor who monitored my levels every 4 months, in 2016 she noticed an increase in my T4 level and upped my Synthroid to 50mcg, but the diagnosis of Sub Clinical Hypothyroidism has been continued. We are in April 2017, new doctor, my thyroid level still shows WNL, but I feel so run down that I practically fall asleep while driving, I cannot lose weight no matter how much research I do and drastically change my diet, I even injured myself while exercising. My skin, my moods, my digestive health is a serious mess, the only thing that isn’t happening is my hair falling out at an alarming rate. So the point of my story here is that no matter what the MD’s do or say, I have learned to read my body. I know that my thyroid levels look great on computer printouts due to the supplemental hormones, but ultimately my thyroid is NOT functioning the way it should. After 19+ years of dealing with this I am sad to say that I am at a loss and have little hope of ever feeling like I am functioning “normally” or truly healthy.

    • I have the exact same story of 15 years. I have seen functional integrative doctors with no help. I am at a total loss. Please let me know if anything changes.

      • I would suggest trying the candida diet (Read Tired-So Tired and the “yeast connection” by William Crook, M.D.) and asking for porcine thyroid. Synthetic didn’t work for me. I hope this helps! I’m not where I want to be yet thyroid and energy wise, but I’m making some progress. My tests all came back normal too. My son and I have to avoid all water disinfected with chloramine (not just chlorine, but chlorine and ammonia) in it since it causes us gut inflammation which got us in this mess in the first place. We had to move to a town that uses chlorine to disinfect the water.

    • I have been taking Synthroid 75 msg for 28 years. My HDL levels have remained in the 60s and as high as 70 for the past 18 years. Last year’s TSH was 2.130 and HDL was 63. This week my labs came back and my TSH (for the very first time) elevated to 5.650 and HDL dropped 30 points to 46. My primary care physician has asked that I take a higher dose of Synthroid (100 msg) and repeat the TSH blood test in six weeks. I am very very concerned that something may be wrong with my thyroid gland or pituitary gland. Being highly anxious I cannot wait six weeks. I am seeing an endocrinologist hopefully early next week (a family friend) and ask for his advice. My pharmacist has gone so far as to say that perhaps it was a lab error. But my nutritionist said, “highly unlikely.”

      Please advise.

    • I’ve had hypothyroid for 9 years.. 2 before DX. A few months ago, I started feeling extremely “thyroid” tired. I went to endo- he ran the TSH and T4 all normal. I started to do lots of research – I knew something was off. I went to my gynecologist will a list of test to run. My T3 and reverse T3, vitamin d and iron were all off. He changed me to natural thyroid. Waiting to see if it works. I started following a keto ( gluten and grain free too) diet. All healthy fats. My HDL was 135 last time. I got off of statins 2 months ago ( so many articles that say they are so bad) I went in and now my HDL is 65!!!! Lowest it has been in 9 years and that’s being off statin and just eating keto diet! And I’m losing weight! I also workout 4-5 times a week and was NOT losing weight until I switched to keto.

    • when a doctor will only prescribe synthroid you need a better doctor. i was that way until i got a ph by chance in the office and told her i want to try armour. it changed my life. i was normal again..

    • Has anyone ever checked your serum
      Copper and zinc levels as well as ceruplasim, the transporter of copper? Also when the zinc to copper ratio is off then it’s even more problematic.
      Your symptoms sound very indicative of low zinc and copper toxicity which can definitely occur easily after pregnancies and literally wrecks havoc on one’s health! Go to http://www.mensahmedical.com or direct healthcare access labs and get tested. Dr Mensah can provide a consult and a nutritional balancing plan. Quite possibly you still need a thyroid med but if your copper/ zinc levels are off and no one corrects it your problems will continue to worsen. I have seen countless similar situations and when PROPERLY treated its life changing. And definitely blood testingnrather then a hair analysis for copper is more accurate for both serum copper and “free” copper – the Cu in organs that builds up bc the binding proteins are too low to do their job properly of transporting copper.
      Good luck!

  3. I’ve had quite a rocky road to get to where I am today which is really NONE THE WISER.
    I have a TBI and right frontal lobe damage; I add this because I have no idea as to if this may be a factor, considering that it was my TBI which was complicated severely from my second and final pregnancy.
    After years of doctors calling me a liar and making stuff up for attention I was vindicated and thought that was going to be the point of getting back on the road to feeling good again.
    After fighting for well over a year with my primary doctor she ran hormonal tests (threatening me however with filing bankruptcy because she was hiding them unnecessary and when they came back normal the insurance wouldn’t pay and considering how costly they are and how many she was ordering upon my request it would be a lot) I was told I’d get a call or a letter in 7 days or so with the normal results as she knew they would be.
    They weren’t…
    My immediate Endo appointment was disheartening as the very first sentence from his mouth was “Sandra, what in the hell took you so long to make an appointment, surly you knew something was wrong well before now.
    Yes, I had a nodule removed from my left thyroid and have one in my right they monitor and at first everything went to normal after the surgery and Synthroid. It didn’t last long and my Synthroid was up and down but my symptoms were always there and my recent labs came back with a positive ANA and in awaiting a Rheumatologist referral however the last 5-6 years I’ve been existing. Existing in misery.
    I am always tired, exhausted, easily winded, my hair falls out, my body swells, my eyes literally hurt, I have constant headaches, increased balance and coordination issues, my weight I cannot control, I have digestive issues and I fear eating as it causes so many problems. I often times look 6 months pregnant.
    I am living a horrible rerun and I am desperate for advice.
    I know that my TSH levels are normal levels but they have been this way before when I was having Thyroid issues and the doctors didn’t know what to do and didn’t do anything and my question is maybe my brain injury has effected the way my body really IS by way of evaluating tests results?
    I’m not quite sure how to explain it but basically could there be merit to my idea or if there is any advice I’d welcome it with open arms.
    I am having a timewith my weight and it’s not from over eating or bad eating, I eat to live not live to eat and when I say that I could starve myself and not lose weight and actually gain I’m not exaggerating.
    My only weight loss I have is when my digestion and GI issues actually work and I no longer have a rock solid 6 month looking stomach.
    Gracious I have enough health issues and weight is something we are supposed to be able to control and manage which I’ve always done and until I had the thyroid symptoms my doctor ignored until my blood work I (not proud of it and using only as an example of my ability to control my weight) actually suffered from anorexia/bulemia which took years to overcome but was complicated mentally by myself because it was concurrent with my thyroid diagnosis.
    When my issues first started and I first started Synthroid along with intense counseling and therapy I was content at being between 135-150.
    I range from 175-190 now and there is no control I can have but I need it because it’s getting severe and will cause only more issues.
    Somehow I have a feeling I’m not alone in my position and there may be no way to get better.

    • OMG you just described me, only I have degenerative disc disease and permanent nerve damage. I became anorexic in high school from depression and suffered with it for years not because I thought I was overweight but because I had zero appetite. The thought of eating made me sick and if felt like my throats would swell shut if I tried to eat. I weighed 79lbs when I got pregnant at 20. After my children were born I had a lot of episodes of seizures like no pulse no heartbeat husband trying to revive me etc at 29 I was diagnosed with the degerative disc disease they wouldn’t do anything for it said I was to young at 39 they gave me fusion surgery and because my nerves were so damaged i didn’t even fuse they said I waited to long. In that time period my body changed like a light switch came on I weighed a healthy 125 had hair down to my butt full shiny I had super soft skin and over night it seemed like I gained weight hair thinned badly and skin became dull and dry I felt sick and tired bloated my eyes hurt and were blurry all the time. My doc said same stuff only it was blamed on my chronic pain test after test nothing but I wouldn’t give up moved to a diff state found a new doctor and first test I had 1553 antibodies discovered. Finally an answer so now it’s been months of medicine ups and downs. I am 45 started to see him I was 230lbs of bloat hard as a rock stomache also looked pregnant body ached like I was hit by a car hated to even look at myself cause I didn’t even recognize that person looking back at me and 9 months later I weigh 170 hair has started to grow back skin looks great again but I just can’t seem to keep it going like every time I make progress I have to up or lower my meds and it makes me feel weird I will start to feel bloated my hair feels thinner more in the comb etc I can’t seem to get past 170 and I would be happy with 140 because I’m not very tall 5’3 I have always felt like my DDD had everything to do with my thyroid changing. I actually have hashimoto cause my T3T4 are normal. I just want to be me again so badly. So you are not alone out there with no answers. I just hate living this way it’s not much of a life feeling this way. But I have to say that when the synthroid is working I feel amazing

    • You are speaking my language and I too am being ignored by SPECIALIST like endocrinologist Docs who should know better. It’s so disheartening to know that people like us stay chronically ill, suffer emotionally due to lack of validation, and this just makes us more sick and susceptible to additional autoimmune diseases! I have Hashimotos, Celiac Sprue, Arthritis, Migraines, CFS, Fibromyalgia etc.
      I have an elevated TSH level that will not come down despite taking levothyroxine, low free T4, and no one will believe my research/belief that my adrenals or cortisol levels are to blame. And the ONLY way to fix the thyroid issue is to fix the adrenals FIRST. I’m suggesting that you keep in mind that autoimmune diseases usually come in 2’s or 3’s etc. research which ones tend to cluster together (risk factors). For example I got Hashimotos Thyroiditis 1st, Can’t convert T4 to T3, Chronic Fatigue Syndrome soon followed (crazy making by itself) and also Fibromyalgia, Then 15 years later I got Celiac Sprue along with arthritis. I found out through research that Hashimotos, CFS & Fibro. , Rheumatoid Arthritis, Celiac Sprue, and Lupus commonly cluster together.
      I would also encourage you to research adrenals, cortisol levels, Addisons, Cushings, T4 to T3 conversion, leaky gut syndrome, etc.
      Doctors are becoming so lazy, arrogant, expect text book symptoms, deny our suffering and blame shift, leaving us more sick, depressed, and we’re forced to research it ourselves. I diagnosed myself with the Celiac due to being ignored, starved, told its in my head! I diagnosed my anemia by googling causes of excessive ice eating, I diagnosed my daughter with Hashimotos and my son with Celiac Sprue and yet I received no apologies proving them wrong and they take credit for the diagnosis! I’m fed up and hope at his helps you or anyone. It’s just so wrong.

      • Dawn I’m so sorry for your struggle to just get help! I had ITP as a child, had spleen removed and that was that. Nobody knew back then but that was auto immune I’ve been sick often on my whole life and also had anemia. I believe I was in hyper as a child and as I got older moved into hypo . My daughter was always sick as a child I took her to a gastroenterologist as well as allergist and nothing I did get a diagnosis that she was sensitive to wheat as a young child but nothing was explained to me I didn’t know that this was really gluten by the time she got To college by her sophomore year her hair was falling out she couldn’t concentrate she could barely see finally got her to somebody else and they diagnosed her with Hashimoto’s disease and celiac! I was diagnosed with how she Moto a couple years after her but I believe I had it for a long time . We were both on armor because it has the T4 in the T3 she’s more severe than I am and her doctor just put her on Tirasent and cytomel, I’m on WP thyroid, you have to be careful especially with your celiac, many drugs over-the-counter and prescription is like Synthroid I don’t know about the leva thyroxine though but I know I can’t take it have gluten in it or other fillers that affect our immune system even over-the-counter Advil has gluten in it my daughter suffers from migraines as well and takes Fioricet and once in a while has shots of Botox in her temples and around the top of her head she doesn’t like it but it did at one point keep them away for a whole year she had them every three months now she still gets them periodically but she’s also 100% Paleo and that helps a lot the foods we eat can be horrific to our systems . Have you read the book stop the thyroid madness and root cause ? Excellent books that really help it is written by Izabella Wentz, PharmD, FASCP
        And I agree I’m the one that found that I thought my daughter had the Hashimoto’s disease doing research from all her symptoms so I totally get it same with the silly yak it’s so frustrating !

  4. I was diagnosed with hyper/graves
    10plus years ago
    Other then the prescribed meds are there any natural organic meds that can be used if you kill your thyroid with the radiation pill.
    Reason for asking my hair is thinning out and I can’t lose weight but I workout everyday but I’m not gaining weight either because of me working out

  5. I’ve been diagnosed with hashimotos. the Dr has been upping my dose of thyroid meds for over a year. I’m taking synthetic 125 mcg. I am still gaining weight (50lbs. And counting!) I am getting so frustrated with trying to find what’s going to work for me. I have the feeling I’m going to be referred to an endocrinologist soon. I have to wait till the next time blood work is done to hear everything is good, then I have to make an appointment to see the dr to tell him I still feel exhausted and the weight won’t stop going up. I didn’t know about gluten being in synthroid! I was on levothyroxine prior to the synthroid. I’ve had the adrenals checked, and the Dr said they were OK.. this is taking so long to get this figured out! Wish me luck!! ?

    • i had same problem try t3 only for a while active form of throid. you will need 2 weeks for the t4 to clear then start t3 only for a while . go to Ben Greenfield podcasts they have a thyroid specialist that has gone this protocol for 3 years and is working well for her Good luck.

  6. Hi I have hashimotos snd have had pretty good luck for several years on 112 mg of synthroid I recently went for my yearly check up and they stated my levels were low and increased my dose to 125mcg
    I was good for about two to three weeks and now am getting jittery and I have TMJ
    which the clenching had increased since on this new dose. I just went to get a new blood test and now my numbers are worse like my thyroid is not working they want to increase to a higher dose but I do not think I can take a higher dose what is the possible problem?

    • I am also on synthyroid and I have tmj and I just went to get fitted for a night guard iam on 25 of synthyroid and I have tingling all over my body

    • synthroid is the problem. I look at it this way , synthetic to me means fake, sort of . Like as in a synthesizer and while this musical instrument is pretty nifty and pretty much made any songs written that were popular in the 1980’s, it just cannot convert and produce and sound exactly like certain instrument sounds as in a real grand piano, a real violin, and or a real woodwind as in saxophones.
      close but my ear still knows the difference.
      Perhaps our bodies are the same way when it comes to synthetic drugs, it just knows real from synthetic, but when doctors are the ones primarily who dictate whichever medications they learn to prescribe i guess.

      • I am responding to this, because I’ve just went to my second Endo specialist doctor. Went to new GP for first time in 2010, and we did regular first time patient blood work. Question on form was what were parents history. My mother had Thyroid, so I put that down. I HAD NO SYMPTOMS. But blood work showed low thyroid. I am hyper. So Gp started me on .50 Sythyroid. Decided in 2013 to go to specialist. Was diagnosed with Hashimoto Disease in 2013 via a blood test. Had scan on Thyroid. That turned up nothing. So she put the dose down to .25 and sent me on my way. Went for second opinion last week because my regular gp increased my dose to .75. My body went crazy. I had a bowel issues. I lost 25 pounds I didn’t need to lose. I couldn’t eat anything without going to the bathroom. Plus there was blood in my stools. When I went back to my gp. He said it’s in my head? So I made the decision to back off of the medicine slowly. Bowel issue went away, and no more blood. After meeting with 2nd opinion doctor. Came away with they don’t know anything about this Hashimoto. Doctor said Medicine is needed!!! Husband found an article that spoke of the fact that the medical doctor’s don’t know what to make of this disorder. Isn’t it ironic that all of the sudden we’re seeing commercials for IBS??? We know this is a Auto-immune problem. So my next step is too research this, and go that route. It also said to get on with my living my life! I am not giving into the Big Pharma profits, and will fight to try to keep my body drug free. One post stated that the body knows if you try to trick it with a synthetic drug, it will reject it. Makes sense.

        • Hi Julie-
          I like you have been to so so many doctors over the years. None of them seemed to make the connection how could my TSH levels be high then so low they took me off medicine. This went on and off for a few years till I finally got in with a functional medicine doctor (no I am not being paid to say this). He is a D.O., he doesn’t practice with his father but he is an M.D.. Anyway, I’m very opposed to pharmaceutical medicines and have tried to treat my symptoms with natural remedies for over fifteen years. Since functional medicine is the “new” type of doctor everyone wants to see and mine is the only one in town he is backed up for 8 months so I saw his NP. Had at least six vials of blood work, and one test was called Thyroid Peroxidase which was the antibody marker for Hashimoto’s for me but it also detects Graves disease. It’s only been a week on Nature Throid 65 mg so it’s hard to say if its working. Though I’m usually very sensitive to meds. One thing the NP told me was to cut way down on sugar and try to eat a gluten free diet as gluten closely resembles the thyroid gland. Hope this helps. Be Well, JT

        • Consider that Hashimotos, Celiac Sprue Disease, Rheumatoid Arthritis, CFS, Fibro., and Lupus tend to “Buddy up” so to speak.
          Google adrenal issues, leaky gut syndrome, T4 to T4 conversion issues with Thyroid, and most importantly, be your own advocate and don’t let these Doctors cause you doubt, robbing you of precious months or yrs. of getting well, adds to depression, crazy making sets in etc. make them listen

    • I also have hashimotos and my antibidies were 1553 and I was taking synthroid 175 and felt like it needed increased but my last blood test said I had too much so they lowered it to 150 and I feel awful

  7. Hi – I’m 67 and have been very low on energy and my thyroid tested almost non existent. After tests came back reflecting low thyroid, My dr. immediately prescribed Synthroid (25 mcg) tablets, taking one every morning an hour before breakfast with a full glass of water. I did not purchase Medicare pharmacy coverage so the bottle of 30 tabs cost me $90.00! In the past six months I’ve gained 20 pounds. I’m reading some posts here that people on this medication gain weight. I cannot afford to gain another pound. I’ve revamped my diet and eating better. My doctor insists this pill will eventually give me energy because I currently have none. Thanks.

    • As for the financial side of things I would suggest having your doctor switch you to Levothyroxine which is the generic form. Walmart pharmacies only charge $4 for a month supply with or without insurance. You will have to verify your dose is covered under the special pricing. The second thing is that you need blood work after 6 weeks to see how your dose is doing. 25 mcg is a fairly low dose and it could be that you need a higher dose and still are not getting enough medication. Third, look at your diet. There are certain foods to effect the absorption of the medication. You can find lists of food on line with a google search. Good luck with feeling better!

      • Boy could I write a book on here with all of my Thyroid issues! Have been dealing with it for over 20 years! But the one thing I have learned the very hard way is not to take anything but the Armour!!!!! Please do not whatever take the Levothyroxine!!!! It is synthetic & will cause you to have joint & muscle pain! My insurance wouldn’t cover the synthroid which I did take for a while because you couldn’t get the Armour for due to manufacturing changes. But it didn’t make me hurt but thought I would try the Levo. Wrong move! Thought I was dying! As soon as I stopped it within a few wks the pain all went away! Amazing!!!! So now on Armour again!!!! Just do your research on it & you will see! I had remembered when my Dr that removed my thyroid had told me to never take anything but the Armour for it is the only one that is most like ours! Has the T3 & T4 properties!!! Also when you have your blood work done have them do a freeT3 as well as T4 It needs to be a full work up or your numbers cannot be read correctly. Your numbers are not always telling all your info so listen to your body as well because no one knows it quite like you do!!!! Drs are just practicing physicians not always miracle workers! They are learning just like we are!!!!

    • Your dr is as stupid as my last 2. I almost went to the hospital this am because I honestly thought I was going crazy. Long story short , in 2011 I dropped 30-35 lbs in 2 mos. I was selling cars, had my 4th child was a senior in hs, was running around like a fool, so I just figured I just dropped it. Was already schedule for my 3rd neck surgery, I have DD in my neck, just been doing what I had to to survive. I had severe numbing but I have neck issues. Ended up on graduation day back killing me, long story short again I needed l4/5 surgery sciatic nerve involved would be showing or selling a car and drop w/o warning trying to keep working 12 hr days in dying pain. So we scheduled surgery for back that oct, and because of my work short term dis. I couldn’t use it again for 18 mos well my neck couldn’t survive that long so Nov I had c5/6 removed. Nerve damage from my neck down, can’t survive w/o way too much meds. I had when I had my surgeries also ended up with a paralyzed voc cord now has an implant in it. So I start packing on weight, I drink 2 nutritional shakes a day eat a salad at night, nonkale in it. My Md finally tells me after 2 yrs of watching my cholesterol shoot up way high, never ever had an issue, so I get diagnosed with hashimotos, I hate that word, ended up being label “disabled” due to failed back surgery voc cord damage affects my ability to talk. Long story again my last TSH WAS 18 t4 too low t 3 ok, everytime I take anything at the lowest dose, my nerve damage goes sky high, heart feels like it’s going to explode, freezing with sweet pouring off on my whole body… I would honestly say I’m thinking I’m going nuts. This is the 3 or 4 th med change, now taking synthroid lowest dose cut in half the t4 med lowest dose cut in half, getting up at 2 am that way nothing I eat or drink can mix in with this medication, I thought if I went to the hospital this am they would put me away. I already told this dr it’s happens everytime I take these meds at the lowest dose, she says it’s not working at all, I can’t be numb 24/7, not at the level it goes to I live like this everyday I don’t need it elevated. I’m scared, I dunno what to do, obviously my body doesn’t want my thyroid to work. I had to take a xanax to counter how bad I was the am. ???? What to do??? I would love for someone to advise me. My neurosurgeon says the hashimotos has a lot of the same side effects as my back and neck issues so he’s not doing nothing till it’s regulated, I have double carpal tunnel and a tear in my rotator cuff and no one will fix it because my neck needs surgery but he won’t do it til my thyroid gets fixed and leveled….. my ? Wth do I do, I can’t have another day like the last few…. I will not be participating in this much longer.

      • I would like to suggest getting your iron and b 12 check as it is effected when you get thyroid..I always thought my symptoms of being tired anxiety hair falling out off balance dry pale skin was from thyroid and that I would live like this forever..even came to point I felt like I was losing my mind after getting tested I was told b12 and iron was severely low and started on b12 shots right away..maybe and that is what you have going on as well? Doesn’t hurt to check..hope things get better for you soon.

    • I hate to say it, but the hypothyroidism is making you gain weight, not the medicine. Well, sort of… Thyroid function is very closely tied to your metabolism. It tanks when your thyroid quits and replacing the hormone doesn’t raise it for most people. You do need the hormone in your body, so keep taking your medicine, but a clean, healthy dirty and regular exercise are the only things that are going to make you feel better or lose any weight/prevent any further weight gain, and even that might not work like you’re expecting. Your best bet is to be as healthy as you can be and cleanse your diet/ body of anything bad for you.
      Good luck.

  8. Hi,
    I’ve had Hashimotos for 21 years and have been very stable taking Armour thyroid 60 mg. a day until about 3 months ago. Now every time I take it my heart starts racing and I get very lightheaded. My numbers are going up (my T4 was 4.5 after being 1.3) but I feel awful taking Armour. I’ve tried the synthetic thyrid medicines in the past and have always had a bad reaction to them,similar to what I’m experiencing now. Thank you in advance. Ilse

    • I too was taking armour for about two years. The synthroid and levothyroxvin have gluten so I can’t take them. Over the last year I watched my tsh levels rise as well! I read somewhere that armor has been bought out by another company and they sort of change the formula all I know is I switched to WP thyroid which is the purest of the natural desecrated thyroid medicines I don’t know what’s happening I do have a constant headache nothing I can’t work with but it just seems that nothing is working anymore I am getting my blood work done again but he’s making me wait six months which I think is crazy !
      I could also be that we are not converting T4 and T3 properly and everything needs to be looked at like a complete thyroid panel and have them check your anti-bodies a lot of them don’t do that anymore because they say once you have a diagnosis of Hashimoto’s you don’t need to but I like to do it because I see an increase in my anybody’s as well so something is not working in our bodies I hope you can figure this out I’m going to try too!

    • free t3 needs to be checked , it should be in upper part of range . reverse t3 should be checked , with t4 as high as it is if free t3 is low or not in upper part of range rt3 may be too high . If rt3 is high and free t3 is not in upper part of range you may need to take t3 medication , t3 medication does not get changed to rt3

    • I have had hashimotos for 16 years and I like you have been on armour for most of it as straight synthroid never worked but I started getting heart palps for years now but they have progressively gotten worse. My endocrinologist did say this is an unfortunate side affect to the armour. My endocrinologist decided to mix my meds keeping me on tbe 90 mg of armour and mixing in a synthroid for my lower dosage part I was on a 60 and 90 armour I guess the dosing for 60 to synthroid is 100mg so we shall see how it goes. Little nervous about gaining any weight as with armour I could keep my weight down..I have read it can be very effective to mix the 2 drugs though. We shall see

  9. My Name is Lynn, I was diagnosed with Thyroid cancer in March this year and I had my Thyroid removed in April. I’m on Synthroid. The issue I’m having is my eyebrows have fallen out and I’ve gained about 15 lbs. My endocrinologist says that these things do not have anything to do with my Thyroid. But everything I have read states these are the systems of Hypothyroidism. Has anyone experience this and if so did your eyebrows grow back?

    • I would get a second opinion. Sounds like your levels are low, although I am no expert. Just speaking from personal experience. I’ve been on thyro meds for 18 yrs.

    • Hello Lynn, My fellow ThyCa friend. I had my thyroid removed in December of 2014. I went the opposite direction. I lost tons of weight and experienced most of the symptoms associated to hyperthyroidism. For me it took about a year for my body to adjust. And yes the symptoms have subsided!! And I did gain some of the weight back that I lost. I lost 38 lbs in a few months. It was very depressing. Occasionally, I feel very tired, brain fog sets in, I feel like I can’t move and feel very sad. I just rest and the next day I’m fine. It is important to find a doctor who you can talk to and is knowledgeable in treating ThyCa. If you aren’t hyperthyroid your cancer can come back. I found that reaching out to other ThyCa patients and survivors to be if great help. I wish you the best!!

    • Lynn the thyroid absolutely is causing that! So many of these doctors don’t really have a clue about the endocrine system it’s so frustrating you really have to be your own advocate my eyelashes have send my eyebrows have thin and I’m on WP thyroid now it’s one of the natural thyroid I had been on armor but that was reformulated by the company that bought them out and I just was not responding well I know Synthroid and it’s generic level thyroxine have gluten in it and I have Hashimoto disease which is auto immune and it’s basically best to stay away from gluten which is an inflammatory ingredient which can cause hair to fall out at Cetra etc. maybe you should try one of the natural thyroid medicines. also your body may not be converting the T4 into T3 and you need a complete work up not just your TSH are a couple other ones you need the whole work up check the panel out at stop the thyroid madness it’s a wonderful book also the root cause another great book both written by the same woman Dr. Isabel went also your body may not be converting the T4 into T3 and you need a complete work up not just your TSH are a couple other ones you need the whole work up check the panel out at stop the thyroid madness it’s a wonderful book also the root cause another great book both written by the same woman Dr. Isabel Wentz. Each of us is unique in our endocrine system my daughter also has Hashimoto disease and several of my friends it’s crazy how many people have issues and everyone responds differently but just stay on top of it and if this doctor is in helping you I’m telling you I switched like three or four times my doctor to her that I have now listens to me and just orders the test so I asked for .

    • When I had my thyroid my hair came out and never grew back I have no hair on top my eyebrows and eyelash did grow back but I lack my hair. The excuses the doctors used that it was hereditary losing my hair. Not true that’s the excuse they use when they don’t know why.

    • My endocrinologist said the same thing, but I have never been this fat in my life I’ve gained 50 pounds the muscle spams and cramps are bad I’m swollen all the time nothing works but? I have found that Jamaican castor oil does help the hair growth I put it on at night and wash it off in the morning. It has helped my eyebrows and eyelashes.

    • Yes absolutely I’ve gained ten lbs and eyebrow loss is the first sign of a thyroid problem every doctor should know that!

    • Yes I have barely any eyebrows I have been looking for someone to tattoo them because my nerve damage is so bad it’s very hard to draw them on every morning and your weight is from it. Sorry but I have been doing this for almost 5 years

  10. has anyone being on ampitripiline . I take it for gastro problems altho when i stopped taking it i wasn’t as tired. I have being on it for 4 years and always being dragging myself daily. Would it put your thyroid blood work out does anyone know?

    • I am on 150mg of levexline for my thyroid s and they are trying to get my levels back up as a other construction up my thyroid table to 300mg and they shouldn’t of now I have no thyroidshe lift desingrated

  11. Hi, I’ve been on thyroid since I was an adolescent. I’m on 65 mg of Nature-throid 3x a day. My BP is: 118/57, my heart rate is: 64, my temperature is: 97.7 °F. Recent blood work shows a FT3 of 142 (75-170 range), FT4 of 1.15 (.93-1.70 range) and a TSH of .01 (.27- 4.20 range). I feel better now than I’ve ever felt before, but based on the TSH my doctor wants me to lower the dose. I say I don’t want to fix what’s not broken. She insists I’m taking too much thryoid. Any ideas what I should do?

    • Yes you are taking too much! Boy i know that feeling of how motivated and emotionally can make decisions better a wAy less tired. I just went thru the same thing as you. Now i have to wait til end of January to retake blood test to check it again.It is not fun and affects our daily life … We can only know our limits and go with it. Too much is not good the heart will be going faster if your getting too much. As long as you have a endocrinologist then go with what he says. It takes time it is 6 years or me and it has taken so long as doctor kept changing too early so numbers would never be right . Keep with your doctor if he is good! Be Healthy! Sheryl

      • If I’m taking too much, why isn’t the FT3 and FT4 out of normal range? If I’m taking too much why don’t I have any symptoms of hyperthyroidism?

      • Sheryl you have no idea what you are talking about. While his TSH is suppressed the t3 and t4 are in normal range.
        Unless there are hyper symptoms there is little reason to lower the dose.
        Your reasoning makes not sense either. You lose.

        • Yes john i don’t make a doctor lol! Tommorrow i am seeing my family doctor taking all vitamins everything i am taking to see what could be the culprit of making my thyroid off every 3 months. I no longer drink coffee around it and take it before i go to bed cut off all eating 3 hours before . I am hoping this works.

          • i’m on thyroxine 125 ml i go up down been on them for years no problem but just had blood done doctor says i’m borderline and to get bloods done again in three months he will discuss it with me what is borderline ??????

          • My NP told me not to take calcium or antiacids for up to 3 hours before or after taking Nature Throid. Also, told me to limit sugar and go on gluten free diet as gluten closely resembles thyroid gland.
            I got this info from the Chris Kresser website (no, I’m not being paid to say this or am related/affiliated with him in any way)….”The molecular structure of gliadin, the protein portion of gluten, closely resembles that of the thyroid gland. When gliadin breaches the protective barrier of the gut, and enters the bloodstream, the immune system tags it for destruction. These antibodies to gliadin also cause the body to attack thyroid tissue.” Personally I have noticed when I eat a cracker or bread my stomach does get more uncomfortable.

            • Yes, I feel like a boob… I didn’t realize that I am on the Chris Kresser website.
              Just goes to show you how brain fog can really affect you. Also, it’s difficult to function on 3-5 hours of sleep a day and keep up with my teenager’s antics, taking four college classes (& deadlines)… I’m the slowest reader…re-reader maybe due to hashimoto’s. But I right now am not concentrating. It’s difficult when required reading is a minimum four to six chapters a week plus tests!! I’m hanging in there and am determined not to let this “problem” define me. Once men start getting hashimoto’s in large numbers (especially doctors…) maybe funding will go to the finding a cure (she said optimistically!). Pharmaceutical companies have found a cash cow in all the humans they can subject to their chemicals.
              Maybe we need a commercial…not like the Lupus one though…

        • If my t3 is 19 low t4 free t4 are in ok range then my endocrinologist says it needs to be changed. I am tired since he changed it my heart doesn’t race fast like it did before as i was given too much. So there is mixed conversations on this subject and it makes me confused . ..

    • hi my name is marion and I just started taking wp thyroid I have been through the thyroid ringer I have been on levoxyl synthyroid and armour and levoxyl worked for me for about ten years and then stopped now iam on wp I have hashimotos its not easy to deal with thyroid issues good luck

    • I think you are just fine. You say you feel good. You heart rate and BP are normal. Your other labs are normal. If you take a natural form of thyroid hormone before your lab test then you TSH will be low. And T3 may be high. It is best to take the medication after you have your labs drawn. You should stay on your current dose unless you start to feel hot, anxious and notice a rise in your heart rate and BP. I am also on a natural form of thyroid medication (Armour). I’ve had thyroid disease for 15 years and have switched to Armour for the past year and a half and I feel so much better.

    • You should tell the doctor to re read up on newer research. You have to lower the mess to raise the tsh #. If you feel fine on this dose, do not have history of heart disease or osteoporosis…then don’t adjust it yet! I have fought this for 30 years…new research shows that patients feel BEST when their tsh level is below 0.00 on the scale. But you should take synthroid in the morning…one hour before food…two hours before any supplements…some multivitamins interfere with the absorption of synthroid. Do NOT accept it in generic form…do NOT crush or cut the tablet in half…these things I have learned…may be you should switch and take thyroid mess in the morning and supplements at lunchtime or at supper…good luck! When it isn’t right…it isn’t right…and you don’t feel right…lol. Listen to YOUR body and really convince the doctor to let you stay u til your body says change it! If you take armour…I have been told it fluctuates your numbers because it is from an animal and every animal (like humans) has a different thyroid gland…

    • No, you’re not taking too much. Your doctor doesn’t know what he’s doing. Your temperature is low, which means if anything you are still a bit hypo. TSH itself means nothing once you’re on a certain amount of thyroid medication. It’s not a hormone that will make you sick or well. FT3 is what matters, and yours is nowhere near too high. It’s infuriating trying to get good help with thyroid dosing. I have better luck with naturopaths, but it’s out of pocket.

    • My daughter is like you she’s at the lowest you can be and she’s never felt better and I feel that that scale is insane because they will tell somebody that has a 4.0 TSH that they shouldn’t be feeling bad because they’re in range but your normal and somebody else is normal or two different readings like my daughter said her low normal is the only thing that makes her feel well I am trying my best to level mine out as well mine keeps climbing I was at a 1.0 it’s up to 1.9, I just switched from armor to WP thyroid since I found out armor with reformulated by the company that bought the original one out hoping this makes a difference but so far not feeling it . we truly need to be our own advocate put your foot down and if the doctor insists on lowering it you may need to find a new doctor

    • Way too much thyroid indeed. The low temp suggests possibly Wilsons low temp syndrome. I have this issue. Your body cannot function optimally when it doesn’t have enough heat to fire up cells etc. find a functional medicine doctor and move to a mostly or straight t3 regimen. This will improve all body functioning.

    • Hi I’ve been battling thyroid disease for 10 years. Do you take 65 3xday? I am on 80 but blood work shows I need more meds. I see A different Dr. Today. He will want me to take Synthroid but I can’t take it. Way too many side effects!! Anxiety attacks for a couple years on it!! Dr. Never believed it was the Synthroid!!I feel well but test weren’t good. Thanks.

    • None. Let me know if you find/found a way out of it. Mine lowered me in January because the blood work showed the dose was too high. I felt great before. Now I feel awful. Going to see her next week and see if I can get back on a higher dose.

  12. I was misdiagnosed in 2000, and my OBGYN performed a balloon ablation for my heavy periods. Then when that did not work, he took in a specialist who gave me (3) shots of LUPRON, (1 every 3 weeks) to prep me for a zag laser procedure. They could not do it because they over shrunk my uterus.
    I left his office after I took an article to the “specialist” that was about “Medical Mishaps”, and low thyroid.
    He looked up at me and asked: “You never had a thyroid blood test?”
    To this day, I cannot get a normal pap smear because my uterus “is like cobwebs, all stuck together.” I had to go into the hospital and have my OBGYN perform a D/C, because of these unnecessary, invasive procedures.

    7 years I was fat, exhausted, and I was eating a very low calorie, mostly protein diet, with a 90 minute bike ride a day, that would put me in a 4 hour nap, afterward. I kept GAINING weight. “You need to stop eating at Burger King”. I do not eat “fast food” at all, but they all just assume and dismiss.

    I am now on 100mcg. Synthroid and weight fell off the first 3 months.
    I seem to have that aspect under control but it took years to get to an ideal weight.

    I am still exhausted and my new endocrinologist, keeps telling me “Your numbers are fine”, while ignoring this symptom.

    I wake up at 7AM take my pill and by 9AM I am falling into a coma.
    I literally cannot ignore the sleep and I have to just go with it.
    WHY do these edo’s NOT hear me? I changed doctors because the last one ignored this as well.
    I have been misdiagnosed then treated like I am exaggerating these obvious symptoms.

    • Hi Kristine, I had this same problem with my medicine. My doctor discover that if you have low cortisol levels you that the medicine can make you extremely sleepy and made need a cortisol supplement. You should have your adrenal glands checked.

    • I have hashimotos and experienced such tiredness that I only wanted to sleep. I told my endocrinologist and they ran my labs, all looked normal but my B12 was very low so she suggested I take 2000mcgs of B12 daily and it has helped tremendously.
      Good luck

    • Oh it’s so frustrating reading about this my daughter went through the same thing hair falling out in college invasive surgery thinking it was from sis during her. Just awful she is doing much better after nine different doctors and finally diagnosed with Hashimoto’s disease as I have as well we were both on armor and doing great because Synthroid and the generic both have gluten in it which is inflammatory, but since armor was bought out and the ingredients changed we both started WP thyroid medicine supposed to be the purest not sure yet what’s happening but I do know that when my daughter and I were on Synthroid we were very sick very very tired as soon as we switch to armor it got so much better , and now with the reformulation of the armor we’re praying that the WP thyroid helps I did see an increase in my TSH levels and I try to up my armor and it made me very very sick so I began to believe it was more the new formulation then the dosage neending to be upped. If you haven’t already read it look up stop the thyroid madness by Dr. Isabel Wentz she also wrote the root cause also pertaining to thyroid issues . We really need to be our own advocate and find doctors that will listen it’s exhausting but it’s better to keep changing till you find somebody that is on board with you and doesn’t shut you down .

  13. I have autoimmune thyroiditis and PCOS with an immediate family history of RA, lupus, and sjogrens. After nearly twenty years of uncontrolled thyroid levels (too-low T4, too-high T3, and almost non-existant TSH), my DR put me on both Armour
    Thyroid and Levothyroxine. My T4 is now in a normal range but my T3 is still too high and my TSH hasn’t changed (still .01). If I decrease my Armour below 60 mg, within two weeks I’ve gained 5lbs and keeps escalating. It not unusual for me to gain 20 pounds in less than one month with 30-carbs a day, healthy, organic foods, and exercise daily. I don’t want to create other health issues by taking too much medicine, but I also can’t gain the weight back either. Should I stop one of the medicines? Raise or lower either? Change from Armour to WP Thyroid? I’m at a total loss.

    • If medicated you should be below 0, in TSH. And a high free t3 is a good thing, (with in reason )But the most important is how You Feel!

      • hi myname is marion and I went to another doctor he gave me levothyroxine 75 and that was not working for me again and went back to my old docorand he put me back on wp thyroid I hope iam doing the right thing and I hope it works for me any suggestions I have hashimotos

        • Hi I have Hashimoto’s is well as my daughter we were both on armor and it was working really well and then suddenly it just wasn’t and we heard it was reformulated so we both started WP thyroid haven’t been on it for a month yet so just waiting to see what my next bloodwork says but I had watched how my TSH was increasingly getting higher the problem with our thyroid and changing medicines is it truly is a waiting game.

  14. Hi there

    it has being 6 years since thyroid cancer had it removed since that time my synthroid medication is low every 3 months go back same thing specialist can’t get it right. I have had antibody tests as well as mri and ultrasound and adrenal testing nothing found. Some days i feel like i am drunk my brain can’t think well etc. I just came back again tsh is low t4 normal . What could be wrong anyone know??

  15. hi my name is marion i have wrote once before i am now taking synthyroid 50 still itch and post nasal drip what could this possible mean do ineed a higher dose of synthyroid or change altogether once again and i have hashimotos can you give me some adviceand i have tinglingalso

      • Hi Marion, I used to get an itch. If it was from drinking soy milk. Have you adjusted your diet to be free from gluten/wheat, corn and dairy? Doing this maybrrally help your itch. Perhaps the filler used in synthroid is causing a reaction. Check into! There are so many alternate option out there. You can even just take Tyrosint which is t4 in its purest form. I take a compounded t3 and t4 and love it. I only buy from one pharmacy as I found that my results varied depending on the pharmacy I used. Hope this helps – good luck!

      • Itching is a sign of being on too much synthroid…hair loss is another sign of too much…ask if you can cut back to .25 and see how you feel…changes take a while after changing the dose…

    • My doctor took me off synthroid because the company put some type of ingredient in it to make the shelf life longer that made it be less effective in controlling the thyroid. That might be why you are having issues still. My doctor now has me on Llyvoxill

    • Have your levels been measured, lately? Dry skim may be sometimes from hypothyroidism. Also, hypothyroidism may slow down the function of the nasal passages.

    • Hello

      I used to itch on Synthroid and break out in hives. Had asthma attcks also. Finally after seeing allergy specialist found out I was allergic to Synthroid. Then started Tirosint. I was diagnosed with Graves’ disease last year. I had RAI. And still struggle finding the right medication. They just switch it 4 weeks ago. Since all of this I have put on nearly 30 pounds. I have never had this trouble losing weight. I think it’s a fix for one problem only to cause another problem. I’ve never had asthma until having thyroid burned out with RAI. I’ve had a stoop up nose and nasal drip since Jan of this yr 2016. I hope I can find help with this new doctor. This will be my third Endocrinologist.

      • I’m in my 25th year since having radioactive iodine treatment for Graves’ disease…they gave me too much radioactive iodine and killed off the entire gland…I have NEVER felt well nor have I ever had blood taken that didn’t indict that we djust it one way or the other…I am planning to talk to my doctor about armor thyroid now…my thyroid has ffected my liver…which has caused high blood sugar…which has caused inflamed liver…and on and on

      • hi myname is marion does levothyroxine cause your gums to bleed I have been on it for about 6 days and my gums are starting to get red which is better I might go back to the levoxyl I don’t know which is better the name or the generic can any one help me thanks

      • How did they find out you were allergic to sythroid? I’ve been on Unithyroid, Levothyroxine and sythroid and feel bad on all? Been to allergist, but don’t believe they tested for allergy to any of these!

    • hi my name is marion and thanks for writing me back now my doctor got me on 50 of levoxyl and still having issues I was off for four weeks and still had post nasal drip and congestion still having issues and losing a lot of weight scared and don’t know what to do canany one help me I also feel electricity going through my body

      • Hey Marion…I saw your post and I was thinking…if you are taking .50 synthroid and losing weight without trying…you might not need that much. If your hair is falling out, you feel itchy, you feel anxious, you have times when you just want to cry, but don’t know why….these are ALL symptoms of HYPER (overactive) thyroid when my Graves’ disease was really active, I thought I was allergic to soap! I itched all the time!
        Do you know what your tsh level is?

        • thanks debra my endo has me on 50 levoxyl and I get nervous head tingling and ears poping I told him to lower me but he wont he said because I went off for a month my levels are tsh is 9.090 ts is 2.3 and t 4 is 0.9 I meant the t 3 is 2.3 is that high or low ami taking to much thyroid meds please someone let me know iam looking for a new endo I live in jersey can ayone help me

          • iam hoping someone can help i think i might be taking tomuch thyroid meds i itch the levoxyl mkaes me itch i am looking for a neew endo i live in jersey can someone help me i am ready to die from all this messwhat is a good thyroid meds without fillers

            • I take WP thyroid. My functional medicine doctor said it had the least fillers and was the cleanest NDT. I could not take synthroid. It made me very sick. I have been on WP thyroid for 9 months now and doing quite well.

              • hi I found out that my thyroid is still to low I got my endo to switch me to wp I hope it helps me better what do you know about wp let me know thanks

                • Hi Marion,
                  First, Debra commented to you about your TSH and she is right. A TSH of 9 means you are hypothyroid and need more medication. Not less.
                  You can google “WP thyroid” and find information about it. That’s what I did when my doctor mentioned it.
                  My body was unable to convert the T4 in synthroid to T3. The WP thyroid has T3 in it. When I first started on it my body went haywire. I felt like my body and brain was zooming. For the first two weeks I had to cut the pill into four pieces (or sometimes even more) and take it every four or five hours. Then my body calmed down and I adapted and now I am able to take the whole pill normally when I wake up in the morning.
                  My TSH was 95! That is not a typo. It was actually 95. My doctor was amazed that I was able to even function. After 7 weeks of taking WP thyroid, my TSH came down to 7 (that’s still hypothyroid), so she increase the dosage a little. After another 7 weeks my TSH dropped to 0.13 (that’s too low and I was hyPERthyroid) and I was having heart palpitations among other things. So my doctor decreased the dosage a little and for the last two months I seem to have stabilized. I go for bloodwork next month so I will know then.
                  It took some fussing around with the dosage and bloodwork every 7 weeks, but my body seems to be tolerating the WP thyroid well. All the brain fog is gone. All the hypo AND hyper symptoms have gone. I’m crossing my fingers that it will continue to work for me. Good luck Marion. Thyroid issues are not fun. You have to be your own advocate with the doctors out there these days! Take care.

                • hi renee thanks I started taking the wpthis morning does thyroid problems cause sinuse issues now iam taking an antibiotic for my sinuses I don’t know this my endo did not want to raise my dose of levoxyl so my wp is 16.25 and the other tablet is 32 .5 mg I was taking 50 of levoxyl is that to muchor is it okay to start that can someone give me adviceway I don’t know too much about the wp

      • Hi Marion. I was recently diagnosed with Hashimoto’s about 3 months ago. My doctor prescribed Levoxyl. When I first went on the Levoxyl, within a week or so, I also felt like electricity was going through my body. I had these uncontrollable twitches that definitely felt like electrical currents and sometimes felt more like convulsions than twitching, especially when lying still.

        I called my endo’s office and they told me this can be a common reaction when your body is getting used to the medicine. They instructed me to take a half dose for two weeks and then go back to the prescribed dose. They suspected the electrical twitching would stop and to let them know if it did not. Thankfully they were right and I got used to the medicine while on the starter dose without the uncomfortable twitching. After 2 weeks I went back to the full dose with no twitching or feelings of electrical currents.

        Unfortunately, in my case, the weight I gained is still not coming off so easily.

    • Marion

      If your tsh is 9 you need MORE synthroid… but NOT in generic form… ask for name brand and take it first thing in the morning…do not eat for an hour after… if you do not feel better in 3 weeks call your doctor!
      Tsh is measured on a scale of -2 to 5.0 and you want to be in the middle or low side! So try to get it to a 2.0 and see how u feel
      Tsh is a little confusing because if you want to LOWER the tsh… you take MORE Med… to RAISE tsh… you LOWER the meds.
      How long have you been on 50? They have to change it gradually… not raise it too much at once or it can be harmful to your heart… do you sleep a lot or a little?
      [email protected]. Email me!

    • Hi Marion , my daughter was first put on Synthroid when she was diagnosed with Hashimoto’s the problem with Synthroid is it contains gluten my daughter also has silly act disease so that was really bad I know that just because it has gluten and we have Hashimoto’s does not mean that we should avoid gluten but it is an inflammatory ingredient and when she switch to armor it was fabulous and the same with me and two years into it we just weren’t feeling that well again and it seemed that it had been reformulated we are now on WP thyroid look it up it’s supposed to be the purest of the three natural thyroid medicines . Also as I have suggested to the other people on this thread look up stop the thyroid madness also the root cause both books written by Dr. Isabel Wentz . Very informative and if it any point your doctor is not listening to you or dismissing your symptoms don’t stick with that doctor it’s not fair to you and you need to find somebody that’s on board and listens to your symptoms .

  16. Hi…Im taking 200 mcg :(, n am 20…every thing is just getting worst….Iv been taking medication sins 6 years now…and now it seems to be stopped working..im tired…please HELP 🙁

    • Try another brand of medication. Don’t give up! We have so many choices now. I’ve felt that way before and it turned out that I had reverse t3. Once that got addressed I felt way better.

  17. This article was a huge help just reading it, mentally at least. I’m 40 years old now and I have been taking medication for hypothyroid for about 10 years with almost zero relief from the symptoms. When I get my blood work done (Every 3 to 6 months) I have to up my dose. I take t3 and t4, yet still suffer from severe daily fatigue, dry disgusting bumpy skin, swollen ankles and feet, cramping legs, weight gain and inability to lose weight, extreme intermittent hair loss on my body, face and head, severe relentless depression, anxiety, puffy face, nearly crippling brain fog at times, memory loss, confusion, NO sex drive, sensitivity to hot and cold, dry cracked nails, high cholesterol, high blood pressure, and now high blood sugar. I had to have a hysterectomy and ovary removal which made the problem so much more fun to deal with…. mostly, every person ive seen about my hormones has been little to no help. The meds i take simply keep me functioning like a lifeless, joyless zombie merely stumbling through life. The supplements i take are no help (iodine, vit d3, mag, b complex and more…) and the cpap machine has been no help (ive been told my sleep apnea and hypothyroid are connected). I need a miracle, i need an internist who knows half of what this author knows. I need to not have to take 8 medications just to make it another day- 8 meds, and countless suppliments. Why is this thyroid thing so hard??? When will we get some hope? Help? Relief? Anything?!

    • Hi, What are your latest labs? if your tsh is great than 1 or your free t3 isnt in the top 25% of the range, you need to be adjusted. T3 medicine has a half life of like 7 hours roughly. your endo should be able to adjust you pretty fast.

    • I have been on Levoxyl, synthroid and armour for yeas. My blood work is done every 6 to 8 weeks. Nothing is helping. I usually have my thyroid running from 1 to 7. How can it go up and down that much in such a short time.

      • Always take thyroid meds one hour before. Meal…never with food…take your synthroid and wait at least an hour before eating…take it t the same time every day…do NOT miss a dose…and do not take it with vitamins or supplements of any kind…have you tried this?

    • Go see an endocrinologist. I have hashi’s my endo keeps my TSH under or around 1. Sh says hashi’s feel best. I agree unless i lean toward hyper on TSH scale. A TSH of 2 makes me feel like I’m in a daze. My Internest only looks to see if I’m in the range. Endos manage range and symptoms. Search for a good Endo.

    • Have you been tested for MTHFR? Taking methyl vitamins might help with the inflammation. See a doctor to get tested. Also, I read that Synthroid has fillers in it that can cause allergic response / inflammation. I’m switching to a new endocrinologist and will ask him to switch me to the thyroid medicine that has no fillers. I have hashimotos and do not feel well on synthroid for 14 years now, same dose. My T3 was on low side of range, so last doctor gave me Liothyroxine / T3 pills low dose.

    • Can you believe that good nutrition can be the ultimate miracle? Well let me share a little of my story. 10 years ago I had my precious boy and about 6-8 months later noticed so many negative changes, mentally, physically and all the above. I finally was diagnosed with Hypothyroidism and put on Levothyroxine. I had little to no positive effects of this drug and did my own research. I found Armor Thyroid which in 4 months I was feeling like a normal human again. I’ve stayed on this medicine but about a year ago I came across Dr. John Bergman on YouTube and he has such wonderful advice about diet, lifestyle, stress and it lead me a plant based lifestyle. Do you really want to feel better? Are you willing to be open minded? A plant based diet has made me feel 10x better in so many ways. Better digestion, healing my gut, better sleep and mood.. it’s endless! Healing the gut is going to play a major role in gaining health back, loosing weight and lifting that brain fog.

    • hi my name is Mario n I got anew endo and he gave me the generic form ov levoxyl 75 I am on levothyroxine and this new endo does not belive in natural he said a t4 and t3 combo can give you heart palps what is better the levoxyl or levo thyroxine can someone give me advice please

    • An Internist is no mire than a family Dr. You need to see an Endocrinologist & some of them are not to up on thyroid issues. I just found a functional medicine Dr. Better so far. Good luck, if it isnt working try someone different. My OBGYN is more knowledgeable than my endo was! Its a maze to work through but keep at it

  18. Thyroid can not seem to be regulated. Taking 105 of desiccated thyroid hormone and trying to come off Resperidone. Every two or three months my TSH numbers rise 1 or 2 points. I am thinking of taking phytoplankton because I was told it would help regulate thyroid.Thanks

    • Maureen there’s no such thing as “regulating ” the thyroid with meds. If you are taking thyroid pills whether synthroid or natural you are on thyroid REPLACEMENT hormones. You have to take enough of the meds to simulate what your thyroid would normally make if it was working. The key is to take enough. If you don’t then due to feedback loop in endocrine system your thyroid will shut off but the amount of meds won’t be enough to make you feel good.

  19. I’m 45 and have been taking synthroid for about 2 years. I can’t tell a difference on it. I’m so tired all the time I gain weight still. I also had a hysterectomy in 06 which helps make all that worse. I’m tired of going to my dr cause nothing gets changed. I am a grandma of 4 now and really want my energy back. What can I do ? Thank u

    • I live in British Columbia Canada, and went through the same with my Thyroid. Our regular Doctors, do not have any training with the thyroid, because they just treat the T4 and not the T3′ I went to a naturopath and he has made all the difference in the world to me. I am an older women also and am a senior. I am also an advocate of B12 and magnesium. B12 deficiency causes fatigue and many other problems as lack of magnesium. They say most people over the age of 40 or 50 is deficient in both of these . B12 causes dizziness, confusion, memory loss which is confused with dementia and Alzheimer’s pins and needles in the body due to poor red cell production and muscle weakness,on and on. Magnesium plays a big part in keeping your heart, kidney and muscles healthy. I very high ratio of Dr. do not test you for the B12 and Magnesium, unless you ask.

      • You are a lifesaver. I have been recently starting to suspect if I am a potential Alzheimers candidate now it makes sense my thyroid has gone crazy.

      • Hi Valerie, I’m 30 years old and had RAI therapy in May (treating hyperthyroidism, which I had for about 6 years). I’m in Hypo now and started taking Levo a month ago. First on 50, now 75. I do blood tests every 3 weeks, the results are still not in range. Every since I started taking Levo I feel awful, I also gained quite a lot of weight, and that was never a problem for me. I was thinking to go to naturopath, but have no idea where to start. I live in BC, too (Burnaby), and would be very helpful if you can share more info, how to find a good one, where to start, what to do…. I’m freaking out, and I want my old life and energy back.
        P.S. I’m taking 2-3 Brazil nuts a day, as it is rich in Selenium and helps convert T4 into T3. Levo is only T4, and I feel like I need to include T3 in my therapy as well. Dr won’t listen, as they always know the best…. It might be too early to judge, but if I start with the right therapy now, the better for me. Thank you!

        • Hi,

          I see an amazing Integrative Medical Doctor in West Van, Dr Anita Tannis. She is very thorough & has managed to help me get off multiple medications for my various health problems.

      • Hi, Valerie

        Can I ask who your naturopath is? I also live in British Columbia and I an struggling to find proper balance of my thyroud levels after surgery to remove the last of my thyroud a few years ago

    • Try natural dedicated thyroid hormone.Synthroid only contains t4 which your body has to convert to t3. Read “stop the Thyroid Madness” Very helpful!

  20. please help with my thyroid issue any body ihave hashimotos and iam taking armour 45 and 30 and I don’t think my thyroid doctor is helping me much ay advice would be helpful

  21. I have a questioniam on 30 armour was on 45 I have liquid that comes out of my nose could that be from the pills I think I might be allergic it the armour I do not know and I am trying to find anew thyroid doctor also please help I have been up and down on my thyroid plus I take lorazepam for anxiety trying to come off of it please help me

    • I think the first thing you want to focus on is getting your thyroid levels straightened out first. Be patient. Some of that anxiety may go away on its own as your thyroid gets in range. How long have you been up and down? Are you having blood work every 6 months? I am 47, and some of the hormonal imbalance that can come with perimenopause can be a factor.

      • It has Benn a struggle for me I went back to armour 45 until I see the doctor I need a new thyroid doctor plus trying to get off lorazapam any advice

        • hi my name is marion I am having problems with my thyroid pills again the doctor put me back on levoxyl I have post nasal drip and itching my levoxyl is 50 and I do not know what to do is it wise to go back off of them please help me any advice would be nice

          • Is levoxyl generic? I stay on branded Synthroid. Many pharmacists will substitute for generic because of profit. Synthroid is one of the few products they say is worth staying on the branded version. Generic thyroid med can flucuate in levels too much.

          • Marion, are you still taking the lorazepam? I had the same symptoms you have, plus constant dizziness and body aches. I was also takin a benzodiazepine at the time and it turns out I was experiencing withdrawal symptoms from the benzodiazepine. I was still taking them, just the same dose and my body needed more apparently, causing me to go on withdrawal mode. I also have Hashimotos and for 2 years I blamed all my symptoms on my thyroid. I went to 4 different endos and have tried 7 different thyroid mess. Non made a didference because most of my symptoms were not related to my thyroid. Don’t get me wrong, I still feel sluggish and have many hypo symptoms.. but many of my worse symptoms have subsided after getting off the bezo. Look up the symptoms, I think you will find some answers. Talk to a doctor if you are ready to get off the lorazepam.. do not do it on your own. Good luck!

            • romina I went o detox to get off lorazepam in august and now that I got anew thyroid doctor he gave me 75 of levothyroixine I have been taking it for three weeks I hope this is going to work I found out that I needed to go up not down the old doctor had me going down thanks for writing me back

  22. I am so glad I found this. I feel like my energy levels have slowly been zapping over the past few months. And then over the past 3 weeks, my emotions have just nosedived. I’m all over the place. The man I’ve been with for 2.5 years has never seen me like this, and is at his wits end. I’m on Levoxyl and liothyrine, but I feel like it may be time to get my blood levels checked again. And spend the next 30 days on some sort of fast or AIP program (a funeral and a wedding for major family members in a week-and i haven’t been eating all that well, like I usually do) to reset my system. Any other advice?

  23. its all good and well if you find a great endocrine specialist… mine is rubbish, doesnt listen… am told my t4 is way too high and need to reduce dose, but i insist my symptoms are of under active still… i was diagnosed hypo last year and felt ill ever since… my figures go up and down and was accused of messin around with my meds dose! am in despair and am not looking forward to the rest of my life feeling so ill, weak, tired and depressed…. i have brain fog and cold hands, and am losing my hair, which as a woman is devastating…. ave prepared my own suicide as i know i am not getting the help i need, am sooooo frustrated…

    • martine….please please please Don’t do anything like that! i know you feel awful and are depressed, but there is more to life than this! YOU are Important! YOU matter! don’t you dare go thinking about ending life. i would love to write you off this site…. any time … write me: [email protected] please! i Care and will listen and share from my heart…okay??? please!!!

      • I’ve been struggling with my thyroid for 21 yrs. I’ve been having suicidal thoughts myself. Feeling hopeless. It has taken my youth, my career and relationships.

    • Oh my God I had a thyroidectomy May 19, 2016. I am scared, I feel horrible, supposedly my blood work is normal. Excessive sweating, can’t sleep, anxiety, was not like this before.
      Susan

      • susan…i am so sorry, don’t give up! can you tell us more about your self and condition?? as you have read here, you are not alone! we all are here for you. tell us what you’ve tried and for how long and what your symptoms are currently. please don’t give up.

      • I went through the same thing after my thyoidectomy. I lost everything I had too. What saved me was a compounded thyoid formula. Levothyroxine and regular armour gave me NO ENERGY. I encourage you to try a compounded prescription from a naturopath. It helped me live my life again.

      • Hi Susan.
        I had a total thyroidectomy done back in 2003. Iv been doing ok so far . I do get irritable in hot weather and swet when i never did before. It has changed my body. I dont get depressed though, i wont allow myself. A healthy mind is a healthy body so to speak…although now i am finding the medication to be out of wack. Hopefully i can get that fixed. .like today. ?
        For the rest of us…try stay positive. You can talk yourself into depression…its just as easy to talk yourself back out of it. Its a vicious circle i know but staying positive really really helps. Xxx

        • Hello! I too had a thyroidectomy in Dec ’14 due to papillary carcinoma. I experimented 14 of the 16 side effects listed for synthroid/levothyroxine. I was miserable. My endocrinologist changed my dose. And when that didn’t help we tried name brand synthroid. I did see a difference in how my body reacted to the synthroid in just 2 weeks. I would have days where I actually was able to feel joy instead of indifference, depressed or angry at all times. However, 1 1/2 years after my surgery something clicked in my body. I feel like a normal human being!! Sometimes a side effect kicks in but it’s mild, rare and temporary. So hang in there. Keep in mind that for some a combination of T3/T4 works. For others its a natural hormone like Armour. Due your research, be proactive, be patient and don’t give up! Also, if you had your thyroid removed due to cancer, you need to be hyperthyroid to keepthe cancer from coming back. My blood work was “normal” but I was not fine. My body just needed time to adjust to this change. Others in the same situation say they went through te same thing. Hope this has been helpful. I wish you the best!

    • Martine, suicidal thoughts are a symptom of your under active thyroid and can even deceive you into thinking of suicide as a solution Not what it really is: FINAL! How many suicides have not really been an intentional act of ending one’s life? During the months prior to my diagnosis of hypothyroidism, I thought I was going crazy. Besides the usual physical symptoms, my mental state was bizarre! I would have moments of not knowing where I was, everything foreign until I “snapped out of it” and found I was in familiar surroundings! In my own home (of 30+ yrs), I would reach for things in the “mirror opposite” of where they actually were (& had been for more than 30 yrs)! Dishes that were upper left, I looked lower right on the opposite wall, etc. I would go shopping only to find myself wondering why I was here! My life was 100 times worse than these mere words can describe. In my mixed up mind, I thought that if I killed myself TODAY, I’d be better TOMORROW! I thank the Lord for a devoted loving husband (albeit totally confused!) trying to reassure me. My doctor refused to test my thyroid and chastised me for “self-diagnosis”! I changed Docs right fast! Was tested, treated and horrified to think how close I came to “accidental suicide”! Keep seeking a solution!

      • OMGosh, you just told my exact story!!! I now take Armour thyroid as well as compounded Estrogens, testosterone & progesterone. I am seeing a new Dr next month who hopefully can help with the continued symptoms of hypo thyroid.
        My PCP didnt want to test for thyroid but since all females in my family were already on levo, he decided to do so. He wanted to give me an antidepressant! I was on trazodone for 12 years & never want to go back on that. Fortunately we found the tests confirmed i was hypo. Now the maze of figuering out which meds, which Dr etc. Its a crazy-making situation for sure. But keep persevering, it takes time to get it all right

    • I was in you shoes about 6 year ago. Please find hormone restoration doctor, he will proscribe Armour Thyroid for you and you will see big difference almost instantly. Don’t wait, doctors not gods, you don’t have to put up with that one, fired him! Call around and ask if that doctor prescribe Armour if not call another. I hope you could find one soon.

  24. I might as well toss my hat in the ring too. I’m a muscular 39 year old male. Just over 2 years ago, I started to notice a few changes here an there, as if I was sick with something but not in a vomiting sense. As time went on, I gained weight, realized I was absolutely depressed, bloated, lacked major energy, lost interest in EVERYTHING (emphasis is needed!) and my libido disappeared. I would get so drowsy that it was as if my body was controlling my thoughts. Scary when you think about it, as this happens at random times, even driving.

    What have I done thus far? Since this past February, I’ve been diagnosed with Hashimoto’s and sleep apnea. Getting ripped off on a CPAP mask still hasn’t netted any benefits, I still feel fatigued and weak, as if I didn’t sleep at all (at least I won’t stop breathing). The damn Levothroxlyn is about as useless of a med I can imagine. I’m constantly made to feel like I’m bullshitting the endocrinologist, each and every time I call to speak with her (which is rare). I will wholeheartedly agree with the countless souls who have shared their misery here that these moronic imbeciles, masquerading as endocrinologists simply DON’T have a clue how to treat this and refuse to seek a new way of attacking the issue (save for the actual good endocrinologists out there, which I’ve yet to meet after seeing 2 of them).

    I was then pushing for Testosterone diagnosis, which I finally got in late May. Results: 147, 301 and 127 (all 3 months apart, starting May 15′). For the men reading this, I gained: my libido back, hair grew back much faster, more strength (I’m a gym rat but I don’t use PEDs), a renewed feeling of courage and standing up for myself again (lost it over the last couple of years, like being pushed around type feelings).

    To you all: please don’t give up. Reading these sad stories has renewed my energy and I’m proud to tell you all I’ve dumped my current endocrinologist (wanted me to wait AGAIN till late July for a lab/check up) and I’m on the search for someone who cares and is willing to listen, not just hear me and take my damn money.

    What do we all have? We now have a voice and the complete and utter confidence in the fact we KNOW WE FEEL LIKE SHIT and WE CAN describe to others how we feel. Don’t let others that judge us for being unmotivated, un-energetic, constantly drowsy, weak, lacking libido, frustrated to the point of classic depression, unwanted/impossible to lose weight gain and the list goes on. Don’t stop fighting and we all know something will turn around in this science to help us all feel normal again, which I can’t remember feeling like now.

    Take care all of you!

    • I fill the same way I’m on 75mcg of the same stuf and fill like hell all the time I sleep but i dont fill rested at all and my moods are all over the place its scarey I I love to work out but with work and life I just don’t have nuthen lift and my sex drive is gone I’m 37 I don’t smoke I eat right and for 5y lifted weights I don’t do drugs and everything I read says I should fill grate there are some days if like I don’t have get up and go to even work but i fight thruw I went to the doc’s and asked for help but i get the same carp he’s wanted to put me on antidepressants I’m not depressed I’m a pretty happy guy but Damm what do I do I get called a slaker at work but I’m a go getter my girl friend love me but when she wants it man I ant got it I fill like I’m falling apart I’m in the best shape of my life and i can’t enjoy it so guys out there that are going threw this help i.d.k what to do

    • My endo at Rush in Chicago says Hashi pts feel best at a TSH of 1 or under. I believe the Endo TSH range is .3-3. I feel like crap above 2 TSH.

  25. Hi again…just wanted to add that i am also taking one of the necessary supplements to go along with the Lugol’s iodine..Magnesium and have just recently studied why the body needs more of this than what we have been told. the md’s have told us that as we age we need more Calcium to keep our bones in check so as not to get osteoporosis, but they have done a terrible job at telling us about the ratio of Mg to Ca and it is extremely important. Magnesium plays a Huge Major role in the uptake of Calcium and without it one’s body won’t get enough Ca and guess what?? one ends up with all sorts of ailments and running to the doctors…hmmm, more $$ they get. do your research and look up the benefits of Magnesium….it will change your thinking and your health. i owe all my research to my good friend Betsy who enlightened me to websites and told me about the Mg to Ca ratio…first thing she asked. wow! Huge difference in my health and well being….day 13 now, with iodine and supplements and watching what i eat/drink and feeling so Awwwwwsome!

    • Laurene, wow is all I can say….I really appreciate u sharing this info bcuz over last 2 months I’ve been suffering with I think low Magnesium levels….not sure about Calcium levels. I started having pains in my groin/glut areas & walking with a limp…which was getting worse daily. I just went to doctor yesterday & he says I probably irritated an old injury….also maybe my daily swim was part of it. Said I needed therapy-X-ray-ibuprofen as needed. He took blood work but no checking mag/cal levels.
      So, coworker suggested I soak in Epsom salt….I did last night & today I’m feeling 109% better & no limping!!! I’m amazed…can u share websites your friend Betsy shared with you?

      • hi Cheryl! first i want to say i am not saying this is a cure-all and i would advise for you and others to do your own research, research and research. i did and still am and i am in good enough health that i could say that i would give it a whirl just to see if my conditions improved and if i noticed any thing at all. the magnesium i am taking is magnesium gylcinnate as my friend said it would be the easiest to digest without having tummy issues. with the lugol’s 2% solution i am taking 6 supplements and an additional 1/4 tsp of unrefined Himalayan pink salt each day. i also continue to take my 30mg of armour thyroid and i have started taking it at bedtime just because i then don’t have mental issues of waking up constantly thru the morning hours seeing the clock and determining what time i need to take it, so that when i do get up i can have a cup of coffee…i not only am sleeping better, but awake refreshed and just go for the coffee whenever. as for the supplements..i take a good women’s multivitamin, D3 1000 iu, Vit C 2000 iu, B50 complex, Selenium 200mcg, and Magnesium Glucinate 400mg daily. i am taking 10 drops of 2& lugol’s first thing in the morning and then when i have my breakfast i have the supplements….at lunch i take 1/4 tsp unrefined salt. i have on occasion taken an extra 200mg magnesium tab at supper to sleep soundly…but sometimes it does upset my tummy. i sleep wonderful…i wake up several times thru the night as usual, but go right back to sleep. you wanted the sites i looked at; i will list a few, but mind you when you visit these sites, you sometimes have a thought or question…write it down and then later research your thought/question…it’s a journey and i have spent hours studying. also, on each site there are comments from readers and i have read thru them and researched more. on Amazon when i read people’s comments…i also read the comments of others to the person who commented…one gets a huge education in this alone and i still haven’t gotten one book yet. with that the 2 books i saw on amazon were: dr.david brownstein’s, Iodine, why you need it, why you can’t live without it. and dr. Carolyn dean’s The Magnesium Miracle (the very first informative comment on amazon is enough right there!) explains why you need Magnesium and opened my eyes! sites: Stop the Thyroid Madness, Hormone-Life Extension Health Concern on thyroid regulation, companion nutrients– the key to success on the iodine protocol, earth clinic: lugol’s iodine: treatment & side effects; gmo foods–what not to eat; lugol’s iodine and supplements to take while taking it, a must! and why. joanne brophy clinic: iodine therapy..iodine the universal medicine; goitrogenic food list– telling of foods to avoid because they disrupt normal thyroid function…thus i let go of the red wine and other veggies that are listed. that’s just a few. oh…and i just want to add that lugol’s does Not taste bad…i grew up with iodine in the water system (am 60 years old) and i thought it was going to taste bad…soon as i drank it, split second image flashed back to when i was a kid and this is just how our tap water tasted. also, when others comment on iodine salt loading…i haven’t had to yet, but it’s when you take the iodine solution and your body has reactions to the bromide toxicity that is already in your body and you may get headaches or rashes …some used to think this was due to the iodine and they said don’t take it, but apparently it is due to the bromides that are forced off the receptor sites that they have been clinging to all this time (poisoning us) and the iodine is reigning their now and the bromide poison has to get out of your body somehow….if one has a bad reaction, you can do the salt loading dose ( 1/4 tsp salt in a cup of warm water..drink and immediately follow with 12 to 16 oz of good water and wait 30 to 45 minutes…to pee it out; if you can’t pee….do this again up to 3x and you are helping your body eliminate the bromides from your body). i still have been waiting for a bad reaction and just wanted to see how 1/4 tsp of unrefined salt would taste…it’s not bad at all, and i actually do this each day at lunch. okay…done; sorry for the long journal. this is my story. research/write things down/research…ask questions and read read read. hope this helps Cheryl. lauree

      • Cheryl….the lugol’s i am taking is 2%, not 2&. (typo). if i continue, i may get the 5% and less drops. lauree

        • Anyone reading this, I would strongly recommend taking selenium with your iodine. Selenium is important for the thyroid, and can actually protect the thyroid from any damage iodine may possibly do to it. Cheers!

          • Yes! Melissa! you are correct! when one does research on taking Lugol’s…there are a few supplements that are a must! and Selenium is one of them; the site goes into the details of why the body needs these supplements and why if you don’t take them, it could lead to havoc.

            • Lauree, I am so grateful for your posts. Can you tell me what the supplements are that are necessary to take with iodine? Is it the ones you listed in your daily routine? I am 41 year old mother and who takes full time care of babies and works at night when they go to bed and have so little time to research. It looks like you are reading ALL the places I used to research when I had time. – The same doctors, sites, and books. I love researching all things health, but have so little time on my hands and am desperate to fix my thyroid problem.

              (My doc took me off naturethroid when I got pregnant 4 years ago and told me to stay off it and take levo while pregnant and breastfeeding with subsequent baby. I’ve just happily gone back on naturethroid and have not taken well to the medication I used to take so well to. I’m going to stick it out though as I think I need to slowly raise my dosage. I’ve always felt inclined to try the iodine plan though and just don’t have the time to research it at the moment and my doctor since I moved is very traditional.)

              • yes Melissa! they are the one’s listed in the posting i wrote. a good Multivitamin and watch the mg’s of Magnesium in the multivitamin! because you also want to take a supplement of Magnesium as well…not too much. i use Magnesium glycinate and a total of 600mg/day between the multivitamin and supplement. you also want a good Vit C 2000 to 3000mg a day…i am taking 2000mg; Selenium 200mcg a day…watch that multivitamin and see what it has as far as selenium….i use a 100mcg supplement to add to my multivit. i also take a good balanced B-50 (50mg of B’s) and D3..i take 2000 iu of D3 since i am in my 60’s now. hope this helps! make sure you take the Vitamin C.. 2 hours after taking the iodine….forgot why, but they seem to stress this. give it a whirl! lauree

                • Thank you so very much! That was so kind of you to reply to my post. I so appreciate the help! It’s a bit of a grim reality that I feel I can trust an anonymous name on this chain more than my doctor! It looks like we look to the same sources ; ) Thank you!

  26. hi, i can’t say i’ve got an answer, but so far i am seeing wonderful results for myself. i was only diagnosed with hypo-thyroidism late 2014 and was on a t-4 med up until a few weeks ago, as i started realizing the symptoms i had before my diagnosis were present once again. got my md to switch me to armour T about 3 weeks ago, but i really think it has been all the research and reading that i have been doing of these websites as well as people’s comments that have educated me a Whole Lot! although my lab results were all within range and md said i was good to go, i questioned why i felt so tired and had muscle cramps at night…she responded that she wanted to help me with that and i requested armour T. i am on a very low dose and haven’t yet had labs done, but researched enough on why the body needs iodine thru Dr. Brownstein’s website and others and decided to try it along with the recommended supplements. today is day 9 and i tell you i have never felt soo good. clarity of thinking was the first thing after just a few hours and then the energy came! i have done other things like eliminate the cruciferous veggies i had been eating and gave up the red wine….all in all i am feeling fantastic…energy energy and no more fogginess. i can’t say this is a cure-all or that it will work for you, but i thought i’d give it a try. i spent hours studying different sites and wanted to try it. i am currently taking 25mg of lugol’s iodine every morning and i still take the thyroid tab…but i do take it at bedtime because i enjoy my coffee in the mornings and i was constantly waking up thru the morning hours checking on what time it was so i could take the thyroid so as to time it right when i got up and could have coffee. now i don’t need to worry about the timing when i take it at bedtime. mind you…this is what i do and i’m not saying to do it.

  27. I developed a goiter after birth of my son in 2000. I have been on levothyroxine on and off ever since. I went from 180 all way up to 280 lbs. I developed swelling in my legs, neck and shoulder pain, constipation, tremors, muscle weakness, brain fog just to name a few. I have tried: zinc and copper, kelp, selenium, l-tyrosine, B vits, D vits and have not seen any imrovement with any of these. I went off my meds Christmas out of sheer frustration and went on an NDT product.

  28. I’m 55 years old and have been dealing with hypothyroidism for the past seven years. The first couple of years Levothyroxine worked for me. Then I got very tired and did’t have the desire to do anything. So T-3 was added, I’ve taken Cytomel, Armour and Nature Thyroid. The problem has been either they do nothing to help my symptoms or quit working after a few months. Once I did god for eight months then just one month. Change the meds again and again. Does anyone have this problem where the medication stops helping and you have to change it over and over?? Any help will be appreciated.

    • Yes! I’ve been going through this for a year. I feel great and then my thyroid crashes. What the heck?
      Same thing they have now added cytomel. Once the first added the cytomel 3 times a day…I felt amazing. Energy back, less bloated, regular sleep. Then after about 3 weeks….honeymoon over!
      Currently: 75mcg synthroid with 5mcg cytomel, noon 25 mcg symthriod, 3:00 5 mcg cytomel.
      Let me know if your dr figures out why

    • I have had hypothyroidism for the past 17 years. I developed it while I was pregnant. It went undiagnosed during my pregnancy that when they did diagnose it it was already full blown and I have had it ever since. I used to be on Synthroid but my MD took me off of it because the maker of the company put a new ingredient in it t to make the shelf life longer and it made it not work for me anymore. I am now on llyxoill and now it work for a while and now I’m having symptoms again that I feel it’s not working again. Does anyone else have any ideas? I currently take 137 mcg

  29. I am having a problem withmy thyroid meds iamon armour 45 I am looking for a new thyroid doctor any help would be nice I don’t think my thyroid doctor understands when I tell him things I live in union county in Elizabeth nj if any one can help that would be nice

  30. I am trying to figure out Armour dosing. I was on 90mg and my tsh was 2.369,Free T4 .79 and Free T3 3.0. My Doc wanted to adjust to get Free T3 to approx 4. So, she raised the armour to 120mg. After being on this dose, I had my annual physical approx 2 weeks after new dose. My TSH rose to 4.880 and my Free T4 was .90. Free T3 wasn’t tested. I noticed when I got hot that my feet were puffy, so knew something wasn’t right. I emailed my doc and she has now raised my dose to 150mg after 2 weeks on 120mg. My question…if you want to lower tsh and raise free t3, do you raise or lower the armour dose? I am 57 and was diagnosed Hashimoto’s approx 16 yrs ago. I dont have severe symptoms. Actually the armour has helped with energy level.,My other complaints are really dry and scaly feet and hard to lose wt., I am 5’4 and weigh 156.

  31. i just ahd the hiatel hernia surgery my name is marion and now i hope to have help with my thyroid i have been on armour for a while but i might be allergic to the t 3 because i sneeze whan i take it and i also have tingling and i am also on 0.5 of lorazapamany advice would be nice thank you

  32. what is helping with decreasing the inflammation. I am already taking curcurmin and reservatol, grain , wheat and dairy free, high fat, low carb diet, etc.

  33. Would just like to tell everyone that it made a big difference for me when i cut out caffeine from my drinks, the doctors don’t tell you this but i have read other people have found that caffeine affects their medication. I would feel fine on the levothyroxine but noticed at certain times of the day i would get tired again and start to feel fuzzy headed and on another planet and realised it was always when i had drunk a cup of tea or coffee, went on to de-caffeinated and i am now fine, might not work for everyone but is definitely worth a try 🙂

    • THANK you so much for that. I am drinking a cup of coffee now. Had my LAST sip. AHHHHHH! I will try de-caf for the next to week. Thanks. I just wish I could get rid of my bloated abdomen. The Liothyroxine is NOT working or my diet is preventing it from working.

      • Hi, l too have hashimotos and I am taking synthyroid 25mg , I have a goiter and 3 nodules , one was over 1cm so it was tested and it was benign the other 2 are too small to be tested. I am now feeling like I did before the synthyroid, my throat hurts, I am always tired. But I just wanted to mention the bloated stomach, I have had for years. I do have ibs. But just recently I have been seeing a lot about leaky gut and how they say it can be the reason for hashimotos. At my last ob/gyn appts my dr who I love dearly mentioned to me about taking probiotic, so I purchased nature’s bounty probiotic cd which is controlled delivery. I started taking it on Friday, then on wed I had my appt with the endocrinologist, I had lost 2lbs. I was shocked. My bloated stomach is no longer here. I just thought this my be helpful to you.

  34. I have to say it is so frustrating to hear how many of us suffer from this. I don’t understand why this doesn’t seen to be taken more serious by the medical profession. Is it because it isn’t life threatening? Or because they are to overwhelmed with “bigger” issues? Some days i feel like i am losing my mind and why do i have to feel like i am crazy just because they don’t understand why I don’t feel good. I mean really and i actually told this to a provider, ” Look if I am crazy please do something, lock me up, put me in the white padded room, because then at least i would have a reason why I feel like this”. There response is your not crazy…..then stop looking at me like I am when I tell you how this is effecting my life.
    I am 35 1/2 i have dealing with this since age 18. I now have no thyroid( going on 10yrs) and my levels still are not stable. I feel like I am in a game of ping pong and I am the ball. UGH
    Sorry needed to vent, I just dont know what else to do 🙁

    • I too, feel the same way. It has been 11 yrs of trying to find the answers for me. Since all this mess I have lost everything I owned and have gotten pregnant in the process at age 44. He now has autism and I feel his levels may be off as well but no test has been ran on him for thyroid issues. Please someone help me I am tired of feeling awful. Most days I feel i will not live long to be there for my autistic child. I’m tired please someone help all of us.

      • I am sorry you feel tired, depressed, lost and desperate. I have s similar story, was on lots of different thyroid meds settled on Armor. I went to a hormone specialist in NC and he checked my hormone levels but also my testosterone, DHEA, estradiol and I started hormone pellets, my life us great now! Energy, no depression and 35 pounds of weight loss, please consider this also. Bless you, I know it’s tough.

          • I have hypothyroidism and have been on many medications for it. Including Lerothyroxine, Armour, Nature Thyroid. The problem is they either don’t help my symptoms at all or work for a few months then stop helping. Any suggestions? Thank you.

        • I am 45 and was diagnosed 3 years ago. Have never been the same since. 5’5″ and now 167!!! I gained 25 right out of the gate! I now have fibro as well. Just went gluten free, organic, non GMO and just started armour after doing tons of research. I once was a hyper person, now I just watch my life go by in compete exhaustion. Can’t keep a job because NOBODY understands because I look fine. I cry so often because I just want my life back. I felt good for a month so I exercised went to the doc and not one lb was lost. So discouraging always. I don’t even like looking in the mirror. I think the depression is worse than anything for me. Took my kids a long time to understand that this is the new me. They were used to me going nonstop. Breaks my heart. I think my energy would be better if I could get this weight off. My TSH is .49 my T4 is 1.05 and my T3 is 88. Still feel horribly exhausted like I’ve ran a marathon. Any suggestions from someone who’s more experienced with this than me?

          • After going through pure hell for 7 years of being sick to get a diagnosis of Hyperthyroidism, the loss of a sister due to not being diagnosed, I am confident that this disease is dangerous on so many levels…I often think “what if people are walking around undiagnosed and die due to unexplained circumstances ” or commit crimes and such due to the same..because it makes u bat shit crazy in a way no one understands u less you have experienced it yourself…now 3 years of being on meds not working anymore, tired, so fatigued…gaining weight even after 1000 calorie diet and exercise. I wish this on no one. Has anybody been able to lose weight..if so how did you do it. I’m mad all over again.

            • I don’t know if this will work for you, but after 2 1/2 years on T4 and bed ridden, I found a new doc who Who added T3, and that was the day my life began to change for the better. I still have some fatigue but I’m not bedridden, and I lost 30lbs in 7 weeks. Make sure they give you ENOUGH T3 (I take 100m t4 plus 25m T3, but I had to switch docs to get the T3 up that high, since $Pharma has put the fear of God into most docs, and even the most and Blyton docs are often over conservative). Important: I am not a d and even the most and Blyton docs are often over conservative). Important: I am not a doc, and your experience may differ, but always monitor yourself for hyper- symptoms such as heat intolerance, chest pain, heart Palps. This is what docs are afraid of, as hyper- is potentially more dangerous than hypo-. Good luck. Don’t give up, keep digging, keep testing, keep asking questions. It was only after 4 years of relentless reading, finding good docs, that my current doc discovered my Hypo- is caused by a copper-zinc imbalance. If I had not kept pushing, and found some good docs, this would never have been discovered, and I would have continued to deteriorate physically & mentally, and ultimately express Parkinsons, Alzheimers, and severe mental illness–Good Luck. Have faith, and don’t create a lot of negativity for yourself regarding the shortcomings of the Medical Profession. For the most part, everyone is doing the best they can, and all docs think they are doing the right thing!…Warm regards to one of “my people” 🙂 Papi.

              • What a positive post! Where are you located? What type of doctor did you find that finally got you headed in the right direction? A D.O.? Thanks for your response in advance!

            • So sorry Heather. I even feel sorry for myself. I’ve literally starved and didn’t lose weight; only got a excruciating migraine.

          • Sorry to hear that you’re going through this. Did they give you Lyrica or Cymbalta for the Fibro? Both caused me to gain a lot of water weight as well, which I lost after weaning off of them. Try reading about adrenal fatigue by Dr. Michael Lam, it’s very interesting. I also found that cutting out meat and dairy products helped me. Good luck!!

          • Please have your hormones i.e. progesterone, estrogens, tested. The “fibro” pain might be from low progesterone. Menopause starts that way.

        • Janice,

          I am in NC and having the same problem as everyone else on here. Can you tell me who you saw? I feel I can’t go on living like this.

    • I agree with you fully, but you need realize thyroid conditions can be life threatening. I was diagnosed with Hashimoto’s 20 years ago but after the birth of my third child, it killed my thyroid. My body was killing itself. My heart rate was very slow, along with my reflexes and thinking. My muscles were so atrophied it was almost like rigor mortis was setting in. My doc told me if i had waited another week or two, i would be dead. Since then my thyroid started functioning and i was taken off the synthroid. Recently it decided to go into full attack mode and I’m back on the roller coaster again. Most people think it’s no big deal, but unless you have this disease, you don’t know how crazy you feel or how hard it is to get out of bed.
      I wish more doctor’s would test for antibodies, not just TSH levels. I have 2 children with symptoms and their TSH levels are fine.

      • I have o say my bloodworm NEVER showed anything wrong with my thyroid. I was bed bound, no mental cognition left, weak to the point I could not stand, major depression and anxiety out of the blue, could not put a sentence together, and severe weight loss with hair loss. Doctors all told me I had Chronic Fatigue Syndrome and that my swollen lymph node in my neck was the virus, that they could not name, that attached my system and that I was going to be in bed for the rest of my life. FINALLY, a neuro believed me and demanded an ultrasound. Endo read it and said “its juts hashimotos”. Radiologist demanded the endo to get a biopsy. she refused. After yet another six months of going back and forth, the radiologist did another ultrasound and called my neuro and told her I needed to get in immediately. I ended up having stage four thyroid cancer, a severe case of hashimotos, 18 tumors in my thyroid , that disintegrated in my surgeons hands, 100 lymph nodes removed as it spread to those, a muscle, parathyroids, etc. I had a rare form of it called diffuse carcinoma. the ten hour surgery, two weeks in the hospital almost killed me but my surgeon told me that maybe, just maybe I had four months to live if I had not done the surgery. I have problems now getting the right dose,cognitive and brain issues still , but I do not believe my labs or doctors who only rely on them any longer. What caused this horrific type of cancer that needed up being paraneoplastic so the antibodies attacked my brain? who knows? Lyme, viruses, bacteria, etc…doctors need to be more informed of what is causing cancer and hashimotos. BTW: I live in Californian and am surrounded by “excellent” doctors who went to “excellent med schools”…very sad. I would NEVER suggest of anyone to go off their medicine as you may end up in a coma state. I had an adrenal crisis in December when my medicine was too high with the additional cytomel added. Too much for my adrenals to handle. THAT WAS INCREDIBLY SCARY. went into a fib and my adrenals shut down completely. just all be careful.

        • Gosh that just mirrors my experience of hashimoto, more than 40 tumours in my thyroid after fejng like commuting suicide
          In bed thoroughly depressed hardly able to move, legs like lead, high fever, emotions of a 2 year old!!
          What a nightmare
          Can’t get armour in uk because they push levothytoxine on everyone despite it not really helping
          Sat in hospital with a supposed specialist endo
          Told him I wanted to end my life, tears flowing down my face.
          His answer…. Lose weight
          Yes unbelievable !!
          But this is the level of care in uk for thyroid!!
          They couldn’t give a toss
          So I went on a fruit smoothie regime
          Cut most breads carbs meat n dairy out, it’s very limited but it really has helped
          The Weight is reducing and feeling better, still have bad days and fever attacks when I’ve overdone things
          But it’s given me a bit of hope
          XXXX

          • To Jane….glad you are feeling a little better. Honestly, traditional medicine doesn’t seem to look past their own nose. I have asked my docs to investigate my autoimmune, identify it and treat it. To me, support and rebuilding that part of my Hashimotos is crucial to my ultimate good health. They DO NOT do that. They treat the symptoms with thyroid meds. Meanwhile, those of us who suffer…continue to do so. I want to see an integrative/functional med doc, but they do not take most insurances because they don’t want to have to adhere
            to the less effective guidelines of insurances. Sad. So many of us walking around feeling like crap. Be your own best advocate and read all you can on the thyroid. I read that by the time your thyroid isn’t working properly, your adrenal glands have already suffered. I also think digestive issues aggravate thyroid conditions. Certain foods aggravate. For me, my blood work showed low D, & low B12. I am currently getting acupuncture. I eat several smaller meals a day…try not to eat any junk, take my vitamins and rest when I feel drained. I am determined to feel better and wanted to share my enthusiasm with you. While I do feel down sometimes, it quickly passes when I feel better…so I do not think I have true depression…just more anxiety from not being able to do all the thing I want to do. Please know that all of us here are concerned…and hope that your suicidal thoughts vanish!

        • Hi.. I was diagnosed with Hashimoto’s. Then another doctor says “No, you don’t have Hashimoto’s..” A new doctor prescribed Armour for hypothyroid and my symptoms are the same; no energy, hard to focus, impossible to lose weight, bad sleep, hair loss….Where in California do you live? Have you found good doctors?

          • Low many times is hoshimotos
            Include essential oils too
            Omega fats
            Lots of protein all day long
            No diary
            No glutin
            Make sure omega fats too
            Complex carbs

      • I was diagnosed with hypothyroidism at 40 am now 56. It took a few years to get the right med. I am now taking armour thyroid and will never stop taking it because it makes me feel good. I am not tired, I have energy and most important my emotions are no longer scattered. My 16 yr old daughter could tell me if I missed a dose because of how I acted. I was a nurse for 29 yrs and after being on armour for my 3 rd year, I saw a endocrinologist and he explained so many things to me that educated me to help with this life threatening disease and yes it is a life threatening disease. Most dr.s except the endocrinologist do not I repeat do not know much about the hypo or hyper thyroidism. Where as the endocrinologist does but to this day very little is still known about why are thyroids go haywired. But anyone taking medication and not feeling well on their med please go to your dr and ask for a tsh and the free t3 and t4. Not just tsh. If you have to go every 6 weeks then do that. Because women have continuous hormone changes especially in their 30’s and 50-60’s. Premenopause and menopause causes incredible changes with this disease and men have hormonal changes also. So for anyone who feels bad please go to an endocrinologist and let them help you get straighten out if they are able it is a serious disease so do not take it lightly. I hope helped. One other thing thyroid disease was not fully diagnosed until the 1950’s synthesis was made until the 70’s to so that may seem like a long time but it really is not. Thanks

          • Armour Thyroid saved my life!!!!!!!!!!

            Any one who has not tried it, you have to DEMAND to be switched. Yes it may not work for everyone and adjustment will need to be made the first month or so your on it, but how will you know if this is the answer to your prayers unless you try it?

    • I feel the same. At my wits end. It’s like being on a dollar coaster from hell. I can’t believe how it affects my life!! Like I’m stuck under a wet blanket & can’t fight my way out. Sorry for venting. 🙁

        • HaHa, that maybe laugh right out loud and the most ridiculous thing is that i read it as roller coaster and didn’t notice until you corrected it. My thyroid brain is use to auto correcting, because i make so many dumb mistakes now, lol
          We all just need to stick together!

      • A message to EVERYBODY my life changed when I found a competent Doctor. There are more of them than you may think, and the numbers are growing as Functional Medicine gains traction. You can find lists of competent docs at STTM, and a number of other websites. I spent 3 years bed-ridden on Synthroid ( including a stretch being negligently diagnosed with RA and treated with highly toxic drugs and Prednisone for 2 years). Finally I went to a competent doc who gave me my life back with a combo of T4/T3 (extended release at compounded pharmacy). Now she is working in gut issues, “dormant” infections like EBV, LYME, etc. She is relentless and systematic and continues moving thru her protocol. PRIORITY #1: DUMP YOUR ARROGANT, ILL-INFORMED CONVENTIONAL DINOSOUR AND FIND YOUSELF A REAL DOC. ps never ever go to an endocrinologist–They are by far the most ill-informed, and are led around by the nose by the pretty girls who swarm around their office, ingratiating themselves with staff, and keep the doc “up to date” on the latest corrupt “science” choreographed by the criminals running Big Pharma (eg the ATA – American thyroid assoc funds bogus studies showing that Synthroid and only Synthroid must be used by doc’s who don’t want to be sanctioned by their licensing board. The odd thing is that ATA comprises one (1) employee making $750,000/year funding “studies” and conventions for doc’s to go to for full immersion in Big Pharma extravaganzas, under the guise of “continuing education. Here’s the clincher: ATA is funded by the criminal enterprise that owns the patent on Synthroid!! Synthroid generates more revenue–in the BILLIONS–than any other drug on the market.

        • I have a good Dr, but we can’t seem to be able to stabilize my thyroid. I started to feel better after starting T3, but it was short lived. I guess I had my hopes too high. 🙁

          • I had the same problem, but my competent doc just kept working on it, looking at possible adrenal problem, but mostly the gut. The main work is on the gut, leaky gut healing, Special gut supplements, bone broth, and most importantly, going on a gluten free, casein free diet. There is no silver bullet, all this stuff and more needs investigated. You must go on a gf/cf diet; that is basic. Gluten and Casein are at the core of the gut problem. If your doc isn’t working on this stuff, you need a better doc.

            • I am celiac, so already GF. I had bloodwork done about a year ago, also lactose & casein intolerant. I wasn’t being careful with dairy, but have been for the past month or so. Just saw Dr this morning, adding a small dose of T4 back in. Also checking me for diabetes. 🙁
              Will it ever end?!?!?

        • Would it be OK to tell me who your doctor is. Are they accepting new patients. I’ve been to many practitioners all kinds of doctors alternative and conventional. Terri

        • David Trindle, would you be so kind to share with us your amazing doctor and the city/state? Maybe some of us are close enough to see her as well. Thank you!

          • my name is marion and I just started on wp thyroid I hope this works I started it last week I have been through the thyroid ringer with meds still not feeling good I have tingling all over my body stil don not know what is causing it if some one can help me I would appreciate it

    • Hi! I read your comment and have to say that I seriously word for word just told my doctor and my husband the same thing! I was taking synthroid 0.075 for the last 5 weeks and it felt like I was on a Rollercoaster from hell. One day id be fine laughing enjoying life and the next crying or ready to chew my family up and spit them out! I had blood work done Tuesday 5/23 and saw my doctor 5/24 in tears explaining how I felt like im loosing my mind. She said the labs showed my body want absorbing any of the medicine, that all the symptoms are those of an overdose of hormones and to stop taking it. Wait 4 weeks and start back fresh with Armour- A natural hormone. Today’s the first day of not taking it but im not in tears this afternoon so it a plus. I work graveyard shifts and juggle a family on a few hours of sleep a day. My biggest fear is falling back into a rut where all the old symptoms come back.

      • I am so sorry, even though I know we all feel the same it still sucks to hear people in thyroid hell. Stick with the armour thyroid it’s has made a huge difference in my life HUGE. Also my on gym decided he would start running labs as soon as I called him and said I didn’t feel good to try to pin point where I need to have my levels to function even if the means I am “out of the box”. Good luck, think happy thoughts and laugh cause what else can we do?

        • I totally agree take the all natural Armour Thyroid if in the USA in Canada it’s just called Thyroid. Thyroid is made from deccisated pig thyroid glands. The inactive ingredients are cornstarch, magnesium stearate, sugar and talc it doesn’t have any gluten, paraben, sulfiteor tartrazine therefore 100% natural and a miracle worker watch the weight drop and energy levels rise.

          • What do you mean that in Canada it is just called Thyroid. Is that what I ask the doctor for just Thyroid. No Synthroid or the other levo however you spell it.

    • I’ve had my thyroid ablated since 2000. And I too am on the Levothyroxine roller coaster. So I feel for you. Today I’m actually in bed and am unable to get up!

      • Get off simple carbs and glutin
        Omega fats like oil from coconut
        Bone broth
        Do milk alternatives instead ( coconut )
        Protein every 4 hrs too
        Probiotics every day milk free ones
        Low carbs does great on me
        Use endo and immune oils too

  35. i am 50, with Hashimotos, lots of surgeries and parts take out of my body. Not thyroid tho. I have tried every thyroid med combo and adrenal supplements. Everything makes me crazy. So, in that past 2 years I have lived on Npthyroid at a very low dose. I’m exhausted everyday, especially in the mornings and after meals.
    I have seen many, many specialist in the past years. So, I just tried a new endo and she was sharp. She just put me on Tirosant and generic t3. I feel crazy as ever but something good is trying to happen. But, I’m itching all over and I have reduced my meds. I just started them last Sat 4/9. I was praying for good results. But my itchiness is from within and I feel like I want to jump out of my skin.
    Has anyone experienced this from an increase in meds?
    Thank you.

    • I too had severe itching were I wanted to peel my skin off!! My Doctor prescribed me a wonderful itching medication called HYDROXZINE 25MG take it when your only at home. Wow this medication is awesome!!! Stops the itching within 10 to 15 minutes and then relaxes you where you can fall asleep like a baby without itching like a cat & dog with Fleas!!!

    • Hi i only have itching with my meds are not working you should yr doc know .my thyroid was removed 13 yrs get blood work done u should never have to suffer the itching

    • Well, this may not be applicable, but may lead to some insight, the last 6 to 8 weeks of
      both my pregnancit’s I itched from the inside from head to toe, it was awful! They said the baby was pushing on my liver and causing it to misbehave in some way, maybe check your liver, hope this might help.

  36. Great points but, as many others asked: other than eating healthier, then what DO we do about inflammation? I tried searching “how to reduce inflammation” in your website, but nothing specific came back. I’d love to hear your main points to reduce inflammation!

      • I just read that if you drink 10 ounces of water with the juice of 1 lemon and 1/2 tsp. Salt each morning…that this helps reduce inflammation. I also read that jumping on a rebounder helps to flush out lymph. I am giving both a try!

  37. I have a question. Does anyone else have completely debilitating exhaustion? I am always so tired that if I do finally fall asleep I can sleep for about 22 hours at a time. I also have another issue with what I think is crashing syndrome. Everytime I eat something I will immediately get a drunk like feeling and passed out. I will sleep for anywhere from 4 to 6 hours and then wake up only to go back to sleep. Is this just me? I am not even going to ask about the pain because I’ve already read enough of your other comments. It seems we all suffer together.

    • Hi Teri…before I was diagnosed with Hashimotos, I had severe fatigue where I couldn’t even get dressed. No amount of sleep helped. I also had the same reaction after eating. My reg. Doc suggested eating several (6) smaller meals a day.
      DuRing this time, my blood pressure would also drop..usually within 45 minutes of eating. Doc did not state what she thought it was. I suspect either low blood sugar or post prawn dial hypotension. The second is where your body draws a supply of blood towards your digestion; thusly, causing the feeling of light headed nests and fatigue. An endo finally diagnosed me with Hashimotos. My own research also informed me that I was most likely low in vit D and B12. Blood test confirmed both. Since Hashimotos is due to an autoimmune issue, I wondered how the thryoid can can fixed if the underlying health concern isn’t addressed. I started taking D3 daily. And due to acid reflux, I started taking 12 liquid sublingual. If you take it, the best form is methylcobalamin which is natural…NOT cyano cobalamin which is synthetic. Still wasn’t feeling a whole lot better. I remembered that a chiro told me several years ago that I had adrenal weakness. Further research showed me that if one suffers from thyroid, most likely their adrenals were already having a problem. I take Drenamin.. And slowly have started to feel better. I am sorry this is so long, but I know how awful it is to feel sick and tired every single day. Don’t give up. BTW, prayer and meditation helped me tremendously!

      • Hi. My symptoms are the same. I am 26 and my body been super swollen feeling. I’ve been taking snythroid I’m in the process of trying to switch to nature thyroid or armour throiyd. Last week I went to doctor for disk issues in my back and doctor told me my blood pressure was low. 73/58. I ate oatmeal and brown sugar before eating. . you sound a lot like me from reading this.

    • To Teri…corrections on my post to you. The condition is called post prandial hypotension. And the other correction is B12 liquid. Wanted to be clear.

    • I am always fatigued.wake up feeling tired n sore, no energy but i push thru it.as the day progresses i get more n more tired n have almost no energy (or want) to do anything.usually 1-2pm is the worst.yet my bloodtests are always saying my levels are fine.i k ow theres something more so im going to follow up but its definately a constant lesson in how ur thyroid affects ur life.

    • I also have hoshimotos thyroid ism and the med is not working any more. I have zero energy and am always sleepy. I feel that I have no quality if life which has caused grave depression. Some days… Well most days actually I feel like I’m just taking up space and shouldn’t even exist 🙁 I was never this way before and I hate it.

      • Maybe you should have your adrenals looked at. I read that by the time one’s thyroid is malfunctioning, the adrenals already have. I take Drenamin for adrenal support and it seems to really make a difference. You might also try acupuncture. It, too, is helping me. If you haven’t had blood work recently, you should get your magnesium, post assign, B12 and D levels checked. Hoping you feel better soon!

        • I have taken Armour for 20years highly suggested from my homeopath doctor and made a world of difference
          Acupuncture is my other suggestion because thyroid deals with our hormones and they need balancing and acupuncture helps with balance.
          Lastly yoga is a form of exercise that relaxes ,strengthens and does not over tax your body.
          Hope this helps someone it a daily challenge

    • I have been on Armour now for roughly 7 years. When I was first diagnosed with Hypo they put me on Synthroid and not a thing changed. The exhaustion was there, the brain fog, memory loss, constipation. Then I found Armour and told my Dr I wanted to try. Within 4 months I had lost a good 15 lbs and was feeling like a more so normal person and a lot of the symptoms lifted. 1 year ago I was doing research for optimal health for those that suffer with Hypo and I found that a raw/vegan diet is the key. You want to heal your gut along with decreasing inflammation and this is the best way to do it. I just had blood work after 8 months of being on a vegan diet and to my surprise, I was found to be over medicated . I was having some symptoms of Hyper like sweats out of nowhere, racing heart and palpitations, mood swings and etc. I had been on the same 120mg of Armour for over 6 years and was doing well with it. Point is you have to heal the body from inside out with the cleanest diet that is intended for humans to begin with. Heal the gut and you decrease all kinds of inflammation which leads to better absorption of all nutrients.
      Hope this help! Hang in there because there is a solution and it’s as easy as changing your diet completely. I have never felt better!

  38. Hi. Wow. I have been reading through some of these. Comments on here as I have recently been dismissed by my endocrinologist. I have hashamotos disease. He doesn’t know what to do for me. I have been on levothyroxine for years with really very little problems with the exception of the beginning.
    In the beginning I could not take several brand because they caused heart palpatations. Now after fifteen years I have found myself back in the ever frustrated cycle of fatigue without the medication and heart palpatations with it. Also my endocrongist has no idea what to do for me.
    So my reason for posting this was to share my experience in hope that it might help some one else.
    I started using an Acupuncturist. It has been life changeing. No more thyroid meds that make my heart race. And I feel like my body is healing. Some thing I never even realized that were symptoms. I am still fairly new to the acupuncture/herbal view so I do not know what my outcome will be withr the Hashamotos in the long term. But for where I started I feel awesome. Would highly recommend that road to everyone here as it has been my experience that the Drs of the modern medicine do not know how or really want to help some one who has problems taking the convential medication

  39. So everything you just explained is what I’m going thru. I’m on armor , I’ve been sick for 3 years. Lots of inflammation. I now have many auto immune disease. My question is how do we get to the root of our problem?

  40. hello everyone……I was wondering if anyone had any advice for me regarding side effects of WP thyroid.
    I HAD been a dose of Synthroid for 3 years (125mcg) and my TSH was 0.19. I became very ill after being on it for 3 years. Hair falling out, panic attacks, chest/heart pain, joint pain, achilles tendonosis, extreme back pain, PVCs, scintillating scotomas and migraines among others. I complained to my doctor and she said my TSH levels were fine and it wasn’t the medication causing the problems.
    I am 48 years old and in perimenopause. I have estrogen dominance and have been taking 100 mg oral natural progesterone every day at bedtime for the last 30 days. I have low cortisol in the late afternoon and it starts to rise at night (based on adrenal function saliva test).
    I was very sick on the Synthroid and stopped taking it. I finally found another doctor, after two months of NO medication at all) who ran the adrenal function saliva test and full thyroid panel and sex hormones. She found me to be low in progesterone so put me on natural progesterone. She decided, based on my test results to start me on 1 1/4 grain of WP thyroid (because I had stopped taking the Synthroid cold turkey for 2 months, and by the time I found my new doctor my TSH level had shot up to 95).
    I took the WP thyroid for 7 days with no problem and was feeling optimistic. I felt great. On the 8-10th days I began experiencing very bad anxiety about 6-8 hours after taking the WP. On Easter Sunday I had such extreme anxiety about 4 hours after I took the medication that I was unable to leave my house to celebrate the holiday with my family. It was debilitating.
    My doctor took me off the medication for two days (Monday and Tuesday) and then had me start on just half a WP thyroid pill once per day. Today (Wednesday) was the first day I took half a pill. I took it around 5:30 am with water and went back to bed. I got up at 7:00 and I had a great morning. No coffee. I felt almost normal. No panic, anxiety, racing heart or palpitations. Then at about 11:45, I was sitting at my desk working (nothing stressful at all) and I was hit with a wave of anxiety and panic and racing heart that was so bad I thought I was going to drop dead right there at my desk. I started having heart pains like I was being jabbed in the heart with a needle. I was trembling inside and felt nauseated.
    I took a xanax and that stopped it, but I was so scared that I was afraid to even leave my office to go have lunch. I called the doctor immediately. Waiting for a call back.
    What is happening to me? I was so excited to get on the NDT and now I am becoming afraid to take it.
    Is this normal when you first start taking WP thyroid? Anyone have any ideas or have had similar experiences?
    Oh..my vitamin D levels were low so I have been taking 10,000 iu per day for 30 days, and most recent results were 33 and rising. She never mentioned low iron or ferritin, so I am going to assume they were okay. I do B-12 shots once per month, so those levels were fine.
    I just want to know if what I am experiencing is normal and should I stick it out and it will get better? I hate taking the xanax, but it’s the only thing that stops the massive anxiety. I’m afraid my heart is being damaged from all these attacks of heart pain and anxiety. Thanks for reading.

    • Hi Hun your story sounds so similar to mine, I am no closer to finding a solution but I do believe that we somehow have become to t4, and to get better the only way is to find out what is unbalanced in our bodies! I’ve just recome off thyroxine as I have been bed bound for 2 months! Once the t4 has left my body I am going to try very slowly adding t3? Once I have addressed the adrenal issues

      • I have the same problems…as yous
        It started in June last year ,I was diagnosed with takatsubo cardiomyopathy. Then they found I had hyperthyroidism, so I had radioidine treatment. ..then I went hypothyroid. So they increased my levels of thyroid meds then I went the other way …feel sick as I have graves diease autoimmune. I can’t get well .any advice would be appreciated. ..Maree ?

        • I had same treatment about 20 years ago. I am 51 now. I had my thyroid removed via radioactive iodine as well. I was on Synthroid 150 mmg for a long time in fact years and it was fine. I had tests done every 6 months and levels were normal. about 5 years ago that changed. Maybe Perimenopause changed it but I become slightly hypo so they decided to give me T3 and lower the T4 to 100mmg. I was taking that 5mmg in the morning and 5 at night but quickly became hyper. They reduced it to once a day and that was fine for a few years then I became hyper again. The Dr. took me off the T3 and left me on the T4 100mmg; I became hypo. so they gave me back the T3, shortly after I became hyper. This has been one big roller coaster ride for sure. I’ve had the Dr. want to do a clean slate over and over with same result. I went to an expert Dr. who has now taken me off the T3 and now I am on T4 only but back to 150mg. I am waiting to see the results as I am starting to feel a bit tired. Not sure if its the change in meds or because I am exercising more to prevent the horrid weight gain of no T3. Ughhhhh!!!!! Why can’t someone figure this all out, there is so many of us out here.

    • I’m on armour and levothyroxine. Have you tried the combo? I get all of your symptoms (including anxiety and heart palpitations) when I’m not on enough meds!! Also, cut out gluten and dairy to reduce inflammation. ?

    • I think that the adrenals have a lot to do with it as well. I take Armour Thyroid and do not have the same issues as you do with the anxiety thank goodness! But, I have heard since I accidentally took an extra dose last Sunday afternoon after a nap. I did not sleep very well at night and have issues with insomnia so I laid down and slept for a whole 4 hours and thought that I had slept all night and into the morning so I took my medication again. I called my Pharmacy and my pharmacist told me to call Poison Control. They gave me some enlightening information. They said that it takes weeks for the medications to build up in your bloodstream so just going off of it for a couple of days and then going back on half of a tablet is not going to do anything basically it will take up to another week for me to see if I’m going to have palpitations and severe anxiety from my mistake. Make sure that you actually ask your doctor to check your iron and ferritin levels. If you are in the United States it is now legal for you to go to many of the testing centers that are free standing and Terros Laboratories are extremely inexpensive and are located inside a lot of Walgreens across the country depending on what state you are located in. I would Google which low-cost Laboratories are in your area. I am in Arizona. It amazes me that now out of pocket if I just want to run and CBC with differential or check my own level my entire thyroid panel then I can do so a CBC with differential only cost around $3.40. Quite different in the hundred plus dollars that they feel for it on my insurance with other Laboratories like Sonora Quest and others. I would suggest looking into what labs are in your area and running whatever test that you think you might need for your own information to supply to your doctor rather than convincing them which can sometimes be rather difficult, as I am sure you know to get them to write a order for. This is a new law that was only recently passed so a lot of people do not know about it. Do not fall for the tricks on the internet about the labs because they are very expensive. Good luck. Make sure your vitamin D levels are more than Optimum. Mine was down to a 9 and I’m out at 3:10 thousand milligram tablets a day. You want it to be between 80 and 90. You do not want to go over a hundred and twenty. I would also run a iron and ferritin check as well since that is not typically a part of regular blood work. They are dirt cheap. My doctor ran those at my request and he both of our surprise I was critically low on both of them. We are still trying to get them to drive and I just had a new set of labs drawn it yesterday. It is also affected all of my other hormones as well. I have numerous autoimmune disorders on top of this and would love to try to find out more information. I wish you the best of luck and will keep you in my thoughts.

      • Hi Terri! I was reading your post and I saw that you are in AZ. I live in Phoenix. I was curious who your doctor is. I was on 25mcg of t-3 and low dose of synthesis. My levels TSH were at .4, I was also taking selenium, iodine, vitamin b and adaptogen. I constantly have palpatations and I just wasn’t feeling well and was starting to get depressed. I decided to try Derosa Medical the NP had me decrease my t-3 to 15mcg for 5 weeks to see what happened and if it helped the heart palpitations. What it did do was throw me into major depression, I gain 10 lbs, my monthly cycle became irregular going from a predictable 28 day to 40 days. It’s been 14 days since the First day of last period and I just started again yesterday. My TSH went from .4 to 4.7… I really don’t know what to do. I Hashimotos, endometriosis and PCOS.

      • Thank you for the info. I am in Texas and do not have insurance. I am going to look into the labs in Walgreen’s. My dr. Lowered my levothyrlxine dose from .125 to .112mcg. I am also perimenopausal and worried my iron is low too.

  41. Oh my gosh so many have what I have! I’ve had my thyroid removed and drank the radioactive poison. My levothroxin has been increased twice and I still am not down where I’m supposed to be-2.14 now. I have horrible bone or joint pain moves every day from face to hips to knees…everywhere. Horrible zits or painful boils on my head and face that I never had before. Fingers hurt usually the worst and I have no energy, barely holding onto my job. I have to take pain melds and hot bath for an hour before I go to work every day. Can’t sleep, sweating,weight gain, stomach pain, face blowed up, hair loss, brittle nails, bad skin, eyes hurt, back hurts. I was active and in decent shape now fat zitty miserable couch potato with no answers.

    • I would cut out gluten and all grains including oatmeal also sugar if you haven’t already. do an elimination diet for 3weeks. then add one food at a time for 3-4 days to see if you have a reaction to that food. then add another in the same way. sounds like more than thyroid issue.

  42. Hi Chris,

    I could certainly use some guidance. I have been taking Tirosint 150 once a day and taking cytomel 5 twice a day. My levels have been increasing slightly, then stabilized, now it is off the chart at 17.89. My sister, who is a nurse, visited last week and notice I was retaining water in a big way. I started taking over the counter diuretics and it has relieved some of the retention. I visit my doctor this Friday to go over my results and next steps, I feel miserable and now weigh more than I did when I was pregnant with my some 30 years ago. Where do I go now? I am tired of this fluctuation with my meds and out of no where they skyrocket off the charts.

  43. Less than one month ago, my thyroid and 1 parathyroid were removed. My endocrinologist prescribed 137mcg of Levothhyroxine which caused heart palpitations so badly I went to ER three times in first week after surgery. Also 2000mg calcium. After an overnight stay with 24 hr heart monitor and echo it was determined I do not have afib. Endocrinologist agreed to drop my dosage to 100mcg. The cardiologist agreed with me when I told him I cut that in half to 50mcg. I still feel like I am on speed all the time. After years of having normal BP the other day it shot up to 156/103. Is anyone else suffering from Synthroid causing palpitations? I am going crazy so my GP gave me antianxiety med. just one fourth of the pill knocks me out. Help!

    • Sorry to hear your not feeling welk. I had a complete thyroidectomy a year ago. I also lost a parathyroid. It is still a struggle as I am not yet on the correct dose if thyroid hormone. Here are some things I’ve found helpful. Do your research. Look up to see what is the suggest dose for your sex and weight. My PCP adjusted my dose once by increasing my Levothyroxine by 25 mcg. I started with heart palpitations and hand tremors. My endocrinologist said she only changes doses by 12.5 mcg. Hope this helps.

    • I had that same problem while taking the generic synthroid like your taking the doctor now writes daw on my script. do not have those symptoms any more. They thought I might be allergic to one or more of the fillers in the geneic.

        • Dispense As Written. (Fill script the way it is written) Meaning the pharmacy cannot use generic prescriptions as they do if one is available; DAW means fill the script with EXACTLY what is written on it, no substitutions, no exceptions. (That is the way I think of it which may be more extreme, but it is the general idea…fill as written)

        • DAW means dispense as written. If you don’t want to get the generic form of synthroid, then the doctor writes it on your script so the pharmacy won’t just give your generic form.

    • I am 35 and had the first part of my thyroid removed at 18 the second when I was 26 and I am STILL having issues with unstable thyroid levels. I do have to say finally they listen to me when I was on generic synthroid and the put me ok n brand name. However I was still having issues. I was on 200mcg and still couldnt get it regulated. They then switched me to Armour thyroid and I felt better right away…..after being on it for 9months I got pregnant which i guess means my levels were working??? Love how Dr’s explain stuff.
      So during my pregnancy my levels went out of control again and they couldnt lower them. I was on 90 mg and they finally said thats the best they could do. 3 months later no one has address my levels I have to go back to work in 2 weeks and I know this fatigue and body fatigue are my levels again. It extremely frustrating.

    • I had something similar happen. I had RAI-131 to eradicate my thyroid and that made things so much worse. Was on Synthroid for 4 years and was having horrible palpitations and bad panic attacks and mood swings. I switched to Nature-throid and felt much better, but still not great. Two years later I moved, saw a new doctor and she did a slew of tests on me. Found out I have a severe form of Celiac disease by a genetic test and the inflammation markers. It helped so much to calm some of the inflammation down, my weight just fell off when I stopped eating the things that caused me pain. I didn’t realize it was all lymph node inflammation and not actual fat. It’s still a struggle to get my body under control, but I’m working it out and will hopefully feel good soon!

    • My experiences with Synthroid are not all that good either (I had a complete thyroidectomy about 6 years ago). Generally, high doses of Synthroid will cause you all kinds of problems including palpitations, joint pain, stomach distress and elevated cholesterol, just to name a few. (137mg is a pretty high dose in my opinion.) After years of trying various dosages, my previous endo switched me to Armour and for the first time ever, I felt good and my numbers were good. Then the manufacturer of Armour changed and I sure noticed the difference. I felt overdosed and my tests showed that I was. Unfortunately, that endo left his practice while my dosage was being adjusted and I had to find a new doctor. The new doctor put me back on Synthroid (because she believes Armour is bad for you) despite knowing that my history showed I did not do well on Synthroid (she blamed me saying I was taking it wrong, not getting enough Vitamin D or calcium, etc. – not true!) So, I’m back in Synthroid hell and during the first several weeks had severe headaches and stomach cramps. I’m not sleeping, my energy level has dropped and I basically feel ill. I’m not convinced that most endos know or care how to adequately treat their thyroid patients, but they LOVE Synthroid because the people who make Synthroid throw a lot of money their way. If you can find a doctor who is open minded enough to let you try Armour, do that, but those doctors are RARE. Good luck.

      • My PCP wrote it for me( after she found out my endo had written it) and now my OBGYN does. You need to talk to you other doctors! This medication is still available and I know several people on it that couldnt tolerate the synthyoid, generic or brand name.
        I agree that no one really seems to care about treating thyroid issues correctly. I have been dealing with this 18yrs old and no one seems to know what they are talking about. I have done so much research I feel i could treat better than some of these doctors. Please find a new doctor do not settle. And demand someone write the medication your body feels better on.

    • I had troubles with heart palpitations too while on synthroid. Something that i found helped was to cut all caffeinated drinks: including coffee, tea and especially pop that contained caffeine.

      • I have done all of this!! And every doctor changes my dose everyone I see!! I feel like crap and can barely hold my head up!! I have had open heart surgery and just thought it was my heart meds. But the Cardio doctor changed the dose of the Levo! Said I was getting too much! When I was one the Higher dose, I could run circles!! What gives?

    • My Dr. told me Armour was sold to pharmaceutical (?)company , so it is no longer natural…..try WP Thyroid or other natural
      brands….hope this helps 🙂

      • I still take the Armour Thyroid nothing has changed.

        I do wanna say i have also been taking 600mg of ibuprofen 2x a day and I am starting to feel a little better since starting this. My levels are good per my doctor even though my hair is falling out, my skin is super dry with tons of lotion all day long and drinking a gallon + of water. So i called because this is “normal” for me. He sent me for an update glucose test and testosterone test. He told me hey no one has very checked your testosterone before how knows this could be the source of all your issues….what??
        Has anyone else been told this?

    • Hi, … on this med and a very small 1/4 size dosage i feel like im on speed. 1st. day i took only 1/2 the pill, i did not sleep for hours and hours. … im going to speak with my Dr. about changing it anyway, im not sure it is working. after reading this, it seems it’s the wrong med for me anyway, … i have Porphyria (AIP). more research for me. … sorry to hear about your issues, it’s exactly why i did not take the full prescribed dosages (and also the AIP) but even on a 1/4 size it’s bothering me.

      • HI Pamela,

        I too have been having this adverse reaction, along with complete inability to function, tremors and bedridden. Have you been able to get some answers yet??

        • Do you have Hashimotos? In my opinion, unless the underlying autoimmune issue is addressed, it will be impossible to feel better on just the med. my endo has me taking the 25 mcg of Unithroid at 5 am with a full glass of water. I go back to sleep and don’t eat for hours. So many things can interfere with the meds…like calcium and iron. If you are taking the med at night, you will never be able to sleep. In addition, I was deficient in D and B 12. My folate was also low. I don’t think the thyroid is ever just the thyroid. Just my opinion. Hope this helps.

        • Forgot to say that in my own “thyroid” experience, I had read that when your thyroid is sluggish, your adrenals are also. My chiro suggested Drenamin which help heal the adrenals. Once I started taking it, I could feel a surge in my energy…not 100%, but over time, I hope it returns to normal.

  44. does anyone have acne from taking Levatroxinen? My face is a mess..been to skin doctor and he has put me on creams but still not working…

    • Hey there! I am sans thyroid and I know any hormonal imbalance can do this… but a friend had this issue and a lot of the time it can be the fillers or just the adjustment period. Have you tried Tirosint at all?

  45. I also have been on levothyroxin for 6 years. Over the last year and a half i have been using a natural solution to help with it. Last oct. my dose was cut in half. Looking forward to my next blood test this fall.

  46. I had my thyroid removed 16 months ago. I see a n endocrinologist but I am not feeling better. My levels show normal but all the aches and pains in my legs and hips are driving me crazy. Not mention the leg cramps..and muscle issues now. I live in Ashland Ohio and I want to find another Dr who seems to listen to me better. Oh and don’t forget the 35lbs I gained 3 months after the surgery and diet and exercise doesn’t help at all .. Any suggestions?

  47. Hi,
    I’m 54 & last July 2015 my TSH began to climb. Was seeing my MD & Because of my symptoms they reduced my synthroid from 175 to 150.
    Shoryly after that i ended up in ER with symptons of shakibg,sweating,hallucinations,nightmares,severe tremors. I was admitted for abnormal EKG. Ran a batteryof test & said my heart test were all negative. Dr said it’s your thyroid,do not take any more meds til u see andro endro Dr.
    By the time i seen a Dt my TSH was 124, to be honest i still have not felt myself since tjis has all happened! I have concetns, yet i ferl no one is hearing me. My numbers are slowly going down, yet why? Why? Can’t i feel better yet? last week my dog was up to 175 micrograms. Yet still feel many of the symptoms, some have gotton better, yet i still feel far from where i did when this began. I live in Richmond, Michigan. Does anyone have ssuggestions?
    Thank you

    • Deb,
      All of Michigan residents were exposed to PBB (Flame retardant chemical) in the 70’s. If you or your parents were exposed to it you should go to the Emory PBB Research Registry and get the Information for Clinicians form to read and give to your doctor. PBB is stored in adipose fat tissue with a half life of 15 years. 60% of recently tested Michiganders still have elevated levels above the US population. PBB has endrocrine modifying properties and has been shown to mimic estrogen, to block androgen and interfere with thyroid function in animal models. I recently attended a conference on PBB in Alma, MI. I grew up in MI and have had thyroid and autoimmune disorders since I was 21. It is worth looking into if the time line fits you. I use a fir infrared sauna to detox, stopped eating gluten as it has the same molecular structure as your thyroid gland and can cause issues for people with thyroid disorders. I am trying everything I can to heal my gut and reduce inflammation in my body. Vitamin D, a good B-Complex (Thorne Research Stress B-Complex) Fermented Cod Liver Oil, to name a few. Selenium also. Hope this helps.

  48. is there any docs in the midwest who can help me? been having problems now for 22 years, contintually getting worse. docs can’t seem to regulate thyroid, or figure out why i am not making hormones, side effects from hormones so they took me off. super low thyroid levels now despite me taking reccomended dose from labs….i live in Indy but would travel to the right person. please help.

    • Dr. Kadambi Fort Wayne Endocrinology
      I have been dealing with Hashimotos for years!!! He totally gets it and does not treat Hashimotos and hypothoid as one in the same! He is not like the ‘by the book American doctors ‘ in other words, he looks at labs, but listens to how you feel. He does not treat everyone the same and understands that people are unique and function at various levels!

    • Bless you I was 34 when I had iodine raition on my thyroid good luck finding a doc that will listen to you I am not61 and have never found a doc that no much about the thyroid

  49. This may be a little late for those of you in Boston looking for a doctor who understands thyroid problems. Dr. Kenneth Blanchard wrote the book on the subject and he is on Beacon St. in Newton. Check him out.

  50. Advice Needed:

    Thyroid surgically removed 2012 – Still trying to regulate me…

    I have been on all the Thyroid MedsT3 & T4 (both Synthetic as well as Armour). I have tried different dosages also…. And still not regulated.

    All the symptoms of HYPO However, looking at the TSH some would think I am hyper (which I certainly am not)… Since the surgery, TSH ranges: 0.01 & 0.02…

    MY T3 & T4 vary depending on the medication & dosage I am on…. (goes to the lowest of the range to the highest).

    My question is: With the med changes that bring the T3 & T4 up & down, why are the meds NOT bringing the TSH up & down as well?

    What would cause the TSH to always be low (indicative of hyper). When I am not hyper. I can not get the TSH to budge either way not that I even want to, but maybe that is the problem, whatever is causing it to remain stuck so low.

    Any advice is appreciated –

    • You should visit hashimotos sites on facebook, as with thyroid sexy. Post your labs and people whow know will explain exactly what is happening.

      • I had total throidectomy two years ago. I was so close to death at that time. Thierry have been thousands of us make a come back through healthy eating, and life style changes. You will get better, it just takes wrapping your head around it. Good luck.

    • Sorry to jump in here, but I’m new to this site. I’m being treated by my primary Physician (internal medicine). Trying to keep this short, so… Can any body please recommend a really great doctor (Thyroid), in either Santa Monica, Westwood or Los Angeles, CA. ? Many thanks to all.

      • Dr. Isabel Puri, MD, Torrance, Ca. http://www.gelbartandassociates.com/isabel-puri/

        My primary Doctor, since replaced, sent me to cardiologist, he blamed thyroid. Doctor sent me to be evaluated by a psychiatrist before he would treat me. The psychiatrist, Dr.Puri, began to treat me for my thyroid, discovered Hashimoto’s and other autoimmune. She is a Godsend. She is open to all medications (even Canadian Erfa), and uses saliva testing as well as blood. I would have ended it all, if not for Dr. Puri. Rahil Bandukwala, endocrinologist, in Costa Mesa(?) is also good. Both of then moved north from San Diego County, where I am. I still see Dr. Puri every two months, when she travels to treat former patients in this area. A saint, she is.

    • I had a total thyroidectomy. Can’t regulate levels, low 0.04 then they drop medication they skyrocket to 10.04 then drop and they lower and lower. Prior thyroidectomy nodules grew large , tested negative to autoimmune disease and the larger they grew the more my body attacked foods. The allergic reaction was digestive not contact allergies. Started few foods (Soy, walnuts, etc…) then progressed to attack a lot of foods even strawberries and spinach. After thyroidectomy all food allergies disappeared. Doctors before and after said it couldn’t be. I think it was inflammation causing the attack and now after thyroidectomy it’s causing the absorption or use of the medication. Trying test change in diet for decreased inflammation might help? Any suggestions?

      • Sarah, I only share your issues in going fluctuating extremely in going up in my levels and then going down after medication adjustment every 3 months. This has been going on now for 3 years and my body cannot handle this any longer. I am so very frustrated and I do not understand what is going on as I have had hypothyroidism for 20 years. It’s causing me so much fatigue and other problems and once they increase it and I finally feel better then my labs come back and they say oh I’m at a .01 and I have way too much and then they decrease my synthroid and then 3 months later I too am at a level 10 and then they say oh you don’t have enough synthroid and they increase it… So frustrated.

    • Hi Shell,

      I had radioactive iodine treatment (way back in 2002), and I’ve been on thyroid replacement since then. I was interested in your post because I tend to have very similar numbers.

      I honestly don’t remember what they were before a few years ago (it was all happening in my teenage years, I wasn’t very aware or knowledgeable at the time), but for the past ~7 years I’ve had very low / undetectable TSH, alongside FT3 and FT4 in various parts of the normal ranges. Endocrinologists and some general practitioners think it means I’m over-medicated / hyper and try to reduce my dose. But like you, I still have hypo symptoms and they get worse on lower medication doses. So I pretty much only see doctors who accept the low TSH and are more concerned about FT3 and FT4.

      I’ve read (from “Tired Thyroid” I think) that any external thyroid medication will prompt the body to respond with lower TSH. I don’t know what else to think about it :-/ The most helpful approach for me has been kind of ignoring it, along with my doctors.. The ones who don’t care what my TSH is doing. I still wonder though. Would be interested to know if you find anything else out.

      Have you had antibodies checked? (Was your original condition autoimmune?) I’ve had mine checked periodically (as I was diagnosed originally with Graves’ disease), and they were somewhat elevated when I was taking dessicated thyroid. They don’t seem to be an issue for me on synthroid / cytomel combo. Just in case the antibodies play a role in TSH…

  51. thryroid medicine does not work. t3 and t4 are okay tsh is too high. medicine is just not working. I am taking synthroid. Dr. will not think outside of box and help me. I have not had a good reading in years and years. Help please

    • when you say t3 and t4 are fine what do you men , free t3 can be in range and still not be no where close to where it needs to be . ft3 should be in upper part of range , and t4 should be at least middle of range . reverse t3 needs to be in middle of range.

  52. Please help. I had my thyroid radiated back in 2012. Just starting having horrible pains in the center of my forehead every time I take the meds levothroxine and synthroid Feels like it’s going to blow off. Tried armor and it made my heart go crazy and blood pressure. I need help. Need to take meds. Tsh 75 and meds killing me. Any suggestions.

  53. I have been working on my thyroid for 7 months now. The doctor didn’t believe me at first and put me on Zoloft. Then ran additional labs. She then put me on nature throid (48.75). That was raised after my next labs and then raised again after that to 1 grain. Testosterone was introduced to me after my first labs in cream form. I wasn’t showing results and by my third labs that was switched to troches. Then, I was also put on levothroxine. I had labs down a month ago and was told the testosterone isn’t working and I can do pellets (but insurance doesn’t cover these and they are costly). I still am dealing with all of my symptoms. I have an appointment scheduled for next week with an endocrinologist/ gastroenterologist. I also started a gluten free diet this week in hopes that will help. It’s very frustrating dealing with brain fog, infertility, fatigue, pain, weight gain, mood swings ALL OF THE TIME. I’m exhausted.

    • I went through all of what you are saying and it is very difficult to go through the mental fog and feeling low, tiredness etc.. The key thing is to identify that right dosage of thyroid medication for you. It took me about a year and half to identify mine after going through different tests and finally finding the right endocrinologist. Once you find your dose, the next key thing is to stick to the routine even when you feel all better.. But don’t give up. This phase will pass soon… All the best.

    • Crystal,
      I was diagnosed with Hypothyroidism 20 years ago-all this time being treated with synthetic drugs for it (synthroid and liothyronine) I have not felt “normal” in that whole 20 years. I’m a nurse and let me tell you how hard it was getting through nursing school with the brain fog a was experiencing. I just recently insisted my Dr change my medication to Armour Thyroid. The brain fog is gone! I still don’t have the energy I need so I started looking for more info on the Internet and came across this book, Thyroid Mind Power by Dr Rishard Shames. Blew my mind! Anyone dealing with this should read this book ASAP!
      I actually live pretty close to where his practice is so I made an appointment with him and saw him Dec 22nd.
      Do yourself a favor and get this book!
      Be well,
      Judy

      • Judy, what are your numbers? I have an older book by Shames that is probably now outdated. I’ve also been Hypo for over 20 years, but have always been on Armour and most recently Naturethroid. Am ready to stop all meds entirely. Interested in what Shames did and do you have positive results?

      • Judy,
        I too , have the same story as you. I was wondering how long it took you to feel better in the natural thyroid, I am also a nurse and the brain fog is so difficult to manage. I just asked to switch to the natural thyroid. My tsh is 19

        • Wow…cannot believe the frustrations we all have with hypothyroid. My symptoms started with dizziness, then fatigue, brain fog, low bp, nausea. No one would listen to “me”. One doc thought I should have dizzy tests done. I have done so much research and found many answers on my own. My own doc totally dismissed my indicative numbers of my TSH, t4, antiboidies etc. 3 times she miss it. I finally Tolbert her I was going to see an endo. I have Hashimotos…no surprise. My symptoms has escalated prior to meds with numbness, tingling and coldness in extremeties. Endo doc immediately said I needed to go on meds. Started taking Tirosint, but too expensive. Switched to Unithroid. He believe in a me brand because of consistency of formula…makes sense. In addition, I believe my autoimmune is due to my digestion. I above had flux for years. I do not absorb B12 and was deficient. Also D levels were low. I now take methlcobolabin liquid or chewable B12 and try to sit in the sun daily for 15 minutes without any d sunblock. My dose of Unithroid is 25 mcg. Endo said to take around 5 in the morning…on an empty stomach with full glass of water. I go back to sleep and don’t eat until around 9 am. He said NOT to eat any foods that contain calcium within several hours of taking the med as it an interfere with it working properly. In addition, and prior to meds, I was eating so healthy…or so I thought. Things like broccoli, kale, brussel sprouts, cabbage when eaten raw aggravate the condition. These veggies are called goitrogenic and should only be eaten cooked. Peanuts are included with these. I have cut out a a lot of foods like white flour, processed foods and anything that isn’t natural. I eat 5 or 6 smaller meals a day…have lost 15 lbs. and feel much better. I did have an issue with the increase of my med…went to 37.5 which caused my upper and lower eyelids to swell, itch and peel, but went back to the 25 mcg and feel better already. My only lingering symptom is occasional nausea. Still looking how to curb that and will report if I find an answer. Do not give up. If anyone can find and integrative or functional med doc, they are your best bets. If you have Hashimotos and do not find out and address the underlying autoimmune part of your health, I don’t think you will ever feel completely well. Good luck to all. Thanks for sharing your stories.

  54. Hi, I am 52 years old, a personal trainer, and recently diagnosed with Hashimoto’s with extreme adrenal fatigue. I’ve been placed on Armour and several supplements including Ashwaganda to help heal the adrenals. The symptoms leading up to this diagnosis were alarming to say the least. Like many of you, I have been health conscious for all of my adult life. Weight lifting, healthy eating, training clients….its my job! imagine my panic when not only did I start developing joint pain and a large cyst behind my knee, but the weight kept climbing no matter what I did! After reducing my caloric intake to less than 800 cal per day, and getting zero results, I decided I needed to find someone who knew more than my PCP regarding my thyroid. I found a women’s hormone center who ran the tests to make the eventual diagnosis I mentioned at the beginning. I’ve been told that until my adrenals heal, adding more thyroid medication will be pointless. How long for the adrenals to heal? Hard to say, but because of the extreme fatigue, it may take as long as two years. *sigh. I am determined to get my health back, so I will patiently persevere.

    • I was diagnosed with hypothyroidism shortly after my first child. After eating well, nursing and being active I put five more lbs on the weight I left the hospital post delivery 8 mos later.
      It’s now been nearly 10 yrs and I can’t get my weight down. I’ve exercised hard core 3-5 times a week and I work full time. Nothing. Energy isn’t bad, brain fog comes and goes .
      I’m thinking your comment on adrenal fatigue might be a clue as I have heard of this before. Not sure how to get tested though.
      I am on synthroid 150mg and I’m only 35 yrs old. Rather high dose.
      I want to get to a healthy weight . My feet hurt so much I just can’t get this weight off. Need to lose atleast 40-50 lbs on my petite frame of 5’2, 180-190lbs

      • I am in the same boat. I weigh the same as you but am 2″ shorter. I keep thinking that i am just being lazy and tired but reading everyone’s stories makes me realize it’s still my thyroid although it’s “regulated” dry skin and brain fog and oh so tired and fat…

  55. Hello! I am new to thyroid medication. I have been fatigued, depressed at times, zero motivation, mood swings, insomnia, and I have been about 15 lbs overweight. My TSH level is.93
    Free T4 1.10 and Free T3 2.8 with a vitamin D levels of 26.

    My dr prescribed me 48.75m of nature thyroid. I have been on it for 5 days and have gained 3 lbs. PLEASE HELP!

    • Brandi, Hi! I’m interested in hearing from you because I also recently began taking thyroid med. and today, desperately stumbled on this blog & noticed your post was recent. I know all too well your symptoms (for sure!) and will be happy to share with you my story, my results and experience so far, as well as current dosage (of Levothyroxin), age, weight, any changes, etc. Also…FYI, I’ve had 2 rounds of bloodwork done so far, the first was more an overall panel, the 2nd (based on the TSH and then being started on meds, was strictly a more “comprehensive” thyroid panel. (I seem for the most part, to be pretty healthy otherwise) Anyway, I’d be curious to hear about your situation, how long you’ve been taking the medication, and how you feel. I’m not sure I quite understood your TSH .93?? Which would actually be “low-end” unless that was a “.” (period/puctuation mark) followed by 93??? Did any of your bloodwork ever test for antibodies or TPO? Just wondering. Anyway, if you’d like, please mail me back. Ive never blogged or replied to anyone online before but seeing as you say you just started taking medication, maybe we might have some common info to exchange or can both relate to. What I recommend for now though, is quit weighing yourself, and dont freak out about numbers! The scale can be water weight, and all kinds of lies! I went up and down 7 pounds in less than a week, and back up. For now, I’d go off how your clothes fit, how you feel (ya know?) and maybe weigh yourself only once a week first thing in the AM. Otherwise you might drive yourself nuts for now. If I hear from you we can maybe discuss diet and supplements I’m starting too. Not like dieting for weight loss but just eating right and some things that are probably good advice for anyone. I used to be a professional athelete, so getting fat, feeling tired, not able to sleep well are things that are very foreign to me and yes, very depressing!!! And no one understanding me (like my idiot boyfriend) who often chalks this up to my just “getting older” or being “lazy” is much help either. LOL. Anyway, feel free to reach out. Best regards, J.

  56. Hi, I have Hashimoto and I am on a Combined T4/T3 Therapy (75/10) Since I moved from just T4 to T4/T3 I am facing a strong cystic acne that has covered my whole neck and half of my face. Does anybody had these side effects when switching to combined therapy? Thank you so much.

    • I can’t say my acne is severe, but I’ve never had any problems with breakouts before. Now I have cystic pimples on the lower half of my face and on my scalp. I am taking nature throid and levothroxine.

    • I have hashimoto too, and I sometimes get pimples and more on my neck but this was way before my meds. (levoth). I would think that the hormones are still trying to find its way. they tell me it can take two years by the time it works, I have another year to go.

  57. I have been taking 200 mcg of thyroid (various brands) for over 50 years. Then my GP said that the blood test showed that my thyroid was high. I told her that it didn’t matter because I had been taking it for so long and I felt fine. Of course her answer was to lower it. I began having sleep disorders. She suggested I have a sleep apnea test. I found another GP.
    I went to an endocrinologist and he looked at the blood test and suggested I lower my thyroid even more. Even harder to sleep.
    Two months ago, I went to this thyroid and diabetes disorder endo. I said I was going to gradually go back up to 200 mcg because I knew I’d feel better. When I said that, he told me that he couldn’t write me a prescription for that much because no one should be taking that amount. I waited for him to say, ‘Before talking about raising or lowering, let’s see what’s going on?’ But this thyroid specialist never did, just told me that the amount I was taking could lead to a heart attack.
    So for almost two years every doctor I’ve seen has tried to lower my thyroid. I’ve gone back up to 200 mcg and I have no sleep apnea and gone is the lethargy and fuzzy thinking that less medication caused. But I have heart flutters that I never would have had if the doctors hadn’t tampered with my thyroid levels!
    I don’t doubt that there is something wrong. But I shouldn’t have to endanger my life by taking so much thyroid. Does anyone have the answer?
    Oh, by the way, I have epilepsy. Would this have anything to do with all this?

    • i was on .150 mcg of synthroid doc. lowered it to .137 then to
      .125 then i got hit with sever hypo thyroid symptoms
      (lowered it do to me losing weight)
      then he upped it to .137 then tested me Tsh was .5
      said blood test was good, still had sever hypo symptoms so
      he upped it to .150 then to .176 now I’m starting to feel better but still have hypo thyroid symptoms. going from .150 to .176 did nothing. with every bump i felt better up to .150 then nothing?
      so now at .176 knowing going to .200 will do nothing, blood test for full thyroid panel is set for Jan 1. my bp is 110/60 hr 56 temp. 97 cold hand cold feet cold intolerant, weight loss from 165 to 151 in 6 months. i have no hyper thyroid symptoms except weight loss.

    • I agree, I am going crazy with my Endo Dr. I was on levothyroxine 137 an doing great then they gave me a blood test my TSH L .350 to high lower med to .88 I thought I was dying so tired , fuzzy brain, extreme cold. then I talked him into a higher dose 100 but that made my TSH L to .046 , ready to go in to see him again and I am so afraid he will lower it again thinking I will have a stroke or heart attack, but even at 100 med I am still extreme cold , tired, brain fog, depression and cant go to sleep at night but during the day I fall asleep and way to tired to get up in the morning and feel good. What is the problem? how to fix it or who to go to
      If they would just give me back my med at 137 I would feel fine and ready to do everything I use to
      are there other tests on other glands that affect this, if you know something please write and I will do the same

      • Pamela, i too am going crazy, but also because i have a hard time understanding what some people are trying to explain with their meds, dosage, hi-lo etc. i think alot of people desribe their med dosage as .xyz (or “point” xyz) rathar than just saying 50mcg or 100mcg levothyroxin or ??? I also believe people are confusing terminology (or perhaps confusing other people) when they say “up or down”. heres what i can tell you, its gonna be no sure guarentee that even the right ammount of thyroid replacement or “perfect mix” is gonna relieve all of your “symptoms”, which are common and suck, and i suffer the same. if you have lost weight thats GREAT!!! taking meds, be it synthetic, Armour or whatever mix is never going to be the same (IMHO) as your thyroid doing its job, or not having auto immune related (Hasimoto’s hypothyroid) or whatever the reasons. These posts I find can often be over informative yet very vague. For example, an otherwise healthy person (like myself) must consider age, hormones, diet and unfortunately exercise, into the equation. I have no clue in reading these, if some of you are 25 or 45?? I never gained or lost more than 5 or 10 pound my entire life from the time I was 16 years old! I was thin, even a professional athlete who never excercised outside of my job in my 20’s. Well suddenly (now in my 40’s) gained 20lbs in a year, i’m tired, cold, insomnia, wake up every 45min-1hr at night, feel like crap, etc. Started levothyroxin and my follow up thyroid panel showed a slight decrease in TSH so far but who the heck knows. I’m planning to continue to follow as best as can a “paleo diet” which is not to hard for me because I enjoy eating “real food”. I’m super lazy though in the sense that after being blessed my entire life by never having to exercise and being a naturally athletic build, definitly does not make doing any type of choosing to exercise now come real easy. But I will say that I am a strong beliver in avoiding sugar, processed foods, fast food and crap that is sold in a box (or considered a type of “helper” lol.) This is a tougher “withdrawel” for some more than others I suppose but I’d be happy to offer you some simple advice on supplements and things i was doing (a simple am smoothie drink thing) well before i was diagnosed that noticably made me never crave sugar or junk and also gave me energy in the am (im not a big coffee drinker to begin with). Anyway, I too am curious to see if anyone replies back to me off this, you can get pretty lost reading all these various blogs and the things you can google up on thyroid. I’ll be quite clear and openly let anyone who’s interested know what I’m doing or offer any advice I might have as to any results, meds bloodwork and progress. I’d say for now, do NOT weigh yourself relentlessly, focus on diet, how you feel, how you feel in your clothes and knowing your body. Weigh yourself once a week max, in the AM and screw what the scale says! It could be water weight, if you are exercising, you might be losing inches and actually putting on a bit of muscle, which you NEED to burn fat! Don’t worry! You are not the only one who is less than thrilled about all this. I’m going to begin taking some supplements, sticking to a (whole) food (paleo) diet as much as possible (and affordable), low in carbs and sugar, etc. If something is working for me I’m happy to share and hope others will do the same. I must disclose that being an Italian girl, I do drink and LOVE my wine, & thats gonna be tough to cut those empty calories but “baby steps” as they say. I also dont believe in becoming some big “depresso” either on some restricted diet that you’re gonna quit after 2 weeks. BALANCE & MODERATION wins the battle. ie: in exchange for cake, i’ll have a glass of wine and just accept the fact that i should exercise and im not 20. I’ve had a pretty good run up till my 40’s and I’m ok with that, and the stupid meds are no miracle cure at any age so anything we can do outside of that can’t hurt, for health and longevity in general, right?? I’m not giving up just yet, I’m still determined to have a great ass in a bikini at 50!! Take it day to day and at the very least, we should try to make some support friends out here because I’m finding there is a definite lack of empathy from some (since we are not actually “sick”) but just getting “fatter or older or lazy” and it’s “part of life” SCREW THAT!!!

        • Hello there, I wonder if you have had any fluctuations of facial fat/collagen since starting meds or herbal supps. I am not a fanatic but I do care about how I look. I was looking pretty good until I started going to doctors! I’ve had some kind of fatigue going on along with ear troubles. Had a bunch of tests done that said nothing wrong, but recently had them again and it said I have inflammation, low Vit D, among others. I was negative for Hashimoto tests, but told I have it, she gave me a Thyroflex test. I think that is wrong. I have tried NP Thyroid 60 mg & various adrenal supps, but the FB Thyroid Adrenal women said that if you do not treat these things in a certain way it can be counter productive. To make matters worse, my face since taking all of this is getting saggy! My eyes get puffy over the lids & saggy underneath & I have dark deep circles I never had before! I am heartsick! To not feel your best then look like this makes everything worse! I do not know if I have Hashimoto’s and do not know if I want to continue on this journey based on what other women are going through! I you would like to personal email with me to help rather than have everything out here for the world to see, please let me know. I don’t get cold, I get warm. I have my eyebrows but my lashes are thinning but I do use eye drops for dry eyes, so that could be it. I get fatigued but can keep going, and my throat is sore & sometimes tight. I have no medical insurance & no dental insurance. Since starting all of these supplements I now get dizzy in the morning. I sleep well, except when I took the NP Thyroid. I don’t know if I just leave it if that will be bad or what. I am so mad about this, I wish I had just left it alone.

    • If u find out please let me know. I’m on 224 mcg of synthroid currently. It was reduced recently but i felt better when i was taking 300 mcg

      • If u find out please let me know. I’m on 224 mcg of synthroid currently. It was reduced recently but i felt better when i was taking 300 mcg. Also i gained 60 pounds in 3 months when i first started taking synthroid so i threw it away and my thyroid is now soooo big that my endocrinologist has used photos of it in his teachings at the local university. Im still lathargic, heart beat is all over the place at night, and wait will not go down no matter what i do.

    • Lori please go have a sleep study! I suffered for 5 years low thyroid and tried all different meds nothing worked even 4 grains erfa thyroid. Exhausted and gained 75 lbs…finally borrowed a fitbit and wore it to bed for a week. It showed I was waking up hundreds of times a night. Yet i didnt remember waking…Told my GP and she ordered a sleep test. Voila! Diagnosis was sleep apnea. 4 months later using cpap I became hyper thyroid so reduced ndt. After 2 more months hyper still, stopped meds and I’m no longer sick..cpap fixed everything, now I have energy again.

  58. I was diagnosed with hypo thyroid two years ago, was prescribed levothyroxine, I got better better, then crashed. My Dr. tried T3 supplementation which made me more irritable and edgy so Dr. terminated. The Dr. then switched me to Armour because blood tests show low free T3 and I was symptomatic. The Armour makes me irritable, sleep more disprupted, I am gaining weight, can’t excercise because it wipes me out. I have had extensive dental work, multiple root canals, followed by multiple apicoectomies,extractions and now multiple implants. I also have blood glucose pre and post meal below 110 but my fasting glucose and premeal glucose is consistently higher than post meal both 1 hour and 2 hour. I am healthy on paper other than thyroid tests. I was previously a life long jogger, weight lifter, diet conscience and very healthy. However, I can’t get any energy, I have had swelling in feet and calves, sometimes bilateral. My sleep is very disrupted, two sleep tests reveal waking up multiple times per hour, sleep doctor was stumped and prescribed medicine for restless leg syndrome which did nothing for my sleep. I have nagging neck pain and tinitus. i have recently begun taking probiotic, gluten free diet, whole foods… but feel worse. Where do I go next? Biologic Dentist, Endocronologist, integrative doc? I live in the Central Texas Area and can easily get to Austin, Tx. Please any advice is greatly appreciated. I am at my wits end but won’t give up!

    • Hi,
      Just reading the conversation, I also take synthroid for some of the same problems that are discussed. The only thing I have to offer is some reading material that I learned quite a bit from and I try my best to put into practice. One of my all time favorite books is called “Wheat Belly” by Dr. William Davis. It is an eye opener how the food we eat is grossly manipulated with hormones and GMO’s. I also enjoyed JJ Virgin’s book and blog the Virgin Diet. The diet is extreme, but it gives some good information of food and disease. Both books offer some insight, and I have learned to stay away from different foods such as wheat and soy. Wheat and soy (soy leightin) is in everything. All this stuff is manipulated by the food industry to make cheap food products. I am not perfect, but I find when I stay away from the foods that these books talk about I feel better and my waistline likes me much better. The best thing, you can read them for free at your public library. I just started Dr. Williams second book “Wheat Belly Total Health”

    • OMIGOSH I have exactly the same symptoms and background as you. No more energy for weight training,etc, and addition of “inflammation” of sinus membranes so much that thickening is shown in MRI, along with extreme tingling to waves of nerve pain in hands and feet after finally warm from a hot bath or laying on heating pad. The flip to nerve pain is the detractor of sleep, although I am addicted to 1mg of alprazolam to sleep now for years. Tried getting off that but the sinus pain was intolerable. Been to every AMA doctor possible with disappointing but predictable results. 4 Neurologists never once looked at my huge file of records I carry around, but merely tapped on knees and inside of elbow with their little hammer, collected the $330 they get for an 18 minute visit, and dismiss me. I have a collection of prescriptions for anti spasmodics, anti depressants, ad nauseum. Even the Endo I went to never tested me for anything, just canceled all prescriptions without talking to me or my primary and told me all my symptoms were “in my head”. Medical “care” in Amerika is deplorable and seems only amazing in the trauma/reconstructive arena.

      • Take a peek everybody….”it’s all in your head” and dig deeper. Might surprise you…In the name of Science what many of us allowed to be placed in our mouths. Some alarming endocrine disruptors. I am living proof…..after extensive study and research…..slowly having all toxins removed literally saved my life. It’s been a journey…..well worth it though. Graves D here….30 yrs ago…Thyroid zapped. This battle has been nearly mind blowing…one must become well educated or your likely doomed. Study and then study some more….you must. Listen closely to the whole mind body connection. We are in a class of our own with malfunctioning Thyroids…journal…look closely at all you allow in your diet, mouth/dental, body products,water, cleaning supplies, consumption……PPM(parts per million) add up quickly…….tons of endocrine disruptors wrecking additional havoc on our Thyroids and addrenal glands. Stress bites too. Take on your body as a science project…..find enjoyment in the study as opposed to grueling dread. This helps lighten the load…..of what you now must learn to live with. Bless each and every one of you. It’s tough…but you can do it…..if I did….anybody can. Just a simple little farm girl here.

    • Dr Kent Holtorf in Texas. Magnesium calms your body legs. Try Erfa Thyroid through Universal Drugstore. 1-800 number. Doctor s office can call in prescription or they will fax to Doctor

    • Amy Myers, MD is in Austin. If I lived there, I would go see her! Also, Ridha Arem is in Houston, and he’s supposed to be wonderful at balancing the thyroid hormones in the true human ration (not 4:1 like in animals). Good luck!

      • Dr.Chase Hayden has been a miracle for me !!! He is in Houston. He deals with everything from the top of your head to the bottom of your feet. He treats Neurological, Chiropractic, Nutrition , and Supplementation!!!! He saved my life. Homopathic Dr. Hayden Institute on Jones Road in Houston Texas.

  59. Hi, I have read through a few of the post when I searched for thyroid info. Some of the post contradict themselves, as one of those post before this one said that a T4 only medication is sometimes better for someone whose thyroid is autoimmune, and this one says that the natural is better. I have been hypothyroid for over 18 years, I was diagnosed at age 6. I have been on levoxl and then on synthyroid for prob 10+ years. I felt fine in school, besides always being tired. Over the past 4 years, my medication dosage has been changed numberous amount of time. I started having PVCs, depression, weight gain, hair loss, severe fatigue, and so on since have my son almost two year ago. I have been to four different Drs to prescribe me a NDT, they wouldn’t, so I demanded them to check my antibodies, which mine is autoimmune. No matter what I do, I can’t seem to shake the symptoms. Sometimes theyre so bad, I don’t want to move, talk, eat, anything! No one can be the mother their child deserves while feeling like this, I can’t run or play with him without feeling awful after. I’m at a complete loss of what to do, it is devastating, because I feel like I have hit rock bottom, I’m in my 20’s I shouldn’t feel like this at all, I’m so moody with my husband, he is so supportive of me and always says it is my thyroid when I feel like this, I get emotional when I think of it, It like I will feel this way for the rest of my life and I can’t imagine it getting any worse…. Any advice, tips, anything will help. I have an upcoming endo appt, so I would love to present to him some of my thoughts when I go. Thank you!

    • Sarah,

      So sorry to hear you are feeling so miserable. My heart goes out to you. Being a mom is tough enough without health issues. I hope that you can be feeling better soon.

      I was bedridden for five years and I had 4 kids to take care of. My thyroid issue was being treated, but my adrenals had not been addressed. In addition, I was diagnosed with severe ME/CFS, a neuro-endocrine immune disorder. I have since gotten a lot better thanks to a knowledgable Naturopathic physician and her willingness to help me follow Dr. Amy Yasko’s protocol. You may want to read one of her latest books: Feel Good Nutrigenomics. (Google her name for more info and lots of excellent free lectures and info on her web site. )

      In the mean time, I hope that your endo will run T3, T4, and reverse T3 along with your TSH. TSH alone will not give a complete picture of your thyroid hormone status.

      Since you have Hashimoto’s, and your thyroid med doesn’t seem to be doing enough, you may want to consider getting adrenal hormone levels checked. Often antibodies also attack the adrenals. If your adrenals are low enough you can even feel too tired to breathe. I am not exaggerating here. Being low on adrenal hormone also makes you more susceptible to illness.

      In addition, if the adrenals were already weak and your thyroid hormones were increased without supporting the adrenals, the adrenals could be worn out.

      Healthy fats can help both the thyroid and adrenals and also help to cut down on the inflammation that aggravates the autoimmune situation. Healthy fats such as Omega 3 and 6 and vitamin D are necessary building blocks the body uses in producing thyroid and adrenal hormones. Be sure to be getting enough of these.
      Medication alone will not be able to help you feel your best.

      Please be careful with your health. Try not to push yourself. When I was feeling like you are, and my first Dr. couldn’t find anything wrong, even though I told her how exhausted I was and that I believed I needed a wheelchair to get around, she just thought it was all in my head and so I tried to do normal things until I finally collapsed. If I had rested in the beginning I am sure I would not have been bedridden for 5 years. ME/CFS research bears that out.

      Please be careful with your health and listen to your body. Your husband and child need you.

      • Hello, I read all your post, you’re the only one who gave me hope. I am a new mom, my son is amazingly healthy but 13 months ago I have been extremely tired, and experiencing inflammation, just today I seemed totally different because of this issue, it is so frustrating, I’m afraid. I need help and hope.

  60. I was always a decent weight all my life then all the sudden packed on some weight. My Physician gave me a thyroid test and in 2009 I was diagnosed with Hypothyroidism. Over the years my doctor was unhelpful. I’d just hear your TSH is fine etc. Oddly enough I got Osteopenia, back issues on top of my already bad lower back. I was diagnosed with Bipolar, CKD, Cervical Arthritis, Mild Sleep Apnea, At times I had electrical shocks shooting through various parts of my body that stopped then I got sharp shooting pains in fingers, hands and lower arms. Got tested but oddly nothing showed. Then I also have thinning of my Left rotator cuff. Part of that shoulder area and top part of arm feels bruised to the touch(only). I’ve noticed recently sometimes I have partial loss of balance, Believe it or not this is only a partial list of my issues.
    Over the years I’ve had the obvious Thyroid symptoms thinning hair, inability to lose weight, dry skin, if I file nails they literally peeled off until I bought expensive clear base coat, cold feet and hands, moody and more.
    Since 2009 I was on Synthroid, I finally got fed up with the Thyroid issue and demanded to get referred to an Endocrinologist. When I went I had my notebook out. I stated that in the past I had Dr’s who didn’t seem to know much about the Thyroid or just didn’t care. I said I’m here for help. I told the Doctor that I do not need to be told the TSH is fine and then throw me pills. I said its not finding the cause. I said we need to find what’s causing my thyroid issue and address it, then I ask can you help? She stated first she would have some blood work done. Immediately I then found out I had a Theroxiperidase ab anitibody titre of 1,600 (when it’s suppose to be below 100). Positive for Hashimoto’s, but my medication wasn’t changed. I called the Doctor left message. On callback stated I wanted placed on Armour, then again the game starts once the Doctor says but your TSH is fine. I said well I researched this the Walter Reed Study states that most participants preferred Armour over Synthroid and some even lost weight (few 3-5 est). Case closed the doctor immediately responded ok I’ll contact the pharmacy.
    My question is this now. I started with 1 grain (60mg) and did not have issues. In 2 weeks upped it 1/2 grain (30mg). Not immediately then but thereafter my left thigh is now vibrating from the inside. It’s not a spasm, I know what a vibration is, I don’t ever have a cell phone on my person so what could be the cause? neurological now. I’ve seen nothing in my research connecting it to Armour.

    Would appreciate your feedback,

    Brenda

    • I have Hashimoto’s and I want to comment on your statement “sharp shooting pains in fingers, hands and lower arms. Got tested but oddly nothing showed. Then I also have thinning of my Left rotator cuff. Part of that shoulder area and top part of arm feels bruised to the touch” because this sounds similar to the problems I had when I was vitamin D deficient in 2005, my thyroid medicine was probably too low (or because I was on Synthroid and was not converting T4 to T3 very well) and I am guessing my leaky gut issues were starting by then. When I was at my worst, my collar bones were very sensitive to touch, my biceps cramped up easily, my hands would cramp up. I had to take up to 15000iu of vitamin D a day when less did little, and my numbers came up slowly until I took gluten out of my diet because my doctor said the itchy rash on my arms that just never healed or went away might be due to wheat (this is called Dermatitis Herpetiformis and is celiac disease on the outside). Once the gluten was gone, my vitamin D levels finally came up. I switched to Armour thyroid at first until they changed their binder and their product no longer worked, limped along with a pharmacy’s compounded product from pig thyroid, then got Nature-throid when the company was able to ramp up their production and have stayed on it to this day.
      In summary, I went off gluten, changed to Nature-throid and took lots of vitamin D to get my levels up.
      I suggest you get your vitamin D levels checked and think about going gluten free, if you have not yet done so! I’m sorry I did not have time to read your whole post–I have a meeting I need to leave for, but I hope this helps!

  61. Does anyone else here have tingling leg and feet symptoms, I have been on thyroid meds for almost three months now, and still my feet tingle, and in a hot bath they still feel cold.

    • I just increased levothyroxine fro 50 to 100. Now I feel like I have a heat rash all the time. It’s worse when I lay down. It feels like my face and torso are on fire. Sometimes there is a visible rash, other time not. Yet the skin burns like crazy

    • Tingling..yes! In feet and legs and sometimes hands and arms. I’m allergic to synthetic thyroid and Armour has changed my life. After years of extreme fatigue, tingling stiff muscles and no stamina, hair falling out and breaking off, imam up and around, less anxious, I even breathe better. But I had to go to member services to force the doctor to give it to me. My dosage is still way low because the doctor is blind to all but TSH… I have to force him to order the rest of the tests so I can watch them.

    • Yes Jan…cold feet even in a hot bath. Even sleeping on a heating pad. Warm only after hours of horizontal on heat or after a bath, the tingling turns into WAVES of nerve pain and moves to hands after a couple years. Now every so often, my face and whole arms are in it. I recently discovered that intense foot massage, using small round tools esp., to stimulate and move the crunchy things in my feet have helped with circulation and pain in general. “Take care of your feet” has a whole new meaning now. Hot baths with 4 cups of epsom salt, essential oils with massage and now I have a fave tool for foot points….a short fat screwdriver handle is bringing me more circ and more vertical time.

  62. After 20 yrs I suddenly became allergic to synthroid and it’s generic, both of which I had no issues with in the past. We attempted Armour which made things much, much worse (severe Neuro symptoms) and finally settled on Tirosint over the course of 5 years. This seemed to help for about three months then all heck is breaking loose again. My levels are fine, both my new Doc’s have Hashi’s, they check everything. But my symptoms are back full force and terrible. It is setting my other autoimmune issues into overdrive and causing a new one making me unable to leave the house due to severe stomach issues. My insomnia is horrid. I DID NOT have any symptoms when I came off everything for 6 months and one Doc scared me into trying again. In fact with my RA, swelling had stopped, all my rashes were gone, I was exercising fully and had a normal life again. My TSH at the end of 6 mo was 14, but NO symptoms. I want my life back and don’t see the point of taking any medication for this. All in all I have worked with 12 Dr’s in 3 states. They are quite perplexed, but are not surprised I’m throwing in the towel on the meds. In fact my symptoms have made me not function so much they aren’t trying to talk me out of it. Should I even be concerned given I have no symptoms off the meds?

  63. My tsh is 12.56 and my free t3uptake is 50.23. . I feel horrible . I can’t sleep sad mood changes weight lose and Gi symptoms . I was put on levithyroxine 50mcg daily . I had severe diarrhea. The doctor the levithyroxine. I’m now on tyrosint . Still feeling horrible … Help me please!!!!

    • When were you put on the levithyroxine ? It usually takes 2-3 weeks to start having it to work . Make sure you wait 1 hr before you eat when you take your thyroid medicine wait til 4 hrs to take something that has calcium in it . If you haven’t felt better within three weeks ask the dr to check your levels as I think with both your tsh and t3 being off as I would think you would be better off taking Armor thyroid meds

  64. Hoping my comment will get some answers from someone. IT’s 3 AM and quite frankly I am so tired I don’t think I absorbed half of what was contained in this article. My question(s) is this: I was born “hypothyroid”, that is, when I was 2 weeks old, an MRI revealed that my Thyroid gland was completely and totally missing. I will add that when I was about 10 or so, my pediatrician found a strange lump on the back of my tongue and sent me to an oncologist who suggested that it may or may not have been my thyroid trying to grow back. It was never biopsied and I don’t even know if it’s still there. Anyway, I was placed on Synthroid, and at some point that was changed to Levothyroxine which I have taken for the past 20 years until around 6 or so months ago when I switched to Armour thyroid. I still have a lot of symptoms that point to hypothyroidism, but I also have PCOS and they share some symptoms. Bottom line, will taking Iodine benefit me? And if so, how do I find out how much to take and all those details? And also, can anyone on here provide me with ANY links/articles/etc. that I can read on treating someone with my condition as naturally as possible? I am 20 years old and was never taught to properly care for my body, but I am so desperate to learn, and to be in good health. Thank you so much and God bless you.

    Acts 4:12

    • The lump on the base of your tongue is your thyroid. I have the same thing. They found mine when I was 10 yrs old. Your thyroid is a migrating gland. Meaning while you are a fetus it starts out on the tip of your tongue and then migrates to your throat where it belongs. Except mine stopped on the base of my tongue like I’m assuming yours did too. It’s hereditary, 2 of my nieces have it too. Even though it was misplaced I had a normal functioning thyroid for a long time then it turned into a hypothyroid. I had so many problems adjusting to meds until finally I started taking armour thyroid and it’s working great.
      Good luck.

  65. Hi Chris, what can you do to decrease the inflammation and increase your receptor sensitivity? I’m on a very high dose of naturethroid and still am having hypo symptoms. It definitely feels like I have thyroid resistance even though my numbers (without taking thyroid) were “normal.” I don’t have Hashimotos. I take an adrenal supplement as well as thyroid co-factors. I’m not living a very stressful life. I work out but try not to push myself too hard so that I don’t crash (like I used to). I’ve eliminated sugar and try to eat as many fresh veggies and high quality meats, beans, nuts as possible. It’s frustrating to still feel sluggish, overweight and have eczema.

      • I believe the receptors for TSH on your thyroid that the pituitary sends out can be blocked by something in soy (isoflavones?) so the thyroid does not “hear” the pitituitary screaming at it to make more thyroid hormone (like plugging its ears). Similar to fluoride, which you should remove from your diet especially if you are hypothyroid.

  66. Read your on body. I read the book and listen to you all and you all are right. I had stage 4 thyroid cancer at 17 I’m now 50. I seen the best doctors in the world. And they would be the first to tell you damn they don’t know. What you all said is right learn from each other no book. Because 30 years will go by and your sick feeling no better. I’m Keith at [email protected] if your know how I can feel just normal again I beg for your answers god bless you all.

    • I am not an expert on thyroid problems, but what I can tell you is: I was a walking time bomb about 7 years ago my heart rate was 220 beats per minute, my blood pressure was 198/160, my weight went from 160 to 460 lbs in just under 3 months.
      I never sleep in a moving car, but all I could do was sleep and it did not matter where. My GP sent me to an oncologist who said that I had hyperthyroidism( graves) she wanted to use radiation on my thyroid and put me on hormone replacement, I said ” no” they put me on water pills to reduce the fluid congestion, heart pills to slow my heart and blood pressure medication to reduce my blood pressure , when everything was back to normal for me, I cut all dark leafy veggies from my diet, I already had cut out salt 30 years before, I reduced my breads to just about nill, I have been fine until they found a tumour 3 months ago, I began feeling tired my tsh levels are normal, T3 is .03 and T4 is 15.3 now the Dr is putting me on vitamin B12 and vitamin D, unless your Dr has done blood tests do not take iodine or eat any high iodine veggies.

      • I have hyperthyroidism as well. I am being told that I need to be tested for Graves disease and that my best course of action is to kill off my thyroid since I’m not responding to Methimazole 5 MG 3x daily. My blood pressure is generally low at 106/66 but I can shoot up to 165/90 with a pulse rate of 168. I have had so many e.r trips because I think I’m having a heart attack. My TSH level is .002 and my t4 is 4.12. Removing my thyroid doesn’t sound like a good idea but I can’t keep going this way. I never had aniexty or panic attacks before and now they seem to come everyday. I am only 28 years old and not sure where to go from here.

  67. In 2005 I had 1/2 my thyroid removed along with my cartilage. Within a couple of months I developed nausea and have dealt with it on a daily basis since, only helping myself to minimize it. In late Oct 2014 I loss my appetite sensation, not the sensation to eat just the trigger to, nor does my stomach ever rumble if it’s hungry, in late Nov 2014 my voice went hoarse & has been ever since, in Dec 2014 I developed burping on stupid occasions, like after drinking coffee. Before my thyroid was removed I had no symptoms & after removal, to me I was the same, I’ve also developed tinnitus about 7 to 8 yrs ago. Finally my Dr believes me & is running test, but I somehow this is all linked back to a thyroid issue………..

  68. What destroyed my Thyroid was lyme disease! And no meds would work thyroid wise except compounded T4 and T3! And that info came from a PA?? All the Thyroid Drs couldn’t figure it out??

    • OH, The same guy said my body sees Amour as a Foreign organ so its fighting it every time I would take it. This guy has helped me more than anyone and its not even his specialty?

  69. I had my thyroid gland removed in August 2014. I have gain weight like crazy !!! I’m counting calories and walking every day. I’m on 200 mcg of thyroid meds, I take every morning with water !! Still gaining weight and no energy ..

    • Try natural dissecated thyroid. I take Armour. Helps losing weight and energy. Start low work up gradually start at 60mg in am. Split dose to evening. I take 30mg at dinnertime with good

    • I went through a lot of that before I went and my blood checked. I have food allergies now and my outdoor allergies intensified. I’m taking natural gluten free,I’ll call them vitamins to help with my adriennals. The food was my weight problem. I finally fell like myself most of the time. I was tired alot too.

    • ihave the same problem i had my thyroid removed July 2015 dr has uped me to 200mcg levothyroxine and still nothing and i have to take all kinds of vitamin d magnesium calcium from tums and calcitriol and all my levels are still low i dont understand any of this

  70. Chris I have a few problems, lupus (sle) fibromyalgia, kidney disease, Sjögren’s syndrome, Graves’ disease, is it at possible that lupus may make my thyroid medication inaffective. I have been trying to find an answer.

  71. This article is all about “reducing inflammation” to address thyroid issues but I don’t see any links or information on how to do that. Does anyone know how to reduce inflammation like he says? Paleo?

    • For me, reducing inflammation began with going gluten free and then getting on a program of 2 daily meal replacements with Isagenix protein shakes and cleanse. It has been 5 months and the difference is tremendous. I have no more daily pain from inflammation in my back and I dropped 15 lbs.

      • I’ve heard of Isagenix (all good). I’m familiar with their shakes and comprehend meal replacement. But, how is the cleanse product used? How often? How long?

      • slavica-
        Can you send me info on your changes? More specific info on where to get products how they worked for you eat.I have FM (fibermyalsia) and take .075 levothyroid daily…I can’t lose extra 15 pounds- always tired when I wake up and never feel rested. Tried to go off medication but was awful emotional mess. Never doing that again.

    • I have hypothyroidism and an autoimmune disease that put me in a wheelchair about 9 years ago. I was on 500 mg of prednisone weekly. I was introduced by a family member to Immunocal a special kind of whey powder which he!PS the body create glutathione. In three months I was walking with a cane. Slowly my neurologist took me off prednisone last July 2014 she took me off all steroids. Still taking the Immunocal daily to keep inflammation at bay. This was wonderful article never realized that hypothyroidism also was affected by inflammation.

    • i gave up milk,yogurt,ad wheat and gluten.i stopped throwing up and stopped being bloated.my thyroid is starting to settle down.my blood work is in the normal range after 6 months of doing this ,my body thought wheat ,gluten,and dairy was causing me inflamation .start iliminating things that upset you

  72. I began taking my Synthroid three weeks ago and I feel great. First I began breaking my 25 mcg pills into quarters and started out taking only a 1/4 pill. I do this in the morning with a glass of water. I am now taking one 25 mcg pill. My sleeping has improved, I have more energy, my skin looks better and my face does not look tired. I refused to take this drug initially when I was first diagnosed in 2011 because of a bad scare taking the generic brand, so I let my new meds sit for six months before trying this brand. It works wonders for me and being a life-long gym and karate guy, I have more energy to do laps in the pool and do weights too.
    I have taken iodine and it works ok, but nothing like my Synthroid. Time will tell but for now, I like it.

  73. I was diagnosed with Hashimoto’s about 15 years ago, and put on Armour Thyroid initially. Over the next couple of years, I found that the dose would initially help for a couple of months and then I would get symptoms back. Doctor kept changing the dosage to my symptoms and I ended up on Armour 180 mg along with Levothyroid 125 mcg, which normally worked well. But I found I would have to reduce or go off the medications every so often as symptoms of hypo would return and going off the meds for 1-2 weeks could ‘jump-start’ things and my meds would work again for a few months. I would rather have tried to temporarily increase the meds to address the hypo swing, but I would not have enough medication to do that. Unfortunately, the physician I now have is treating me to the lab results, not symptoms. So my blood work will show meds need to reduce, and he reduces; next time it will show they need to increase, so he increases; and so it goes back and forth. I suggested he leave me on the dosage I was, that was working for me, and let me continue to adjust them as I had been but he would not. He has now taken me off the Levothyroid as he does not believe a person should be on both, even though the combination is how I felt best. He also does not believe that the medications have to be adjusted from time to time or that I have symptoms of hypothyroidism on the dosage I am. I’ve tried taking Selenium and did not see any difference, but have not tried taking iodine. I am not sure why it always has to be so frustrating. Sigh….

  74. Synthroid wasn’t working well for me, so after 10 years I decided to stop taking it, cold turkey. I have Hashimoto’s but I was kinda hoping my gluten-free lifestyle had reversed it. (I also have Celiac disease, diagnosed well after the Hashi’s diagnosis). I fell to pieces over the course of 2 months without thyroid medication. Blood tests showed a TSH of 165, so clearly my thyroid is kaput. I’m not sure how I kept going! I felt horrible. Anyway, I went back on Synthroid, which is miraculously working really well again. It’s been 6 months since my adventure going med-free. I wonder if clearing your body of Synthroid helps with stuff like reverse T3, blocked receptors, or whatever. Any thoughts on that?

    • My daughter has Hashimoto’s and for years we were on T4 treatment only with no results. She could never loose weight and felt horrible all the time. We have found the NDT works best for her and are trying to level out to the right dose. We have also found a book called Lifestyle Intervention for Finding and Treating the Root Cause by Izabella Wentz. Can I just say…..Love It! We are in the process of reading this and experimenting with the way we eat. I get no kick backs from mentioning this book. I am a mother trying to help reverse or put into remission the damage this Hashi’s has wreaked on my daughters body. We found that going not only gluten free, but also staying away from soy helps. Best of luck!

    • Lisa, have been through a similar journey but tried the T3 and NDT both with disastrous effects. Have a feeling after my next blood tests that may need to raise my thyroxine.

      • What were the negative symptoms you experienced? I’ve been on NDT and feel like my head is going to explode and overall feel awful.

        • I felt the same way on NDT. Once I got on the real stuff (a combo of synthroid and armour) I felt amazing again!!

  75. Chris,

    I’m curious what your thoughts are on the relationship between liver health and thyroid disorders.

    Because much of the T4 to T3 conversion takes place in the liver, could it be that thyroid disorders in fact point to a problem with the liver?

    Thanks, Chris, for all your great work!

  76. I have read everyone’s comment on this site and just sickened with the lack of appropriate care for our disease. Everyone: please read Dr. Kharrazian’s book, “Why Do I still Have Thyroid Symptoms?” http://thyroidbook.com/ it will answer so many of your questions, address your fears, and give you tangible ideas on how to find the correct provider/treatment. Don’t settle for the agony you are in; you deserve a wonderful happy life!

    • I looked at the website for this book and it looks interesting. Recently I began on a journey to clean out my gut and liver (a weight loss and cleanse system) and it’s helping tremendously. I still have side effects of the Levothyroxine, which I have been taking for 11 years (headaches, heat sensitivity, dizziness & nausea, gradual/steady weight gain over the years), just not as severe anymore, so I am ready to try something else and I thought I’d try Armour. But my question is, would this book help me if I do not have Hashimoto’s thyroditis? I contracted De Quervain’s Thyroiditis back in 2004 and ended up hypothryroid. So it may not be an auto immune problem. Any suggestions?

  77. I am 56 years old. In March 2014 I felt completely tired and other common symptoms of hypothyroidism and did a blood test, my TSH was 8.6. After some research I decided I had to find the causes better than take medication.. What I did was working on my diet. I’am vegan. I eliminated sugar (including sweeteners, honey, sweet fruits…), gluten (wheat, rye..), soy, cruciferous vegetables, coffee, tea, alcohol, soy, switched to a toothpaste without fluoride and I added coconut oil. My symptoms were disappearing gradually. At the end of october I did a new blood test and my TSH is 4,76. I think it had some relation whit candida.

      • I’m vegan, fresh vegetables (organic, when I can afford this), grains, beans, nuts, seeds, mushrooms, seaweed…. A lot of salads, sprouts, few fried, no junk food. There is a connection between candida and hypothyroidism, eliminating foods that are bad for hypoth you’re stopping to feed the candida. Apart from this I take a raw garlic in the morning and now I’ve started taking oregano essential oil. Also coconut oil is antifungal

  78. Very interesting post, thank you. I’d been doing well on a combination of T4 and T3 for three years. I’d also had stem cell therapy early in that time that really made me well for 2 years. Over the last 6 months my thyroid numbers have been decreasing and my doctor and I have been fiddling with my dosage to try and improve things. All the time my weight has been creeping up and my overall flare and inflammation has been rendering me less able to get to the gym. I’ve been on several of the antibiotic protocols, all of which work for a while and then seem to taper off. How do you define addressing the underlying autoimmune issues, please? No one seems to know what works in the long term. How does one address something that seems to have no cure?

    • I am intrigued by use of the symptom mentioned of inflammation. How is the inflammation measured? Is it the same, similar, or entirely different from something called a SED rate?

      I thank you.

      • Hello…I don’t know if you ever got your question answered but measuring inflammation is done through a blood test called a CRP or C reactive protein. The SED rate you mentioned is entirely different.. SED is short for sedimentation rate and that is the rate or time it takes for your blood cells to settle in a tube once it has been drawn.. Hope this helps…

  79. So how do you get your endo physician to listen to you about addressing your hashimotos or immune disorder. I have been to multiple physicians for help but they seem to lack the knowledge. Rhematologist, Endocrinologist, family medicine, ENT, OMFS, they even sent me to a psychologist to say that i’m depressed. I told them if I am depressed its because I can’t get anyone to help me with what is going on with me. I am not feeling myself I have passed out at my son’s football game, I can’t be in the sun because since I’ve been on thyroid meds I am VERY heat intolerant. I feel tired, not focused and sick to my stomach. I have gained weight and my neck looks full, my eyes are puffy, my pupils are extracted most of the time. Ive have painful sore in my mouth, I have glossitis on my tongue, I ve had ear pain with no diagnosis. Ive had a rash all over my body. I had a drink two years ago and my face turned bright red and was burning. My thyroid scan shows atrophic thyroid, hashimotos thyroididis is what they said and are giving me synthroid, vitamin d because my vitamin d is 17, vitamin C is almost depleted. I have positive ANA. and one physician thought I might have lupus but another says no. Any thoughts on this would be very helpful because I’m tired of being sick!

    • Dear Angle Fire,

      I am in the same situation as you. I was given Synthroid 50mg 6 weeks ago and I started to feel so sick, mood swings, felt like I had the flu. I am a big mess the depression I started to have was given me these awful thoughts. I spoke with my Doc she reduced the meds to 25mg. 3 days later I still felt so sick. I called her again and she told me to get off the medicine. She wants to do another blood test in 5 weeks. We will see where I am then. I wish I could tell you better news but I can’t. Please keep in mind I have been living a glutten free diet, and do yoga 3 times a week and also see a therapist in order to reduce my stress. I have done everything in my power to heal. Personally I think Synthroid is not the best med for me. I wish you the best and please let us know how you are doing.

      • I wanted to comment from personal experience as I have been on this journey for 8 years now, up down, up down on thyroid meds and various types. I’m currently taking NatureThroid but have done synthroid and other t4 meds and t3 combos. I know that it is horrible to take meds expecting to feel better and you don’t right away. I just want to pass on this piece of advice for anyone out there that is not feeling better within a few days/weeks. At least for me it takes me a good 8-12 weeks on a steady dose of thyroid meds to feel better. It will always get worse before it gets better. I was stupid and didn’t realize there was soy in some Body By Vi shakes I was taking for a month and I believe it blocked my thyroid meds from working therefore I’m having to go through a whole adjustment period again which is horrible. I can barely keep my eyes opened and the join pain among other things make me want to pull my hair out. I know that it’s going to take me a while to adjust to these meds again and even if I don’t believe it at times I know that it’s going to take me a little while. I read alot of posts similar to yours on the internet and how doctors tell you that you’re going to feel better right away and you don’t.. While I do believe that taking a T4/T3 meds combo is what our body needs we also need to give it time. If you can’t find relieve and find yourself frustrated like I did after going up and down on thyroid meds for 5 years switching every 6 weeks give yourself time maybe a good 3-4 months on a steady dose as long as your lab numbers look good. This was the only way that I managed to get my life back.. somewhat.

        • I have been dealing with thyroid disease for 4yrs and the meds it has put so much weight on me that i dont feel healthy i have no energy im sweating all the time moody,does this mean the synthroid isn’t working for me, but my no# are always good since i’ve been on 100 mg of synthroid

          • I feel exactly as you do after being on my meds for aprox 3 years. It started as hyperthyroidism and switched to hypo in a matter of weeks. My meds have brought the T3 and T 4 back to normal levels but I have put on excessive weight, feel tired and sleepy, moody, thinning hair and other symptoms. I thought the thyroid meds were supposed to help but they are certainly not helping me! Would like to know if you find an alternative.

            • I have been on Levothyroxine for a year. Started .25 and it worked great until it didn’t. My doctor raised the mcg to .50, didn’t help, it was raised to.66 still didn’t help. It was raised once again to .88, needless to say, no help. I was getting worse. No energy, dry, brittle hair, weight gain, constipation it was awful! My doctor raised it to 100mcg. My situation did not get ANY better. My mother suggested I go to a health food store that she has gone to. The owner suggested this Thyroid kelp supplement. Amen! I feel so much better! I mean THE VERY NEXT DAY! I have energy, I am regular (BM) I sleep better, my face looks less bloated! I am taking “Thyroid Blend SP-26” by Solaray! I am joyful and thankful!

        • I’m on Armour and used to do so well bur now I have to supplement with vitamins etc to feel right and feel like it is working. I take 60 mg in am and then wait hours and take Vit C and calcium I chew it for it to absorb better I take Vit E and Adrenal Complex with a Dhea 10mg If I feel sluggish I take a Selenium. I take an Alive multivitamin. This afternoon my head felt foggy so I took a Garlic capsule and a magnesium and two ibuprophen after eating and taking my Armour evening pill 3/4 of a grain and right now I feel fantastic. Head is clear. Wish it felt like that earlier maybe I should take magnesium earlier. If you take too much garlic it can thin your blood too much. I also take cinnamon if I feel nauseated lowers blood sugar and have been taking fish oil and zinc helps convert T4 to T3 just 10mg. Seems like all I do is take supplements all day. Back when Armour worked well orig formula I only took multivitamin and calcium at lunchtime and zinc occasionally. Ibuprophen to calm jitteriness. Tried all the other NDTs and got weak on all of them. Armour works the best for me. Wonder if there will be any changes with Pfizer buying out Allergan Actavis. Wouldn
          t it be wonderful if it went back to the original formula

      • Two days ago I was told by a new doctor that my blood test showed my reading on thyroid as almost 0 (zero).

        I am new in Boston just having moved here from Artic and am having a hard time getting provider response when I try to contact them.

        The doctor above has been negligent in responding to me, and I was wondering if I can increase the 88mcg levothyroxine to 178mcg I might feel better. I am exhausted, my hair is falling out. I would like to do this until I can find another doctor.

        Any suggestions? I know it is not smart to self medicate one self.

        • I’m on Boston too and just reading up on thyroid stuff because even Vyvanse isn’t working to keep me energized. Have a LOT of thyroid symptoms too. I just need to feel normal but I’m SOOO FATIGUED all the time. If you find a good Boston doc please let me know! Thanks!

            • I have been taking Nuri-meds bovine thyroid supplements with FANTASTIC results! Natural hormone + minimal regular vitamin supplements = my teens excitedly telling me that this is the mom they remember! (I have no thyroid – took the radioactive therapy and killed my thyroid many years ago…FINALLY discovered Nutri-meds)

              • Hi I’m on armour thyroid.
                I have tried every other medication . I had rai and it totally killed my thyroid the trouble is as with every other med I’m still getting anxiety and panic attacks I’m already on sodium valproate for this and blood work shows that this is in therapeutic range.
                Yet I’m still experiencing anxiety and there is no reason help ! X

                • Try natural dissecated thyroid. I take Armour. Helps losing weight and energy. Start low work up gradually start at 60mg in am. Split dose to evening. I take 30mg at dinnertime with good. Try chewable calcium with zinc. Magnesium. Vit D copper included 4 hours after Armour. Will calm you down. Also take Dhea 10mg compounded time release to relieve headaches

            • Coconut Oil Regulates The Immune System and Decreases Inflammation

              Coconut oil has always received a criticism because a group of scientists had incorrectly promoted that it increased LDL cholesterol. However, it never did increase LDL cholesterol, but it did increase HDL or good cholesterol. That distinction was never corrected in the mainstream press and the misconception still continues to this day.

              “Why the mainstream persists in this delusion of criticizing coconut oil is beyond the understanding of many in the natural food industry,” said raw food expert and retailer Ian Macdonald.

              “You know you’re on to something healthy when national and international health agencies are advising AGAINST it,” Macdonald stated. “This is typically due to influences from pharmaceutical and high profile corporations who strive on keeping the population sick and diseased,” he added.

              I also take Vitamin C there are some good ones on health sites make sure its natural imo the best place to order would be at Naturalnews.com with Mike Adams as he is an activist fighting to expose the greedy ones and keep our foods and supplements as natural as possible. Take a good probiotic to get your gut flora balanced therefor controlling the candida overgrowth. My symptoms is under control the coconut oil is God sent.

              – See more at: http://healthimpactnews.com/2013/get-off-your-thyroid-medication-and-start-consuming-coconut-oil/#sthash.CmMQPEjr.dpuf

          • I was diagnosed with depression and ADHD before my Hashimoto’s diagnosis. The anti-depressants and Vyvanse had increased the damage to my adrenals. If you are no longer feeling the effects of the Vyvanse, you may want to have your adrenals tested. Adrenal support made me feel better immediately when nothing else seemed to be working. Good luck.

          • Jack, I’m wondering about the things you suggested. In any form? I have tried taking things that support thyroid function, but I have no thyroid… will they work for me? Do I need to time taking them in some kind of relation to my thyroid replacement?

            ALSO: In my past, my insurance required that I get my meds mail order because it is a chronic condition. Unfortunately, the generic meds that came thru the mail were less effective and had (for me) more side effects than the generic meds I was getting at my local pharmacy…

        • I raise my meds on my own when needed. You may need a combo of armour and Levo. That works the best for me and many on this thread it seems.

    • When I took t4 I was so sick I had to be rushed to the hospital fighting for my life. I’m very t4 intolerant. Now I take only t3 and its fine. The reason I reacted so badly to t4, I had another underlying disease- pancreas insufficiency which took another 12 years to diagnose and I’m still fighting with docs. They misdiagnosed my pancreas problem as colitis (even though I don’t have colitis symptoms). Pancreas insufficiency causes malnutrition. The body cannot convert t4 to t3 when there is malnutrition or when iron/ferritin is low etc… So look more closely at this and try switching to pure t3. I think pure t3 is so much easier anyway because each dose increase or decrease takes less then 1week and not 8 weeks like with t4.

      • I started T3 a week ago and I’m having a lot of acne and my skin is kind of red has anybody else had that problem with t3? I never get acne until I started T 3

        • Hi there,
          I started a T3 (Thyroid is the name) back in August 2014 and started getting red inflamed acne. I chose now to go off of it for 2 weeks to see if it clears up and in fact it has. The only issue now is do I go back on it? I starting to feel the effects of the hypothyroidism again (nausea, extreme fatigue, and loss of appetite currently..most likely due to the nausea). I am waiting to hear back from my Natropath to see what I should do next.

    • Hi Angelfire – I can feel your frustration! I have been on this journey for 4 years, which is when I was diagnosed with Hypothyroidism. At that point, I knew my HMO would just prescribe meds and that would be their only path, which didnt appeal to me because I wanted to get to the root of what caused the Hypo in the first place. So I did some research – read book upon book so I educated myself on what my body was going thru – and came across a doctor in my area (he was referenced in Dr. Kharrazians amazing book “Why Do I Still Have Thyroid Symptoms?”) who is a nutritionist as well. Anyways, he had me undergo an extensive blood/urine/stool/saliva test that culminated in the discovery of my gluten intolerance, as well as egg and dairy allergies (plus a few more!). This test is crucial for us thyroid folks because we need to see “the big picture” of everything involved with our disease, and also gave Dr. Mark the info he needed to suggest different supplements/vitamins to support my body’s weak systems. As for the thyroid meds, as Betsy said it is a “trial and error” process that will takes MONTHS in order to dial in the correct dosage. At first I was on Armour (for about 1 year, dosages varying), but that proved to not bring up my T3 enough, so we switched to Levothyroxine, which I have been on for about 3 years and am now about to add back in some Armour for a combo dosage. I know I have months ahead of me of varying the dosage, experiencing the effects of too high or too low, seeing blood tests to guage the results in my T3 and T4, until I finally get this new combo dialed in. So, in summary, I highly recommend to ALL to spend the money (out of pocket sadly) for a good specialist who thoroughly diagnoses you via blood/saliva/stool/urine tests, eliminate the inflammatory/allergen foods from your diet, and ask your family/friends to be patient with you while you undergo the Dosage Trial. In the end, it will all be worth it! I have been happily “symptom free” for years, and didnt even know my “numbers” were off until my most recent blood test. There is hope; just do your research and find the right professional who has the knowledge and experience to truly treat hypothyroidism.

    • I had alot of the exact same symptoms. Started developing after the Hashimoto diagnosis and onset of menopause. Turned out I have another autoimmune disorder that likes to hang with Hashimoto. It called Sjogrens Syndrome. Hard to diagnose too. Bloodwork turned nothing up. Finally a lip biopsy said it all.

    • I had your symptoms and my dentist ended up finding the root of things. My B-12 was so out of sorts. Yes, I still have the hypothyroidism but adding B-12 (I have to have injections since I have pernicious anemia) has helped in many ways, from emotions to giving me energy. Ask your Dr to test you for low B-12. Best of healing.

    • Hello-I read this & some of your symptoms sound like a rare disease a friend of mine has called Bruhcets which is an auto-immune caused by inflammation of vascular system so impacts whole body with symptoms that look similar to lupus-mouth sores very common symptom. I’m not in the medical field so I may be way off, but the mouth sores could be an indicator to get it checked out.

    • I have Hashimotos and I just found out I have the B 12 deficiency maybe you had that it sounds like you have some of the symptoms I just started taking the b 12 so I’m hoping that it works good luck just look up the symptoms for b12 deficiency and you’ll see what I’m talking about. Good luck shannon

    • What I’m starting to do is this. Now I was diagnosed in 2009 Hypo since then weight gain etc etc you know. I got tired of hearing your TSH is fine. The Usual Blow Off.
      I got more and more into research taking notes etc. I finally told my Physician (did not ask, but told) that I wanted referred. You know referrals can sometimes be hard. Well i got referred.
      At my Endo appt I walked in with a notebook, stated to the Doctor immediately I’m tired of having Dr’s tell me the TSH is just fine and just give me pills. I need a physician that can help me, can you? We need to find the actual cause of the problem. If not were just putting up a smokescreen.
      The Dr stated she would order some blood work which ended up being the Theriperoxidase ab antibody test. Well mine came back positive for Hashimoto’s a titre of 1,600 when it should of been below 100.
      Read my post it’s very long. but more or less go prepared tell them what your there for. Your hiring the Doctor to help you with your health. Be frank but polite in your talk. Keep respectful. I have a list of test for Hashimoto patients to get checked out and I the patient expect that Doctor to look over the list I have test marked off that I want first. We will work together or else there’s plenty of Endo’s out there.

  80. I’ve been on Levothyroxine since I was 10 (back in 1985)…I had Hashimotos. I was diagnosed with Thyroid Cancer in 2006 and had a total thyroidectomy. That was all in England. When I moved back to Canada in 2010, my new doc here (an endocrinologist) put me on Synthroid. My dose has consistently increased since 2010 to the point where I’m not on 200mcg. The doc cannot adequately explain to me why the dose keeps increasing. (This is up from an original dosage of 75mcg). Any ideas or suggestions or even clue as to what I can look into? Much obliged.

    • Anytime you have to keep increasing your thyroid medicine it is because your body is being depleted of iodine. You might look at some books by Dr. Brownstein

  81. I take 125mcg of Levothyroxine. I’ve been on this dose for a number of years now and blood levels are normal range. I have many issues with cognitive functioning including: memory, confusion and anxiety. I become easily overwhelmed, stressed and irritable. This makes finding the right job and keeping it very difficult. I simply feel like I’m unable to function. All of this puts my emotional well-being on a see-saw which is also being impacted by the disease. It doesn’t make me want to be around people or go out in public but this is not realistic. I have never found a doctor who takes the realities of this disease seriously. Doctors have been condescending, invalidating, paternalistic, insulting and egotistical. I recently received an MFA with a 4.0 so I’m not a complete idiot. I don’t have money for healthcare nor do I have health insurance. I’m currently unemployed and looking to go back to school because it appears to be my only option. I look very healthy so there is this underlying prejudice that I must be fine. My low energy levels do not benefit from the state of survival I have been in. Like all of us, I simply want greater healing, harmony and balance! Thanks-

    • I understand where you’re coming from as I’m in a similar boat as you with work and a social life. I have been doing this for 8 years. I know it’s hard and the meds are expensive but try getting a med combo with T/4 T/3 like Armour Thyroid or NatureThroid. Even though I don’t function 100% it’s the only thing that has gotten me to a point where I can function again.

    • Oh my Gosh! I’m not crazy! I need help! I can’t get my health under control. Too weak to exercise, not enough money for really healthy food, and can’t think straight enough to trust my own decisions. Don’t remember anything. Been on 125mcg levo for a year. Took 4 years to diagnose and 4 years to increase thus far and still not okay. Does anyone else deal with a swelled tongue as well?

      • Yes my tongue is also swollen. It is one of the hypothyroid symptoms. So is a sour taste in your mouth. I have put on 10 lbs in 2 weeks and am on 112 mcg of Lovothyroxine. I had blood work done last week and I will have to wait and see what the doctor says today about my numbers.

  82. I’m very interested to hear if there are any qualified doctors that have come up with a way to treat the other things that synthroid doesn’t help (restore HPT axis coordination, improve receptor function, or increase conversion of T4 to T3.) because I’ve been taking Levothyroxine for 20 years or more and even though I have my blood checked every 6 mos to a year and I’m told my hormone levels are just fine, I am still exhausted every day, I can look at food and gain weight, and I’m going bald! Not a good look for a 53 year old woman!

    • Tanya i have all the same issues. I really thought i was reading something i wrote. What you wrote was totally me. I am taking 400 mcg of Levo and it is not doing a thing any more. My Kidneys are not functioning right at all. I will say i have no Thyroid i had cancer and had to have two surgeries to remove it all. It really scares me to think im taking this medication and it is not helping at all. all my levels are at a dangerous stage. The day before i got my last labs i had talked to the doctor about maybe adding a T3 med to mine. he said it would make me have too much energy. I said well that would be better than none. at least i could have energy to do chores, walking and stuff. i have NO ENERGY. my body is going through all kinds of emotions i dont know if im coming or going. I can say my husband of 2 yrs is being patient with me over this, but getting very upset with the doctors. I feel so lost from all this.

      • 400!!??? JHC, how is that possible? I’m at 120, I didn’t know it could be that high. I wish I could find a doctor, why do I take this pill, forever? Why??? Why???

  83. Hi sir,
    I m 22 years old. I have thyroid problem… Before i had taken a treatment, my TSH level was 13.92… I had taken the tablet for six months( medicine: 50mg)…. now the level increased to 25.39… i m scared for this… Why is it increase… please give any suggestion… could you send the details to my mail id ([email protected])… my weight is 72… please sir.. If you give any solution it is really help full to me…..

  84. I suffer with hyperthyroidism, I was taking 100mcg. Started feeling very strange, anxious, stressed, tired etc. Dr. then lowered it to 75 mcg. Still feeling the same, does this need to be lowered again and how long do I wait before another blood test.

  85. hello…
    14 years ago i was diagnosed with Hashimoto with thyroid antibodies 500 and still suffering with horrific symptoms.
    I was denied any meds untill this year. This year antibody were lowered to 200 and I got syndroid which adjusted my appetite and stopped cravings. But my face started looking horrible. hanging eyelids, extremely dry, peeling red skin with severe acne, still no energy, overweight, and severe bloating indigestion and constipation. Than I was given T3 and i could not take it as my joints and body pain increased to the point I could not walk. So I switched to dessicated thyroid, which was gentle but with no any good effect.
    So i stopped it all.
    I started eat a lot of veggies for breakfast with some protein and one raw onion daily. For few days I felt as my immune system switched off and I felt no pain, a lots of energy, perfect digestion and I felt great like never before.
    After a week I am still with this way of eating but my symptoms and pain of joints and ancylosis spons.is back.
    It seams to mi that anything that supports thyroid function and good health including diet is overpowered by immune system after few days and I am back to my sickness and big body pain. Is this the end for me ? I know if my Immune System would be switched off my body function would be restored. But how I can achieve this ? any insight Chris ?
    Thank you in advance

  86. Hello Dr. Kresser,

    This is a very informative website on a much misunderstood subject. I was diagnosed with hypothyroidism in 08 and have been on a small dosage of Synthroid/levothyroxine ever since. It helped with the breathing trouble at night, blood pressure swings and numerous other problems but I still struggle with hives when getting hot mainly but also getting cold (large temperature swings). Every doctor I’ve been to just wants me to throw large amounts of allergy meds at it. I take Zyrtec daily and that helps lessen the severity but not by much. Benadryl works some to alleviate the horrible welts all over I get from just going to the gym. Any suggestions?

  87. I have made blood analysis. TSH was 3,9 mlU/ml (referance range 0,5-4,1) and TG-ab 296,8 (referance range small 100AU/ml) and the doctor recommended to drink L-Thyroxin 50. After two monthes the blood anaysis show the following results: TSH is 1,32mlU/ml; TG-ab now is 471,8. Two days ago (29.07.14) the doctor recommended to continue drink L-Thyroxin 50 each day and Metypred one drug each 2 days. Today (31.07.14) I am feeling some lump in my throat. I am not sure is it nervious one or something going wrong. She suggeted to make blood analysis after a month and make thyroid ultrasound. I am afraid if I am in right way. What will be your suggetion. I dont want to miss the time. I am 42 years old. Never have serious problems before and my relatives never have such diagnose.

    • I suggest you go to a cancer doctor and have testing done on it. This does not hurt but you can rule out cancer. I noticed a small bumb on my neck in my 20’s. in my 40’s it was bigger. i always said something to the doctors and they never thought anything about it. Finally 20 yrs later a doctor sent me to a throat, nose and ear doc.. they found out i had cancer. Dont get scared yet, my pators wife also had a lump on her throat. she was tested and she did not have cancer. you just need to get it checked to make sure. If you catch it soon enough you may be able to remove it without removing all your thyroid like i had to do.

  88. I am currently taking .5 synthroid (for 5 years or so) and iron supplements. My ferritin was 9 a month ago before the iron. I am still so tired all the time. Doc wants me to go back on BC pills. I have ringing in my ears, frequent candida /sore tongue, hair loss Lately my stomach has felt very bloated and full. I am not over weight. I live a very stressful life. Any ideas suggestions

    • You need ferritin to go up by taking iron . Have your b 12 checked too and adrenal glands (cortisol saliva test). YOu might want to join the thyroid adrenal group in yahoo.

  89. I was diagnosed with a overactive thyroid when I was 21, I have had the surgery and radio iodine treatment and became underactive. I had no problem for 10+ years on 200 mcg of levo but last august became overmedicated and was cut down to 175mcg, I was still ill and in April this year was told I was still overmedicated and was cut down to 150mcg, my blood test results came back last week as normal but yesterday I started feeling unwell again, could I be undermedicated this time and why at 45 years old is it all of a sudden playing up?

  90. I was diagnosed with hyperthyroidism when I was 12 yrs old now I took the radio active iodine!have been on levothroxin ever since! I am now 45 years of age and is no longer working body is slowly shutting down! doctor wants me to try synthroid! will that actually make a difference?

  91. I was found to have HashiMoto’s a year and a half ago after my thyroid was damaged during spinal surgery. I started at 88 mg, then 100. In February (this year and a year later), I felt like I looked dead, felt dead; my wife took my body temperature and it was 95.2. I was having the most massive headaches you could imagine and felt lifeless. My voice was as if my vocal cords had been damaged, it was very scratchy. She read articles and it suggested I needed to take more thyroid medication. So I doubled it from the 100 to the 200 and my body temperature came up to 98. I felt like a flower that hadn’t been watered for a week and looked dead, and then sprung back to life with water again. Lab work supported that I was on the right track, and my endocrinologist was in shock that I could need that much so quickly but put me at 175.

    A month ago I started to feel the same, took my body temperature and it had slipped to 96.9. So I split one in half and am now taking basically 260. It brought up my body temperature to 97.6. I still have massive headaches that come and go all the time, lack energy, am fatigued, the list goes on. I am very hesitant to take more, and after reading your article think my issue is T4 to T3 conversion isn’t taking place, so no matter how much Levothyroxin I take, the T4 isn’t being converted to T3, so my body temperature isn’t going up proportionally.

    My question is: I assume that the T3 working correctly is what corrects the body temperature, that T4 has no impact on it until it is converted to T3. Is that correct?

    Thanks!

  92. I have tried 3 hypothyroid meds. Synthroid never worked and I actually gained weight. I used Armour for about 2-3 years and it became ineffective and now after 8 monhts of Naturethroid it is becoming less effective.

    Why would this happen? What else can I do? I feel bad.

  93. I was recently diagnosed (3 months ago) with Hashimotos. My question is has anyone experienced the medicine working and then all the sudden stopping, I started out on the 50 microgram dose and now am on 75 microgram dose. It seemed to work great within the first week and continued until it was time for a refill then it seemed to slow down and the symptoms returned, then the next round of labs and they up’ed the dose to 75 micrograms. Now it’s time for another round of labs and I feel that the symptoms returned.

  94. Hello. While searching for answers about my Thyroid issue/was removed by radiation
    , I came across this site. Have truly been more educated and share everyone’s concern. Currently I take a Synthroid and had blood work by an Endocrinologist.
    Triglycer…130mg/DL
    TSH. 0.109 uIU
    thyroxine T4. 9.4ug/DL
    T3. Uptake. 28%
    Free Thyroidine index. 2.6
    TPO. >6 IU/ml
    Hemoglobin. 12.4g/DL
    Hematocrit. 38.1%
    I am trying to understand everything
    Doctors havent (well) anyway. Could med be increased. etc. Thanks

  95. [email protected]-I lost most of my thyroid back in 1983 due to surgery. I’ve been taking Synthroid ever since, now its 2014, I moved up to a higher dose of 175 as of May 20th, it is now June 16th and it doesn’t seem to be working. How can I tell if my thyroid has stopped working? Tests done on 4/14/14
    TSH-0.03
    4T- 1.20
    Cholesterol-172
    HDL-63
    LDL-92.0
    TRIG-85

  96. I have hypothyroid and am taking bio identical hormones and am not seeing any results. I would love to try seeing if any inflammation is the problem however when I look anything up it’s either to eat an anti inflammatory diet or the natural way by taking tummeric. How would you recommend combating inflammation?

  97. hi my name is aurora an I had my hole thyroid remove and ben taking levothyroxine for 2 years and I don’t know what is wrong with me becase I take a 200 ml and I feel very sick no energy and allways cold and I have gain about 80 pounds mostly on my lower belly and down to my legs very ugly and I don’t understand why because I go 2 the gym every day 2 hours and eat very healthy food I don’t even eat meat or breads r pastas and they test me every 6 months and it doent change im always so sleepy an very tayer

    • I too had my thyroid removed due to cancer and i have been on levo 400mcg for a long time. it is not working at all and now i am having problems with my kidneys. i need help going to talk to my doctor and see if i need a specialist or what. please any info would be appreciated. thank you.

  98. Hi Chris

    Thanks for the great information. I had a total thyroidectomy two years ago (diagnosed with thyroid cancer, but once it was removed the labs came back clear). And as usual I was placed on levothyroxine. After about 6 months, I was still very hypothyroid, even though my TSH was finally back in the normal range. After a lot of research, I changed to liothyronine sodium (T3 only) meds. I improved a lot, and I am now able to work full time again, but I still have many hypothyroid symptoms. I am taking a lot of supplements to support my adrenals, but I still think there’s another underlying issue. Do you have any suggestions? And just to add, where I am living atm, there are no facilities for fancy tests like RT3, or adrenal saliva tests. Many thanks.

  99. Thanks for the great article Chris! Any tips on the kind of tests we should do to diagnose maybe alternative causes of Hyopthyroidism.. My naturopath put me on naturthroid and now im on levothyroxine , about ten years ago…..would love to know if taking iodine or anything else would be of benefit or if you recommend naturthroid over levothyroixine..?
    Thank you!!

  100. Hi Chris..Great Article!
    I have been on levothyroxine for hypothyroidism for about 7 years..However, whenever I drink warm liquids, eat cooked warm foods, etc, My body gets really really hot..My husband says my thyroid is out of whack..Anyways, yesterday I checked my oxygen because I also have COPD and my pulse was only 47.
    I am somewhat active 54 year old but am by no means athletic..this came as a shock to me as my pulse is usually between 90 and 120 all the time..
    So I was able to get right in to see the doctor and combined with the dizziness, weakness, low heart beat he says “acute onset symptomatic brady cardia”
    Of course, since Ive never had heart problems I raced home (well not really) but see through researching it that hypothyroidism can cause this to happen.
    Im hoping thats what it is. You talk about inflammation? should I be taking the ibuprofen regularly?
    Also, I think it strange that I am also diabetic but have never been overweight, in fact weigh only 130 pounds and am 5’10.
    Doesnt hypothyroidism and diabetes affect mostly persons who are overweight? better yet, don’t both of these cause weight gain?
    I know you are probably thinking “Lady, save it for the doctor” but I do appreciate your taking the time to read my inquisitive post..

  101. Hope my comment will help some of you. I had posted a while back asking how we determine where the inflammation is coming from – I knew I was inflamed due to feeling inflamed and having ferritin that was above the range and increasing (and no genetics for hemochromatosis). After a lot of searching and testing, we think we have found my source of inflammation: LYME. I now know a lot of Lyme patients who also have thyroid problems and have been down the same path as me (told they have Hashis without testing positive for it, told they have AID without testing positive, told they have fibromyalgia, and so on and so on and so on). I kept pushing doctors because we weren’t finding answers and I felt as if my body was invaded by some kind of bacteria or parasite. If you have a thyroid problem and you can’t identify the source, it’s worth looking into Lyme as a cause.

  102. I have had problems with my thyroid for over 30 yrs, last year I started loosing weight for the first time and I wasn’t hungry all the time either. I ended up loosing 40lbs in about 3 months and then I had a doctor’s appointment and she checked my TSH level and changed my thyroid med, and the weight just started piling on.
    I went to my doctor today after I have been fighting with myself and taking the synthyoid medicine all these years and ask my doctor if there was another way to trip my thyroid so I could loose the weight, She is a family doctor and not a specialist on this matter but I hope with the above info I can get a little more in-depth help for my thyroid. I have been to a specialist and he gave me the same medicine but he use to do biopics of my thyroid every 3 mths but I never lost the weight like I did last yr.
    I wish there was a way to find out what triggered it? One small little part of the body by your throat that does so much harm.

    Debra

    • I forgot to mention that I have Lymphedema also and when I had lost the 40lbs last year my Lymphedema had also gotten better. The swelling in my legs and arms went down and I hadn’t felt better in years.
      So for some reason I believe the Thyroid and the Lymphedema have something in common. If anyone has any information on this please let me know.

      Thanks Debra

  103. I had my thyroid removed in 2009 . Up until then I have felt fine. This past yr I started gaining weight20 lbs and was having severe pain in left arm have lost a lot of range of motion. In Jan 2014 I woke up one morning extremely dizzy and threw up. I went to hospital and was diagnosed with vertigo. That same day I went to my DR and had blood work done. The next day she called and said my thyroid levels were off ( to high)and moved me from 100 to 125. Now roughly 6 weeks later more blood work and my levels are low,moving me to 112.5 I have felt slightly dizzy every day for the past 6 weeks. What caused my levels to change in the first place

  104. My husband was diagnosed with hypothyroidism about 4 months ago he is on levothyroxin but it is ruining our lives. Before he was diagnosed he was just a little more tired than usual, now that he has been diagnosed and on meds he is constipated, more tired, depressed, no sex drive, anxious at times needs to move around, I don’t see him smile or laugh, we were always a couple that was close held hands, emotional he has just lost all of that. We have an appt now with an endocrinologist and I just found your blog and just feel I need help. I want my husband back I almost want to tell him to stop taking the medicine but I know thats not the thing to do. What questions should I ask the doc when we go if you can help at all. Thank You.

    • Hi, i can understand the situation you and your husband are going through sounds very similar to my condition. Me and my wife have been going through this from 6 months and all the problem started since i started 100 mg levothyroxine, i remember those days like a very bad dream. then i finally decided to change my doctor someone who would listen to me and consider my feelings rather than dumping me with medicines. My endo took me off the meds and started with 25mg levo for 2 weeks then increased 12.5 mg every week slowly reaching to a target range of 125 mg. I lost the excess weight that i gained, started feeling better, came out of depression, started spending time with my lovely wife and kids. Though i am not 100% and i even dont expect that i will be since meds cannot replace something which God has designed as he is the best of all desingers and free of errors.

      I suggest you review your husbands condition with another doctor anr also watch out for his cholestrol levels as they may get elevated due to hypothyroid, take the meds on empty stomach first thing in the morning do not eat/drink anything until 30-45 mins to allow absorbtion avoid coffee and caffeine products. Slowly get him to excercise for atleast 30 mins. Again he may feel hyper at times due to high levels of t4 but should stabalised gradually insha allah (god willing).

      All the above is based on my personal experience and knowledge gained through reading. I pray that Allah provides your husband and family with good health and well being insha allah. Apart from the above changes i used to take 3 glasses of fresh orange juice daily, 1 teaspoon honey and half teaspoon black seed oil in 1 cup warm water this really helped me. Black seed has a lot of health benefits you can google it. I hope i have tried to be of help to you and your husband, i feel that its my duty to share my experience and help people benefit from it i just request you to remember me in your prayers.

  105. How do you address the inflammation? I agree with your assessment but I find it extremely difficult to reduce inflammation. Thanks.

  106. hey chris i have hypothyroid and been taking synthroid and then later levothyroxine but have been dealing with under eye bags and dark circles for about a year since ive been on medication and tsh is in normal range

  107. I would like to know what do I have to do to obtain Chris,s answers to all the great questions, I have went on all the links shown but still can not find the right place. Thanks Jane

  108. Since both thyroid and parathyroid disease co-exists in many patients, and in light of mention of multiple endocrine glands (i.e. pituitary, adrenals, etc.) which can be simultaneously affected, hopefully each will also keep PHPT (Primary Hyperparathyroidism) in mind. It is very often misdiagnosed as “Fibromyalgia” / “CFS”.

    Thoughts, Dr. Chris?

  109. Hello! Nice article. I have Graves Disease , and a radiated thyroid. The doctor that (finally) diagnosed me many years ago, commented that my hyperthyroid was probably brought on by family history of auto-immune illness, and by a doctor who was giving me massive doses of iodine in many multiple supplements in an attempt to relieve extreme fatigue.
    Now that I am “treated”, am I still considered to have auto-immune issues? They now call me hypo thyroid. Surprise. I would conclude that just because my thyroid is now low without medication, that the auto immune thing is ongoing. Am I correct?
    Would love a comment.
    Thanks, Patricia

  110. In my early 30’s I was diagnosed with Grave’s disease and took radioactive iodine twice. I’ve also tried every thyroid rx known to man since then.
    In 2007 I was diagnosed with thyroid cancer after feeling a lump in my neck and having very swollen lymph nodes in my collar bone. It was papillary carcinoma. My thyroid was removed at that time and I’m cancer free. I’m now 54 and have osteo arthritis, joint inflammation, insomnia, complex migraines, high blood pressure, anxiety and depression. I take t3 and t4. I started 100 mcg of tirosint about 8 months ago and also take generec cytomel .5 mcg twice a day. My anxiety and depression have never been worse. I started bioidentical hormone therapy and 5 mg dhea a few months ago and thought I was better for a month or so. Now I feel worse than ever.
    I have regular blood work done and my levels started fluctuating. I’m thinking I’m getting too much of something. I don’t feel like eating and have lost about 15 lbs. I’ve been crying for 2 days. What do you know about hormone replacement therapy with thyroid medicine combined? I’m tired of feeling this way.
    Thank you

  111. I found this interesting and notice that it is quite like what I have went through. I suffer from Chronic Urticaria and Angioedema so it explains why it was so increasingly worse when I was on Synthroid. My inflammation started after I suffered a traumatic injury from a MVA. I was given about 8 different new medications that had obviously interfered with my Synthroid, my Dr just kept increasing the dose and I just kept getting worse to the point I was continuously swelling and felt like ending my life due to the severity of pain from swelling, heart attack type of symptoms also. Then I started to develop a new Liver condition, Primary Biliary Cirrhosis.. I decided to quit all the medications at once since they were not working in any way, only making me worse. I had to seek out an alternative Dr. to prescribe me Natural Desiccated Thyroid because no Dr would Prescribe it for me. I then saw my Liver clear up completely and slowly my Thyroid got back to normal but still swayed back and forth to Hypo and Hyper, I also still had Thyroid Anti bodies but they were more than half what they were prior to the Natural Thyroid. I now have been given HIGH doses of PABA to decrease my Thyroid Anti-Bodies and I went through a Chelation iv and urine test to find out my Metals were way out. Lead, Mercury and Cesium and a few others were very very high, lead and Mercury were the highest, Lead was right off the chart. I am now at this point and in need for Metals detoxing. I am currently taking Natural Thyroid extract, PABA, selenium, ThyroSense and I can already feel the difference, I am glad I learned about the Metals and also about the Paba.. I will post more when I find out what I improve from

  112. Hope someone will read this and help:
    What kinds of inflammation cause this and How does one determine the cause of inflammation?

    I’ve been going through this for a while and can’t figure out where the inflammation is coming from. I’m not looking for medical advice about my condition but rather some ideas to research with my doctor.

  113. I had my thyroid removed at age 36 due to micro carcinoma. After two pregnancies and now age 43 my doctors are at a loss. General practitioner can do no more than check T3 levels and Endochronologist thinks I should be on depression meds.

    Frustration is stetting in! I tried going carb-free, then gluten free. I tried to take 4000mg vitamin D supplements (as per OBgyn), iodine, kelp, etc.

    I am bloated, tired, irritable, spacey. I have insomnia, constipation and waves of depression from these things.

    I switched from CVS prescriptions to a local compound pharmacist. From Levothyroxine to Synthroid.

    I could go on. I’ve done a lot of research, talked to a lot of people. What to I do now?

    • Try NDT. Armour works the best for me. Split the dose morning I take. 60mg evening at 5 I take 30mg with food. If still feel foggy will take 30mg more later. I take Adrenal Complex and extra Vit B Complex. Multivitamin. Calcium Chewable with zinc and magnesium in it. Extra Vit D3. Vit C and Vit E. Fish oil. Iron at bedtime. If headachey I take ibiprophen. Dhea 10mg compounded time release. Relieves headache and lifts mood. Selenium lifts mood too and helps with conversion of T4 to T3. Pregnenolone helps with brain fog. Also from compounding pharmacy 100mg. Find a holistic MD hope this helps. Karen.

  114. Dear sir, i am 37 yr male weight 104 kg was diagonised with subacute thyroiditis in august 2013 my t4 was slightly elevated and tsh was low. My esr was high and i had pain in the neck area, later after 6 weeks i started feeling better then after a few days started feeling symptoms of hypo my first hypo testcame tsh 30 and low t4. I was given 100 mg levothyroxine immediately but i was unable to tolerate it and within a week i had all sort of hyper symptoms, later my cardio checked my cholestrol and found it was very high and put me on 40 mg lipitor and asked me to continue 100 mg levo however i statred developing myalgias and could not tolerate the pain my cpk came up high as well. I met an endo who t3sted the tsh and t3 t4 again and said that my thyroid was not functioning and my tsh was > 100 and t4 t3 was low too he then reduced my levo dose to 25 mg and gradually asked me to increase tp 75 for 6 weeks with ezithrol 10 mg with lipitor 10 mg i started feeling better last tests came as tsh 70 and t4 was 14 he has now increased the dosage to 125 mg since 3 weeks now and i can see most of the symptoms have improved since then i will be doing the tests again in march end. I used to take approvel 150 mg and novarsac 5 mg to reduce my bp but now i have limited it since most of the tine my bp is normal and sometimes low like 100/70. I am experiencing myalgias and pains from time to time. Is there any hope of my thyroid getting normal i have done the tests for antibodies and it came back negative. Whats ur advice for me on this doctor.

  115. Read all the info on this post- have thyroid problems, after radiation in neck area for breast cancer.\Been on thyroid since radiation(1992) At 72 have weight problems, it is nearly impossible to loose weight.

  116. Hi Chris! Love your articles and find them very educating. I was concerned when I read about birth control pills and Hashimoto’s. Both of my daughters are on the pill for very heavy/prolonged periods. I was put on it at age 20 for same reason. I have Hashimoto’s and my oldest daughter is showing signs of hypothyroidism. When tested her TSH was 2.8, but I think I want them to test her for antibodies. If there is any additional information you have regarding birth control pills and thyroid disease, I would love the hear it.

  117. I am tryng to get help and more information as my doctor has not been very helpful.
    I was diagnosed with Hypothyroidism and for a week and 3 days ive been taking Levothyroxin 25mcg
    Before i got diagnosed i had all he symptoms. The one symptom that concerns me the most is the weight gain.
    Mydoctor said that aslong as i eat right when the medication starts working it will start helping with stablelizing my weight. How true is that? Is it also tru that Hypothyroidism also can cause your hair to fall out, Skin to be dry and flaky and to retain water?
    If i can get some information it will help me a great deal. Thank you all!!

  118. I thought this article was highly informative! I was recently diagnosed with sjogrens disease and placed on plaquenil. I feel slightly better. My neuro opthomologist told me i have thyroid disease, but my thyroid tests are never abnormal. i have almost all the symptoms of hypothyroidism and do not feel very good. my question after reading your article is could my t4 be bad and not doing what its supposed to be doing to get t3 to work? My hypothyroid symptoms have been with me since my late 20’s, and my regular doctor always thought i had it to. I would love to hear your feedback and any recommendations would be appreciated. Thanks very much, Susan

  119. loved the article. my rheumatologist says i have sjogrens disease and my neuro eye doctor says i have thyroid disease. I have so many symptoms of underactive thyroid, but my blood test are in the “normal range”. No doctor will even test me on a low dose thyroid medication. My question is can my thyroid be producing hormones that don’t work in my body and if thats the case how do i treat it? I take Plaquenil and feel very slightly better, and my dr was surprised. I really think there is an underlying 2nd auto immune disease that is being missed. i think it is in fact my thyroid. I would love to here your thoughts. Thank you!

  120. I have had hypothyroidism for at least 7 or 8 years, and was diagnosed with fibromyalgia 5 years ago. Although I have been taking levoxythyroine from my doctor, I recently looked at a list of hypothyroidism symptoms – fatigue, joint aches, weight gain, constipation, dry skin, sexual problems, hearing difficulties, hoarseness, memory and concentration problems, intolerance to cold, and slow body movements….I have them all! So my question is, it is known that fibromyalgia causes inflammation. It is possible all these years my thyroid medication has not been working, despite that my doctor looking at medical tests thinks it was working? Also, what suggestions would you have or articles could you point me to? Thank you.

  121. I have been hypothyroid since my last child was born in 1987. I was on Levoxyl for years at 137 mcg. About 3 years ago I started to feel like my thyroid was not functioning properly. Thyroid panel depicted all was fine. I asked why do I not feel fine? Within 3 days of doctor increasing thyroid meds to 150 mcg in March of 2012 I developed vitiligo on my hands and feet, which now has spread to my legs and face. I have gained almost 40 pounds and have lost about half of my hair. In April of 2012 doctor reduced thyroid meds back to 137 mcg. I have been going to another doctor, who is a endo, and he has done several test and tells me he thinks I have poly glandular along with hashimoto. He determined this from a ultrasound done on my thyroid that is half their size. He put me on 112 mcg of synthroid and 3 tabs of cytomel at .5mcg. I started feeling like I was on a merry go round. Feeling dizzy and light headed. Realized it was the cytomel. Since I stopped the cytomel dizziness had subsided. And now I am back on the synthroid of 137 mcg. My question is, why am I still suffering from thyroid symptoms and they are telling me my numbers are fine?

  122. I am on armour thyroid. I started out with 60 mg and increased to 120 mg through my natural doctor. I am having horrible insomnia, cold, constipation, tired, temps are 97.0 and heart rate is 68. It seems like this armour is not working or raising my t3’s and t4’s. My t3 has stayed the same. Any tips?

  123. What are the effects on your body/health of Hashimoto’s after TT (due to cancer)? Are there still antibodies? Do they effect other parts of the body or do they still cause hypo symptoms?

  124. I have Hashimoto’s and became toxic on levothyroxine, suffering horrible internal shakes and tremors which in turn, caused horrible weakness. I stopped taking the levo, got better after 8 days. Stayed off for 5 weeks, but my TSH went to 138. I had to try Armour. Been on 15 -45 g of Armour now for 3 months. My TSH is down to 8. But the tremors are back. Just like when I was on levothyroxine with a 0.5 level. The tremors are horrible. Feels like a tousand bees buzzing around inside of my body. The vibrations (tremors) have a megahurtz. They can be constant or come in constant waves. They are terrifying and impossible to live with. So I find myself quitting the Hormone replacements, which I should not do, but I can’t take the tremors, nor can I take a high TSH level and all the syymptoms associated with that. What can I do when I need the medication for Hashimoto’s but cannot tolerate any of it? Please help.
    Dianne

    • I had the same problem in my case it is caused by low adrenals.I take Adrenal Formula Dr. Christopher’s 2x a day and Ashwagnada at night 500 mg. It works like magic no more Inner trembling.Feel better.

  125. “The only way to do that is to address the problem at its root by regulating the immune system and decreasing inflammation. Unfortunately, this is rarely done in either conventional or alternative treatment of thyroid disorders.”

    How do you do this ? I could totally see this being my issue.

  126. Greetings Chris!
    I have had hypothyroidism for a few years and been taking a low dose of synthroid. When I got pregnant this year they kept increasing my dosage (I also got diagnosed with gestational diabetes and preeclampsia). I gained a whopping 100 pounds in a matter of seven months. Once I had the baby they said that my levels changed and they kept lowering my dose. All of a sudden they said my levels were too high bordering hyperthyroidism and recommended that I completely get off my medicine. They tested my levels again and all of a sudden my panel says I am normal. I am losing my hair in clumps, gained 15 pounds in two weeks, have dry skin, etc.. It’s been four months since I had my son and I haven’t a clue what’s causing all this. How can I suddenly be normal when frankly, I feel crazy. I can get more specific data, but until then I just appreciate the fact that you respond to comments and want to thank you for your time!

  127. Dear Chris,

    I live in Canada and around 3 years ago I was diagnosed with hypothyroidism (an endocrinologist prescribed Synthroid). I have an adenoma in my pituitary gland. I have been taking 0.05mg of synthroid since the diagnosis. From the past 5 months I have been experiencing lots of symptoms, I feel like a dead woman walking (I am 39 years old).
    I also started reading the book “Stop that Thyroid Madness” (Do you know it?, if yes, can you briefly comment on it?). Through this book I have learned a lot about my condition and Drs/the system’s mentality. I am scared but hopeful that I will have in the near future a better treatment and life. I am considering Armour.
    My endocrinologist found (last time I had an appointment 2 months ago) that my THS levels were high so he increased the synthroid from 0.05mg to 0.1 mg. And is not helping, I am not close to doing well.
    My last lab test (yesterday) showed that my levels (with the increased dosage) are at 1.1 mU/L in a 0.27-4.2 range
    I am going to take a saliva test to check my adrenals for adrenal fatigue.
    I know that I have very low ferritin (I requested the test to my GP).
    So, even though I still have to learn a lot about all this I think I am walking down the right path. What do you think?. Please, comment, it is very difficult to trust the system and the Canadian one is very conservative plus there is no Private system.

    All the best for you!

    Cheers!

    Diana

    • Dear Diana, Did you ever get your health issues resolved. My husband had a pituitary adenoma that was pressing on the optic nerve. The adenoma was removed but the pituitary gland damaged in the process. He then went to a different doctor (Thank God)- a pituitary clinic in Rochester NY at Strong Hospital. He was put on thyroid, growth hormone, testosterone, and then cortisol by doctors who titrate the meds and apparently know what they are doing. At 67 he feels great.

  128. Hi, My TSH level is .0001 and my T4 is normal. My doctor won’t test T3, until affordable care act takes effect this is all I can do. I have Hashimoto’s disease and have half of my thyroid removed. My doctor has lowered my levithroid from .125 to .100. I know this is a bad idea, but I don’t know why or what’s going on.She won’t give me Armour or T3. My gut feeling is I’m not converting to T3 and my TSH is trying harder, which probably just shows what I don’t understand. But I have had this for 10 years that I know of, I don’t think I’m suddenly have a more productive thyroid. Help!

  129. i TAKE Synthroid and have nodule on thyroid. 137 not enough and causes blood pressure to go up and 150 too much, causes stomach to swell and very uncomfortable. I do not know what to do. My doctor does not know what to do., Should I have biopsy done on nodule to see if cancerous? Please help

  130. Hi Chris! I was diagnosed with hypothyroidism 5 years ago. I immediately went on synthetic compounded t3/t4 and it worked! At one point I went to a clinic to treat some underlying gut issues and food allergies etc and this alternative doctor was convinced that I did not need my medication. I went off it for a month and immediately gained weight! I went back on and it took about 2-3 months to lose my weight again.

    Fast forward to another recent situation where a new doctor had the same theory, that my body did not need thyroid medication because my TSH was SO low even though my t3/t4 was normal. I went off it for a month and again gained 10/11 pounds in 4 weeks. I am back on a new thyroid (taking armour now) and its been about 6 weeks. I have not lost my weight yet, but my t4/t3 are normal/high normal.

    My question is does it take a longer time to really kick into the body? Or could it be that I am not on the right medication since I was on synthetic compounded before vs. my new dose of armour. Thank you!

  131. I have been taking thyroid meds for abt 11 yrs now. I was diagnosed with hypothyroid after the birth of my 2nd son. At 1st they seemed to work, but the effects quickly wore off. My dr recently decreased my levothyroxine and added liothyronine sod. I felt even more fatigued than before so I stopped taking the new drug. I know I should consult my dr, but I am tired of going round and round with no real results. Your thoughts?? Also, I was recently diagnosed with an immobile esophagus. I’m not sure what, if anything, that adds to the equation. Any input would be appreciated. I am way too young to feel this tired all of the time. It is very frustrating, and effecting my daily life.

  132. Hi. I am worried as I have been taking thyroid for 3 and a half years and my medication handle gone from 50mg to 200mg but my tyrosine is getting worse. The medication is making me get headaches and my levels went from 8 to 32 and is now 49 even with regular medication and upgraded medication. Someone told me that they had a tumor on their pituatry gland and it caused the same thing. Doctors and specialists are baffled and at only 17 years old and gaining weight rapidly which is affecting my life (even eating nothing but fruit makes me gain weight). Absolutely terrified now as no one knows and this woman told me about her tumor and not sure what’s going on….

  133. Hi there.. About 24 years ago I came down with Hyperthyroidism,/Graves Disease both sides of my thyroid gland had pretty much grown up both sides of my neck. I was treated with radioactive Iodine, and was put on a perpetual Synthroid mix. Now Is leaky gut syndrome also the cause of my original Hyperthyriodism? What can you reccomend for me as a Hyper—> Hypo patient?

    Thank you Renee

  134. I was wondering what the percentage is of people with Hashimoto’s needing to have their thyroid removed?

    After years and years of the antibodies produced attacking the thyroid, even with treatment, wouldn’t the thyroid gland be killed off? Also, if having Hashimoto’s means you have to be on hormone replacement for the rest of your life anyway, wouldn’t it just be easier to remove the thyroid and be on the hormone replacement so your body doesn’t produce those antibodies? I don’t assume having those antibodies being produced in your body is very good for the rest of your organs?

    And one more question. I have severe night sweats and my doctors can’t tell me why. I really have no idea if it could be my thyroid causing them. I know that Hashi symptoms can continue even while being treated, but I don’ t know if any of the symptoms I have are caused by my thyroid or some other unknown problem. I don’t think that my results have ever shown that I go hyper as well as hypo, I don’t know if that happens to me or not (before taking Levo or during). As far as I’ve read, night sweats are a symptom of hyper and not hypo. But, could my thyroid being causing night sweats even if I am just hypo and being treated with Levo?

  135. Neeters – I’m a 45 yr old woman who has SERIOUS fatigue (nearly bedridden at its worst) et al issues for 4 years. All the Western med tests were “normal.” What brought me back first was progesterone and Ashwaghanda herb (for adrenal). Then, a Naturopath put me on herbs to balance out my hormones/endoc system and it started working in 3 days. More energy, sleeping without insomnia for first time in those years. Especially since you are in menopause years, I highly recommend looking into herbs. They SAVED my life and are EXTREMELY effective. Western med hasn’t a clue – or pharma comp’s just want it this way. Good luck!

  136. I agree with you chris that the underlying medical issues must be discovered and then addressed. However, for some of us, especially women after Menopause, and in my case specifically, we tried everything, for two agonizing years. tests were normal. GP wouldn’t treat, or even test further than TSH. meanwhile, TSH kept climbing, every 6 months, by at least 1 point. I removed Gluten and grains. increased iron stores and vit. D3, stopped exercising due to exhaustion.. took BHRT (Progesterone, Bi est and Testosterone.) taking all appropriate supplements to help t4/t3 conversion.
    Was treated for Adrenal dysfunction (I believe caused by untreated hypothyroidism). Became so sick and tired and cold, gained 40 lbs in 5 months, had to leave work, accepted for total disability at age 52.
    In the end, the doctor agreed to finally let me try a trial of Natural Dessicated Thyroid. BINGO.
    back to normal in a few weeks. going back to work and enjoying life again.
    Lesson learned? sometimes, thyroid output , whether considered normal by conventional medicine, is not enough for quality of life. Hormone supplementation Is Sometimes Required.
    In my case, I suspected thyroid all along and nobody would listen.

  137. Hi Kris,
    My name is Emily and at 16 i was treated with synthroid after having a high tsh. After having a high TSH my doctor gave me synthroid, however, i felt no better on it. She did not give me any other tests , only free t4 , that is it.. Should she have tested my free t3 , or thyroid antibodies? I am very under educated with the thyroid but all i know is synthroid gave me anxiety and did not make me feel any better… What should I do, and what tests should I ask my doctor for. Could my thyroid condition be due to adrenal fatigue and therefore, I should not be on thyroid medication?
    I appriciate your feedback,
    Emily

  138. Hello
    I have , yet another question , as i dive into more info regarding Graves which i was diagnosed with about 6-7 years ago , and reading what you writ i understand that the autoimmune diseases /condition of Graves doesn’t go away , in fact it can attack , now , since my thyroid was destroyed , other organs ? my question is do all autoimmune diseases are like that , from what i know not all …
    if my thyroid was still alive would that have change anything for the better , like centering the Graves on it ?
    last question if the ” Graves ” starts again can the body recall it’s symptoms from the thyroid ( higher hart bit , loss of appetite , anxiety etc. ) and actually make thaws symptoms again even thow the thyroid is no more ? or are thaws symptoms part of Graves no mater what ?

    Thank you for reading
    regards
    Nili

  139. Hi Chris,

    I am curious about what you think regarding people who no longer have a thyroid. I was diagnosed with Hashimoto’s Disease when I was fourteen, and by the time I was nineteen, I had metathesized thyroid cancer. Doctors removed my thyroid, two parathyroid glands and a few dozen lymph nodes. I’m 28 now – a yoga teacher, and vegan and gluten-free. (The health change came as a result of the cancer; previous to this I was an unhealthy Midwesterner.) I do find that whenever I eat gluten (if I slip when out to eat with friends or what not), I will come down with a cold within a week. Anyway, I can never get a straight answer from doctors about what the Hashimoto’s diagnosis means without a thyroid.

    Also, I have taken nascent iodine in the past, but I then read that after having had the cancer and thyroidectomy, this was a mistake. Thoughts on this?

    I would LOVE if you could write an article for people without thyroids. The Western medical approach does not seem enough for me personally.

    And on a note of interest: surgeons removed 2/4 parathyroid glands, though I was told that one was possibly damaged in the surgery (again, this is when I was nineteen). At twenty-five, a few years after a move to the United Kingdom, I started to experience memory loss, peripheral vision loss and hand tremors. For months before these symptoms started, I kept going to the GP saying I felt shockingly lethargic and weak. My GP kept saying it was because I was a vegan. I was adamant that it wasn’t, but he kept recommending dietary changes that completely misaligned with my world views.

    Anyway, come the serious symptoms, I went back to the GP and the one I saw was brand new–on her GP rotation–so she actually seemed to take me seriously. I saw her on a Wednesday and she ran a battery of blood tests. Come Friday night at 10pm, I got an emergency phone call asking me to come to A&E (ER) right away. Apparently my blood calcium had dropped so low that they thought I would seize at any moment (and didn’t know how I was alive and functioning).

    The doctor in A&E prescribed me Rx calcium tabs and also blamed my vegan diet. (WTF, right?) They told me to come back on Monday, at which point my calcium dropped even lower. At this point, they realized the remaining parathyroid function had likely gradually stopped over the years–accustoming my body to lower and lower levels of calcium. The body is amazing!

    I ran into that GP in a non-medical setting about six months later and I couldn’t place her at first and I asked her how I knew her. She said, “Well, your calcium-girl to me,” and she told me it was one of those cases she would never forget in her career. I’m sure I’m in a medical journal somewhere. Ha! So now I’m on calcitriol as well, to manage my ability to uptake calcium. *sigh*

    Anyway – thanks for reading, Chris! I’m sure many out there would love your views on health for the thyroid-less as well!

    Blessings,
    Julie

    • Hi Julie,
      Oh my goodness, I am in the same boat as you are in. My thyroid was removed 4 years ago 80%. My surgeon tried to save my parathyroids, but they did not survive. I would greatly appreciate information on the best meds and supplements to take. I was put on T4 only, which I do not understand. I still cannot believe my old endocrinologist thought that is all I needed!. For Heaven sake I do not have any thyroid or Para’s at all. I have changed doctors and will ask for a change in medication to Natural Desiccated Thyroid meds. I am a calcium crasher too, having spend a few times in the ER on a calcium drip…Naughty me. So, in closing I would love to see more information for us “no-thyroid” patients. Good Luck Julie!

  140. Can you give us an idea of what you mean by “regulating the immune system and decrease inflammation”? I have tried every kind of natural healing and I am finally getting good results with taking dessicated thyroid (Thyroid-S). Thanks.

  141. Hello Chris,
    My name is Danny, i am fixing to join the marines. I have a thyroid problem, and it is a over active thyroid. i would have to stop taking my meds, and it would have to be for six months. I was concerned bout if it would cause heart problems. thank you for

  142. Hello
    I had Graves then my thyroid was destroyed , i am taking now Synthroid , now that was some years ago about 3 months ago on my regular blood test , i was feeling good , it showed that i had both hyper and hypo at the same time ?!? ( they double checked it and came out the same ) is that at all possible ?

  143. really enjoyed your site, I had hyperthroid for 28 years, no real problem, slept well no tremors, good bowels, i was tested for graves which was neg. about a year ago I went into a thyroid storm, prier to it I had eaten alot of seaweed wraps, didn’t think about the iodine in them, could this have pushed me over the hill? well that was scary, I drank alot of carrot juice during that time, and it calmed the effects. well long story short, i went thru the rai, doc gave me enough to destroy my thyroid, but it didn’t, she said its still functioning, but I’m on 50mcg of levoxyl I was just wondering is there a way to get my thryroid back to working healthy again, if so how, and by taking the levoxyl is this keeping my thyroid from thriving, thanks for your time, debbie

  144. Chris I have hashimotos for about 8 years my only symptom I have ever had has been A cloudy or foggy head every single day nothing I do seems to help it any ideas

  145. I have hypothyroid and feel terrible.. I have no energy and I have slot of problems constantly with my eyes. I am on medication and just went to have a recheckt7. Why the eyes?

  146. I appreciate all your information,have hashimotos and many other problems, went to a naturlist
    and was put on Black Walnut for parasite,now I find it is very high in iodine which you say is very bad for hashimoto,should I discontinue the use. Have also been taking LDN ,so many problems treat one and it make another area worse. Thanks for your help.

  147. Wondering about Hypothyroid cause by removal of 3/4 of thyroid. (tumor, 10+ years ago). What needs to be considered if the cause is not iodine, adrenal, etc…
    My sister has hypothyroid (iodine def) and now takes Armour (her quality of life has increased tremendously). My new client wants me to cook meals for her and I want to lead her in the right direction nutritionally, and to mention your articles, and my sisters relief from synthroid, and other plant based hormone replacements that people say work… like therapeutic grade essential oils, so she can determine if synthetic is the way to go for her. She deals with weight gain and lack of energy. Thoughts?

  148. Hi Chris,

    I have a question. I stopped breastfeed my baby when he was 13months old and on the next week i got some problem with my thyroid. The doctor couldn’t recognize it, but i was complaining at my throat but no other symptoms (i kept my weight since the delivery, no hair loss, no depression, etc.). I asked him and he make a scan and the blood test. I was right, the TSH was 12,8 but T3 and T4 were normal. The interesting thing that i went to this clinic 2 and 2,5 years ago with the same problem and the doctors said something was just in my mind when i told them I felt something strange in my throat and it wasnt a cold. 2 years ago I got pregnant and my little one (thanks God) is very healthy and i had a very very easy pregnancy with sport activities until the last week.
    I took 25mg/day on the first week, and from the second week i m taking 50mg Euthyroy/day. It s time to go back to the clinic to have a blood test after 6 weeks of this pills. To be honest, I feel better but i dont feel that recovery what i expected. The doctor didnt give me any advices, only this pill. How can i figure out if i should have avoid certain food. I drink coconut milk instead of milk, i make low carb diet, i try to eat meat and fishes, fruits like green apple, no gluten.
    Could you give some advices,please? I would love to get back to normal:-)

  149. Hello!
    One question – can hypothyroidism be accompanied by tinnitus? (ringing in the ears) Labwork consistently indicates thyroid levels on the rise and doctor says take more thyroid medication to bring it down. Levothyroxine increase in 2/2012 with tinnitus onset. Any connection?

    Thank you for any information you might provide.

    • Hi Candace

      I am apart of a large online thyroid support group. There are many people who talk about ranging in the ears on the forum. . People have switched meds, lowered and raised levels, I even know a guy who had his thyroid removed to stop the ringing but they all still have the ringing.

      • What is the support group that you belong to? I have been looking for a good one. I was hyper and did the Radio active iodine 8 years ago and still have trouble with my levels going up and down. They did a ultrasound to see if it grew back and they found that I don’t have any left. Had my Pituitary checked and it was fine. Please Help.

  150. Dr. Kresser,

    I have been experiencing symptoms of hypothyroidism for the past 2 years now. My doctor has said my levels were on the lower end, but then started treating my adrenals as well. I have been taking “Nature-Throid 1.5g” for almost a year now and I feel absolutely no different I even bumped it to taking 2 pills in the am, but hasn’t made a difference. I still cannot lose my fat even though I work out everyday and eat healthy. I am always tired, can’t sleep, have headaches, severe chronic constipation, and always bloated and swollen face and eyes (especially in the am). My doctor said he ruled out Hasimoto’s or celiac disease. I can’t find an answer and I am miserable. It’s taking over my life and ruining my spirit. Do you have any input or idea? I have been taking Oxy Elite Pro (fat thermogenic) because that makes me feel great! It burns my fat and boosts my metabolism, gives me energy. The only problem is I can’t sleep on that either.

    Thank you so much! I hope you are able to reply, I know how extremely busy you must be.

    • I have been Dx’d w hypothyroidism, fibromyalgia, adrenal insufficiency, among other things. Still trying to balance my body chemistry with bio identical hormones, herbs, supplements, and candida diet thus far. Please be careful with Oxy Elite Pro. I read your post, and looked it up because I wanted to try it. Evidently it is known to cause liver failure among other problems.
      http://www.fda.gov/ForConsumers/ConsumerUpdates/ucm374742.htm
      I have appreciated reading people’s posts here!

  151. Hi,
    I have recently been diagnosed with hypothyroidism this past August 2012. My tsh level was 5.3 and my doctor put me on 25 mcg of Synthroid and told me to take that for three months and then come back to recheck my tsh level. Well, during the three month period I went from feeling much more energetic and back to my “normal” self to feeling very lethargic and irritable. So, at my recheck visit my tsh level jumped to 14. So, my doctor told me to take 75 mcg of Synthroid and to recheck in 6 weeks. Also, at that visit she plans to check other thyroid hormone levels. I started taking my new dose and The first two days on the higher dose I felt great and then the days following I feel like i went back to feeling lethargic and irritable. I am not wanting to wait the full six weeks before I see my doctor. I want to be referred to an endocrinologist because I can just tell this medicine isn’t working properly. I need help. I can just tell I have not been myself.

    • Hey – Amy, I have been going through something similiar? Did you ever level out? I seem to get better initially on a dose increase, then feel as fatigued as ever but havent come across many others in the same boat. Would love to hear about your experience. Thanks!

      • Hey. Yes I did level out finally. I feel a lot mods like myself nowadays. My dose has been raised once in the past three months. And at first I felt lethargic then by the six week lab I felt energetic and more like myself. My tsh level has been at 2.4. And my free t3 and t4 have been within normal limits. I started seeing an endocrinologist too which I felt helped. It’s given me more peace of mind too talking to a specialist.

      • Nuttmegs17, I have been having similar issues with starting something (Synthroid, supplements, Naturethroid, higher dose NT) and feeling great for a couple of days or a week at the most and then feeling like crap again! I have also been trying to figure out why I can’t find anyone else with this issue. Some information I have found points to my sleep apnea, low adrenal function or low iron.

  152. I want to hear about your thoughts on iodine – I am on Nature Thyroid and feel MUCH better, but for the belching and gas side affects. Iodine has been recommended. How can I be notified of your post(s)?

  153. What about someone who had to have their thryroid removed due to cancer and has no choice but to take medication. What are your suggestions for maintaining optimal health in this scenario? Thanks!

  154. Hi Chris,

    I can’t find anything to read about why I am on synthroid, taking it properly and nearly every TSH check I am way hypo such as once 40, then they raised synthroid and soon normal labs again and this August 8.8 and raised to 175mcg and today I am 0.8 but was sent for a second ultrasound the first one was called for in the middle of my exam which was very hard to get through. I can’t even wear a necklace and basically since being diagnosed at about 25 with TSH 10 as hypothyroid after the onset of spine and bone pain that is now severe fibro and a multitude of other problems after growing up so healthy I am so nervous someone is missing something critical but I have fought to look and grown tired and fought again back and forth. Since 2009 the thoracic pain became acute and severe and chrnoic and it never hurt in that area before and hasnt stopped since I even raced for a breast reduction it was so bad. That didn’t take away the pain. On accident they found some “borderline to lymphadenopathy”nodes in my axilla and mediastinum and two shapes in my right lobe of my right lung. I have just moved to San Antonio and my new PCP who sent me for thyroid US will get the results comparing to the one I had in 2008 I dont remember much but there were nodules and a goiter and the middle was thick, im following up on so many things I dont remember what they said except keep taking your synthroid whih I do exactly in the am no food or other meds until 30 minutes at least yet it keeps crashing with no other changes- having the US tech stop in the middle of my test today to call the doctors office in Tyler to obtain the former radiology report scared me- im not an idiot I was just without insurance for a long time when I got sick. My father has non hodgkin lymphoma mantle cell right now, his mom died of leukemia and had five other cancers, An oncologist followed me with repeat CTS which I am past due on another look was supposed to check 2 years ago for any changes and a recent breast mam us and mri detected two lymph to watch as well……. meanwhile my youth is slipping away and i have tried to stay so upbeat. I live in severe pain that went from managable fibro to severe in 2009 and hasnt stopped or responded to anything i have tried it all- I am on 12 drugs none of which have changed during t his last thyroid crash. i run fevers with flares of pain- I flush I feel hot and I run about 101.2 and can tell to go check for fever based on the pressure I feel I have descibed my pain as pressure for so long- my husband keeps telling me one day someone will figure it all out- but I dont know who HOUSE was a tv show……..excuse the typos normally i would correct but im tired and just had my throat smashed in a US and have no idea what I will find out next or do next…… My mother has Graves and had her thyroid Killed with Iodine- her mother had a cyst removed and was military and doesnt remember much about it but my mother does not have the pain and the other things I am going through- my husband was dressing me when I was first diagnosed and once when my TSH was checked while Iwas so sick my white blood cells were at 16 not too high but the TSH was 40…… very hypo I am one tough cookie but tired of thinking and i guess if all along its been cancer, then its too late, isnt it?………..My recent WBC count was only 12 at the time of TSH 8.8……..my hypo is -NOS anyway I liked reading your article but still dont understand whats going on and or why these highly educated specialists havent made me well or at least improved me… I have only declined this last year and my child is 6- i only keep fighting for her and I can feel my thyroid choking me but also feel the difference of recent labs TSH 0.8 from Augusts 8.8- at least im not crying everyday and now I can move. Sincerely, Tuesday- PS I have no idea what to expect from todays US I guess we will find out

    • Hi Tuesday
      A few things to google
      Reverse T3, hashimotos, STTM, adrenal fatigue, iron defiencies and thyroid/cortisol, vit d and thyroid/cortisol, natural dessicated thyroid (NDT), cymotel, the gluten connection. The best medicine is to learn yourself what is going on and how it works. We heal ourselves with the assistance of doctors.,

  155. Katherine — I am a Hashimoto’s patient who has had her mercury fillings removed — and my dentist did not know the proper way to do it! In particular, what he used to replace my fillings was a material I was highly reactive to (not biocompatible with). So I would advise you please, please, please find someone who does the Huggins Protocol — and the best way to be sure you have the right person is to speak to someone on staff at drhuggins.com)– I say that not because I’m a commercial, but because that is how I got all the materials out of my mouth that were making me sick (more than just Hashimoto’s). I’m confident I’m “on the road” to wellness because getting the noncompatibile materials out is an immense strengthener to the immune systerm. I wish you the very best — Kathy

    • I have been on thyroid medicine for about 7 months. It took a few months for me to start feeling better but now im starting to feel bad again. My feet get swollen if i set to long and start to fall asleep. I feel like ive been hit by a bus but didnt do anything the whole day. I started my period and it quit in 3 days. So i thought it was done then all of sudden 4 days later i was bleeding so bad i couldnt get off the toilet. I dont have any idea what is going on with me . I thought the medicine was to make me feel better. Please if you have any info. let me know. Also im so tired when i go to bed but i toss and turn all night with usually 4 hrs. of sleep.

  156. Hi,

    I just found out that I have Hashimoto’s hypothyroidism. I am 34 and not overweight, and have an excellent healthy, organic diet. I think your information is totally awesome and useful, but what is one supposed to do other than take the synthetic thyroid in this case.

    I’ve researched and found that mine could be due to mercury poisoning, so my first step in healing naturally is to get the mercury amalgam fillings out of my teeth and do a mercury and heavy metal cleanse – as soon as I can get the money to do it. I also do not eat carbohydrates, not even whole grains or legumes, and I even don’t do well with caroots, because when I do, I feel awful ALL THE TIME with headache and nausea, even while taking synthetic thyroid medication. I can actually have days where I have tons of energy eating in this way.

    Thanks so much for any info.
    Katherine

  157. oh! and make sure you are taking your synthroid properly!! Take first thing in the morning, on a completely EMPTY stomach with a FULL 8 oz glass of water. Then wait 1 hour before eating or drinking anything else. Don’t eat walnuts, stomach meds or tums or calcium supplements within 4 hours of taking it.

  158. Summer…it can take a long time for the Synthroid to start working. Like say upwards of 3 months. We do tests for thryoid at my job and our patients have to be off their Synthroid for a minimum of 3 weeks before the test can be done. It takes a long time to get in and out of your system. I’m not sure about the birth control pill…..my endo thinks that may have been a trigger for me to have Hashimoto’s. I am sure Chris can explain it better but something happens to your thyroid while on the pill…it depresses it or something…

  159. Could Lupron injections I received to treat endometriosis have caused or be correlated to my hypothyroidism? After my Lupron tx was finished I went into my OB because I was feeling miserable…lab work later revealed TSH of 72 and T4 of 0.4. I think I passed off a lot of my symptoms to the Lupron. My PCP put me on Synthroid and two weeks later I still feel lousy! I would think at this point after two weeks of Synthroid I would be feeling better. I also need to start taking birth control to keep my endometriosis from returning, but am worried about further complicating my already messed up hormones! Any information would be very appreciated.

  160. Hi, Chris.
    Interesting read. You give the impression (how it reads to me) that taking thyroid “medication” won’t work for most people suffering from hypothyroidism, but how does that explain the fact that most do feel better, improve on it?

    I agree that hypothyroidism is often an effect of another, underlying illness, but you didn’t mention any of them specifically like Adrenal Fatigue, which I think is critical for those who still need a more full, proper diagnosis beyond the low thyroid symptoms (also for keyword searches).

    Nature-Throid by RLC Labs is a natural T3, T4 combination BTW.

  161. Select, yes I have also come to the conclusion that it is the antibiotics that may have tipped me over into Hashimoto’s. I also got tested for mercury toxicity and my levels are in the low end of the acceptable range, so mercury is not the problem. Following advice on one of Chris’ pages I have read Dr Natasha Campbell-McBride’s book Gut and Psychology Syndrome, and she points to damage done to the gut by overload of antibiotics amongst other things, which can trigger auto-immune problems. She has created a diet that seeks to remedy this. You might find that worth looking into.

  162. To Lynne:
    I think the heavy antibiotics are much more likely what caused the problem to emerge. I am also very healthy and never had any thyroid symptoms until after I took some strong antibiotics. The ~3 mnths before major ongoing symptoms sounds accurate in my case too.

  163. Chris, My wife is right in the middle of finding the right doseage of Armour Thyroid with our Dr. How can we determine if her “Thyroid” issues are really being brought on by Immune Dysregulation – is there a test? Like a white blood cell count or something?

  164. Lynne: autoimmune conditions rarely have a single, isolated cause, and once antibody production begins, it does not stop. That’s the nature of how the immune system works. I don’t think removing the root canal is likely to reverse your Hashimoto’s, unfortunately.

    • PS I apologize to leave three comments but I also forgot to mention that a few years ago, when I first became extremely sick, the city broke a sewer line and my basement apartment was flooded with about 2 ft of raw sewage. The home was built in 1900. They did replace the carpeting but not the wood paneling or the laminate. I cannot move. I have no way to get a new apartment. My landlords are being very generous because I’ve lived here for 8 years now. But I don’t know what to do. I truly believe the sick feeling I’ve been having is from this sewage spill since the main symptoms I have began shortly after that. But the doctor said it’s nothing but thyroid. I even had one doctor tell me I must have been evil in a past life, (not joking) and another who laughed at my red face and said I’m sorry..it’s just…….your acne….it’s so bad. I am at a total loss. Please if you have any way of sifting through my comments *I left three, sorry) and all I’m looking for really………is what direction can I take to at least feel better? Who can help me? What should I do to make this easier to relay all of this information without overwhelming them and coming across as a hypochondriac? What is the most beneficial way for me to communicate all of my symptoms and issues in an efficient manner that will allow them to look at all possible causes? I have been tested for Lyme disease and autoimmune disease and they have ruled out MS and diabetes, as well as Chrons and Lupus

    • Also if I have the antibody to MCV is that a possible reason for the inflammation on my face as well as my overall ill feeling? Low grade fever, feeling just very ill. It seems to generally coincide with the inflammation on my face. So is this likely a thyroid problem or a viral?

    • Also if I have the antibody to MCV is that a possible reason for the inflammation on my face as well as my overall ill feeling? Low grade fever, feeling just very ill. It seems to generally coincide with the inflammation on my face. So is this likely a thyroid problem or a viral?

  165. Hello Chris,
    Thank you for your interesting information about Hashimoto’s. I have recently been diagnosed with this and was shocked owing to the generally healthy life and diet i had mainly followed. However, about 3 months prior to the first major symptom showing up I had an agonising root canal procedure which lasted over a month with many visits to the dentist owing to massive infection that had to be treated with heavy antibiotics and the difficulty the dentist had in securely locating all the ‘canals’. Could this be the cause and if so would you recommend removing this? Is there some way of diagnosing this as the cause. I am becoming increasingly tempted just to remove it IN CASE it was the cause, and so there may be some chance to recover from the extremely debilitating symptoms I am suffering.

  166. Lin,

    I’m sorry, I can’t possibly advise without knowing more about your situation. Thyroid physiology is incredibly complex.

    I do work with patients in-person in the Bay Area and by telephone/Skype around the world. If you’re interested in that, please check out my professional site.

  167. Each day I take 125mg of thyroxine, 6xmg Norethisterone,
    4-6xtransexamic acid as needed, 250mg Adizem,30mg Lansoprazole. 40mg simvastatin, 6x adcal-d3, 6x 8/500 co codimol, 75mg asprin, 2.5 ramipril, and a weekly 30mg butrans patch for pain. I am exhausted all the time. What can I do instead

  168. Hi Tracy,

    Unfortunately, you’re unlikely to get the support you need from a PCP or an endocrinologist, unless they are unusually progressive and open-minded. The standard of care for thyroid disorders – whether autoimmune, as most are, or otherwise – is replacement hormone. It’s rare for conventional practitioners to go beyond that and address the underlying mechanisms involved.

    I do work with patients in-person in the Bay Area and by telephone around the world. If you’re interested in that, please check out my professional site.

  169. This article gives me the most plausible explanation to what is going on with me at 14 I was sent to Georgetown university with a goiter I am now 46 and over the last 6 years have gone from .75mcg of synthroid to 4 grains of armour thyroid with no increase in thyroid levels all my muscles ache it’s like a charlie horse in my entire body as well as severe hair loss dry scaly skin abnormal weight gain joint pain and I have trouble maintaining my body temp. it’s like chills but when I take my temp. it’s like 94-90 and I will fall asleep weather I want to or not like hypothermia I was also diagnosed at 25 with reiters syndrom so the autoimmunity issue is also present should I continue letting my family doctor try to level out my thyroid with medication increases and discuss this article with him or am I to a point where I should be seeing an endocrinologist Thank-you for this post it has been most insightful

    • Dear Tracy, (How) did you ever resolve the issue when increasing thyroid hormone your muscle ache. (My muscles in addiditon get stiff /weak) I am on 2.75 grains of armour thyroid (and have tried nature thyroid also) . My doc has also tried me on a little bit of Cortif for adrenal fatigue with no results. Susan

  170. what are the specialist called that can help my husband
    he gets headaches with most thyroid meds and is now taking shots.

    • Was diagnosed with graves disease 7 yrs ago. The specialist first treated my problem with iodine. First do u think that was a gd idea before evaluating my condition any further. I was treated by him for about 4 &half yrs and he would never talk to me directly only to his interns knowing i was scared and confused. I weighed a bout 113 pds during my first visits and he had me on 125mg for a yr an i rapidly gained weight then he kept me on 100 mg for about 3&half yrs my health was only gettin worst so i found another speciialist. From forst visit he made me feel better by explaining my health n better detail, then he weighed me and sd i was takin way to much levothyroxin and reduced me to 88 mg. Thats been bout 2 yrs ago now . Ive lost my job no insuraance and have been out of meds for 2 wks and i know how imp it is to have them now i feel 1000xs worse then i ever have!!!! Ne advice or explanations or concerns i need to know

    • I am just starting to research the HPT axis. Myself and my extended family have a LOT of inflammation, joint, back and hip pain. I had already cut out the gluten and refined sugar and am taking Dr. Royal Lee organic whole food supplements administered by a progressive wellness chiropractic doctor. My local wellness and organic food store advised enzymes and cherry juice extract for inflammation. I take Wobenzym N enzymes, Carlson D3 and OmegaXL and use a Homedics percussion heat massager. All of the above things have had a very significant effect on my joint pain, bloating, weight loss and sense of well being. The enzymes are special kicker. I also pray to Jesus for answers. God bless you all.

  171. Hi Chris,
    Actually all of the ingredients you listed were already in Armour, to be precise they were since the FIRST REFORMULATION in 1996.
    However in 2008/9 they again reformulated by greatly REDUCING the dextrose & greatly INCREASING the methylcellulose.
    I wrote about it here http://forums.realthyroidhelp.com/viewtopic.php?f=2&t=14846&p
    So I’m acutely aware that for MANY it is not as effective anymore. Interestingly back in 1996 there was a similar reaction to the FIRST reformulation.
    I’m in Australia & the only Dessicated Thyroid available here is Compounded using PCCA Thyroid Extract USP. Unfortunately the Compounders ALL use methylcellulose or worse Hydromellose as fillers. I’ve had to resort to T3 only because of that & now doing very well.
     

  172. “Patients who don’t convert T4 to T3 well do better on bio-identical hormones like Armour, because it contains both T4 and T3 (in a 4.22:1 ratio).”
    Correction Armour is NOT bio-identical. It is natural, that is, it contains Thyroid Hormones (all of them), made naturally by the pig’s thyroid.
    The synthetics ARE bio-identical but are not natural.
    Note I am NOT saying synthetics are better certainly T4 alone is good for no-one IMHO. I tried NTH unfortunately my conversion is lousy. I do very well now on T3 only.
    Note Armour since reformulation doesn’t appear to be effective for many folks anymore.

    • Lethal,

      Regarding Armour’s reformulation, one reason some patients do worse on it now (and others do better) is that they changed the fillers. It now has calcium stearate, dextrose, microcrystalline cellulose, sodium starch glycolate, and opadry white as inactive ingredients. Many patients with Hashimoto’s have polyendocrine autoimmune disorders and react differently to the fillers in different hormone products.

  173. First, I know no better medicine to regulate Th1/Th2 imbalance than LDN (low dose naltrexone).
     
    http://www.lowdosenaltrexone.org/_conf2006/J_McCandless2.pdf

    Second, I think that avoiding some of the immune triggers/endocrine disruptors is almost impossible in our modern society. How one can avoid bromine, bisphenol and other hazardous compounds present in dust, devices, cloths, foams, carpet, furniture, cars, etc, etc, of almost any ambient of any city around the world?
     

    • Dear Sir

      Thank you so very much for reminding us of the link between Low-Dose Naltrexone and autoimmune disease. I have studies this drug extensively for my fathers’ condition. Now I would like to know of any case studies of people who have successfully been helped with LDN for their Hashimoto. Would you know of any?

      Thank you so very much in advance for your reply.

      • Dear Mr. Kresser

        Thanks for this privilege of writing. We had inquired about Low Dose Naltrexone (not time released) but we finally did our own research on the product. We believe that everyone having Thyroid difficulties or any autoimmune disorder should research this product too since doctors will not talk to patients about it. ( One can research this and see why not.) My husband has had many relapses with his autoimmune disease and twice was bedridden for over two months. He has recently started taking LDN and his symptoms have practically all disappeared. Many people have had similar success!!!

        We hope that this post can help others with similar problems.

  174. Btw, sorry for calling you Eric. Don’t know where that came from. A mental derangement perhaps :-). OK, I’m curious about what you are going to say about the triggers. VBR

  175. Eric, I did not study this subject, but my first reacting would be that “dampening” (reducing) the immune system is not a good idea. How would you like to do this and what would be the other effects of this. I would suggest that people try to find and avoid the things that are causing the auto-immune reactions. Illiminating foods like grains (http://bit.ly/ckgK4E), soy (http://bit.ly/ablHkW), dairy and (perhaps) eggs would be a good start. Are you going to continue on this subject?

    • Hans,

      Removing potential immune triggers is important. I will discuss this further. But often that’s not enough. Most autoimmune patients have a Th1/Th2 imbalance that must be addressed. This is what I mean by dampening the immune system. “selectively dampening” or “regulating” would have been more accurate terms.

      • Hello, I’m wondering if you can help me. I have been feeling very sick for quite some time. My thyroid levels were 9.5 TSH I believe they said at one point it was 14. When I first became ill I lost about 60 pounds and was very underweight. Now I have gained 115 lbs in a short time. I have tried Levo, Synthroid, and Armour, and I believe something else. Right now I am on Armour. But when I dyed my hair I had a severe allergic reaction which caused me to see urgent care. The doctor prescribed Prednisone and after a day or so I was feeling healthy like I did years ago before I became ill. However, 2 days after the course of pills, I began to become ill again. Now the doctor has prescribed two courses of Methylprednisolone but in the instructions it states that prolonged use of this drug is not recommended. When the Prednisone ended I began to have severe dizziness but not like vertigo, more like I was drunk. Last night I missed the last pill and this morning had the drunk feeling again until about an hour after taking the Methylprednisolone.

        What I’m saying I guess is that the inflammation on my face does seem to coincide with my overall health. It is very severe when I feel the worse, and almost gone completely when I am on the Prednisone and feeling better.

        However, now it seems like my body is getting used to the Prednisone or the Methylpredisolone is not as strong, because I am beginning to return to feeling as I did before I ever began taking it.

        The doctor said that I do not have an autoimmune disorder and that the dizziness they believe is caused by soft tissue on a CT Scan which they believe is a cholosteatoma. I am seeing the ENT doctor in a few days but I’m just curious, what are some options if when the Methylprednisolone prescription ends in a week? Or should that treat this inflammation completely? Along with the inflammation I get this flushing feeling like I’m getting a fever but it never goes above 100.4. It’s usually about 99.4

        Also, last week, after the Prednisone ended I threw up for about four hours, every 20 minutes or so.

        I am on Meclizine 12.5 mg at bedtime only, Armour thyroid, 30MG in the morning, and 15 mg at bedtime, AMOX-CLAV 875 MG as before I threw up the doctor thought I had an ear infection that was causing the dizziness.and Methylprednisolone 4 MGdospak 21’s, which I am to refill on Thursday if I’m not feeling better.

        • Sorry I just realized that I didn’t clearly ask a question…..my question is what direction of care should I seek if the ENT doctor says it’s nothing and I still feel sick after finishing the Methylprednisolone?

          Should I see an endocrinologist or should I just see my regular internal medicine doctor and try to adjust my thyroid medicine?

          Or, is there another type of doctor who could address this inflammation on my face?

          I should mention that I have had a lot of other health issues over the last few years. I had a non-cancerous growth in my mouth that covered two teeth. I also had severe leg cramping and parasthesias (sp) I was diagnosed with anemia, and scurvy (?) I also had a tooth break off randomly while chewing gum half of it just fell out, and have before this never had mouth issues even with cavities in general. I did also test positive for MCV antibodies but they never said anything about it because the test for an active infection was negative.

          Also I have the feeling of a lump in the right side of my throat near my neck bone. It comes and goes and sometimes feels like pins and needles. Is this just my thyroid? They also removed four other small cysts from my throat and uvula. They thought I had an STD but it came back negative for an STD or cancer. They said, it’s not anything.

          I have a lot of lumps on my neck, lymph nodes swollen I think.

          I also fractured my spine and had some issues with walking about 6 months after that but they seem to have resolved. However, I hit my head at the same time but never mentioned it to the doctor as it didn’t hurt. These dizzy spells or drunk feelings did begin before I dyed my hair so I’m wondering what is the most likely cause of these? The ear build up? The hitting it on a metal car rim then the pavement? The thyroid?

          My question is what can I do after I finish the Methylprednisone? What type of doctor would be good for me to see? I have just been avoiding the doctors for a very long time because I got so tired of it. The thyroid medicine made me feel worse but these episodes are very strange. I don’t drink more than once or twice a year or so but it’s been feeling like I had four drinks or so……and like I said, that started before I was on any medication at all.

          But when I had such a bad allergic reaction to the hair dye and told the doctor about the drunk feeling they put my on the Prednisone and that really seemed to help all my other symptoms too. I’m assuming the Methylprednisone is similar but what can I do when it ends next week? I can barely do anything when I feel that drunk feeling I get without it.

  176. What do you think of treatment with Cytomel? It’s T3 only. My concern is that I might need some other thyroid fractions (T4, perhaps T2/T1) as might be found in Armour. Thoughts? 

    • Kathy,

      I’m sorry, there’s really no way I can answer that question without doing a full exam and lab work.

      • am also suffering thats kind of broblem .iahv thyoride glan my gland become expand day by day and looking very bad but in my test my tsh t1 t2 t3 all the test are normal no deficiency of iodine plz tell me wt i do can i became healthy again iam very dissapoint from life due to this disese operation is not the solotion of this problem plz tell me the way or any good doctor or any website through this my problm solved plz help me and guide me regards milli

  177. I’m personally interested in this series, and hope that you will also be addressing your take on how to ” dampen the immune system and decrease inflammation.”

  178. It’s entirely possible the doctor didn’t tell you, because it wouldn’t have altered the course of treatment.

    Your husband can have his TSH receptor antibodies tested.  This is sometimes called a TSI test, or a TRAb test.  If these antibodies are elevated, it’s likely he has Graves’.  TPO & TG antibodies are also often elevated, as they are in Hashimoto’s.

  179. Thanks, Chris.  Not sure or not if he had Graves disease. Would the doctor have tested and mentioned that? Is there anyway to test that now?
     

  180. Hi Chris-
    My husband had hyperthyroidism, which has treated by irradiation. Now he has hypothyroidism and takes Synthroid. Since he thyroid was deliberately damaged, and it isn’t an autoimmune problem, is synthroid his only choice?
    Thanks-

    • Since your husband can’t produce thyroid hormone on his own, replacement is his only choice. That said, are you certain he didn’t have Graves’ disease? Graves’ is the autoimmune form of hyperthyroidism. If he had that before, he likely still has it now and it would be important for him to address the autoimmunity.

      • Hello,

        I have been on medication since 2007 for Graves’s disease and I don’t want to go under surgery nor to take radioactive iodine. I know that it’s an autoimune disease and probably will never recover but I did twice and keep falling back in the sickness. You are speaking of adressing the autoimunity and inflamation, and I woud like to know what you would advice for Graves’ case in particular? I have seen various doctors and none helped with the sideeffects, they are only willing to regulate the hormone levels…
        Thank you so much in advance for your help.

  181. Thanks!  I look forward to your next post 🙂
    In reading some more on cortisol and the birth control pill, it seems common place that cortisol is high on oral contraceptives.  Even my lab requisition says it will only test cortisol if patient is confirmed to not be on oral contraceptives.  Could this be a partial link to why so many women suffer from hashi’s?
    Also, to whomever was saying iodine is not an issue…I work as a Nuclear Medicine Technologist and we test the thyroid gland function by giving the patient a very very small dose of radioactive iodine.  We can then measure, with a radiation detector, how much is in the patient’s thyroid and how much is still circulating in their body.  If the patient consumes even seafood (which relatively speaking is low in iodine content) in the 3 weeks prior to their test, it skews the results a lot!  They actually look like their thyroid is hypofunctioning because their thyroid is so full of iodine (for lack of a more medical description) that it won’t take up the radioactive iodine we give them.  So essentially by having them on a no iodine diet 3 weeks prior to the test we can then get a snapshot in time of their thyroid function.
    Just FYI

  182. This series is amazing thank you!!!  I was diagnosed with Hashimoto’s a year ago from an antibody blood test even though my TSH was normal I was put on Synthroid.  I also suffer from Chronic Idiopathic Urticaria and take Reactine daily to control the hives.
    I am very curious about your next segment as I would love some tips on addessing the autoimmune part of this as I clearly am suffering from two autoimmune diseases, all which came on after the birth of my second daughter.
    I would love to know what you think about high cortisol levels and its effect on thyroid hormones, more specifically the conversion of T4 to T3 and/or antibodies that could be faciliated by high cortisol?  I can remember being 18 years old and put on the birth control pill and having all the symptoms of hypothyroidism after about a year on the pill, but all my labs came back normal (aka my TSH was normal) except my cortisol was very very high.  Dr said this was normal on the birth control pill.  About 6 months after that at a clinic a different dr said my thyroid felt firm and to get it checked out.  I was 19 and stupid and did not.  Since then I have steadily had increasing problems with weight gain, acne, fatigue, allergies, and now hashimoto’s and hives.  Seems connected in my mind but I would love your thoughts…when you have time of course 🙂

    • Sarah,

      Birth control pills increase thyroid binding proteins, which in turn decreases the levels of free thyroid hormone (the active forms) available to the body. This won’t turn up on a test unless free hormones are measured, which they rarely are. That explains why you had hypothyroid symptoms on the pill, but had normal test results. Cortisol is a hormone that is elevated during an active stress response. Stress is inflammatory. Inflammation reduces T4 to T3 conversion, dysregulates the HPT axis, and decreases receptor function.

      So yeah, it’s all related.

      In a later post I’ll be talking more explicitly about problems that cause hypothyroid symptoms that won’t show up on normal lab tests. I’ve just mentioned one (increase in thyroid binding proteins), but I’ll go into more detail on that and talk about a few more.

      • Hey everyone I absolutely love love this site I was diagnosed with hypothyroidism about 3 months ago and put on levatroxinen for it and found out I have a autoimmune deisese but my body’s not agreeing with the med I don’t feel any different at all I’m 34 and feel like the walking dead but to get to the ? Has anyone else ever had any issues with the med affecting your heart?My heart rate goes from 79-80 to 110 just out of the blue and also I
        Feel like my hearts just stopping and I catch myself waking up in a gasp for air or I can be sitting around and do the same and I know it’s the thyroid med because I quit taking it over a week Ago and I am not having any of the heart related issues.Still tired and can’t rest hurt all over and my hairs falling out not counting the weight gain and I told my doctor and she did my labs and I’m still waiting in test.anyone else had or having those problems?
        Thanks .

          • Khoa Sunshine, can you please elaborate on your comment? I have Hashi’s SERIOUS inflammation and my doctor keeps lowing my Armour because my heart rate is 110 (has been since I was put on Thyroid meds) but now I can’t even leave my house, anxiety, fatigue, feel like my body was hit by a truck..everyday….Can you please direct me to information on t3 only? I am very interested since I have ZERO quality of life. Thank you so much for your time.

            • Most of my knowledge did come from Chris Kresser .I didn’t even know I was sick until I gave up smoking and put on 5kilo in 5 weeks ,a bit quick I thought.Went for blood test . Antibodies over 1000 tsh,t3,t4 all off the ricter. In other words .Patholgy couldn’t read them. Doctor rang personally and said come in now. He gave me a script for t4 and said have a blood test in a month. Well I wasn’t sick but in 2 weeks I was like a cripple and the pain so severe I couldn’t sleep and I was so depressed with panic attacks . never new what they were either. Had to get some,one to drive me to Dr.He was in shock I was not the same thin bright bubbley person he met. I talked about a thing called RT3 he new nothing of it, so I gave him a copy of Chrisses RT3 site. .I went off the T4 for 8 days and he tested me for arthritis and lymes desease. I went back 8 days later running jumping and laughing. And his results were negative. So he said I could try T3 but I had to get a medi bracelet as I don’t have a thyroid any more hashimotos killed it. I was then stabilized on T3 in less than a month as it is instant in the body but must be taken every 8 hrs or when u feel ur heart flutter. My tsh is 0 my T4 is 0 and my T3 is just above the high range which is 6.2 the perfect T3 reading. Ps I did attempt Thyroid extract as well but this cause an immune attack on my body because the desease thought that the bio,identical was a fresh new thyroid. . This was almost as bad as RT3. I love my life on T3. Thank you for ur knowledge Chris.

              • To koa sunshine:

                I’m happy that T3 is working out for you – some of our doctors won’t prescribe it for us. (I assume you’re talking about Cytomel, and not the timed release T3?)

                — Generic Cytomel, under the name “Cynomel” can, however, be purchased online without a prescription. unfortunately, the smallest cynomel tablet is 25 mcg, which makes it a tad more difficult to cut into smaller doses – “Cytomel” starts at a 5 mcg tablet—

                Question:
                How can we judge what amount of T3 we should be taking, i.e., should we be checking blood pressures, temps, pulses, symptoms, or all of the above in order to take the amount that might work for us.

                Also, would you mind letting us know how many microgramsyou are taking every 8 hours, how long you’ve been taking it, and what your starting dosage was?

                Sorry for all the questions, but I’m convinced that questions like this, regarding dosages, are the missing link when sufferers are trying to find answers that our doctors simply cannot give us.

                We may all be different (as I’m constantly reminded), but we do have two very important things in common – we are all human beings, and we are all suffering.

          • I have a underactive thyroid as well. Been on levothyroxinefor over a year now.staryed with 25mg.now 50mg. And then 75mg. But im still tired . I feel like ive been run over by a truck everyday allday. I just want my life back. Im so tired of being tired. My doctor just increase the amount, but it doesnt change things. Im so sick ofbeing tired until imerisable. Please help me…anyone I stay in bed allday stuggle to just cook, never finish cleanign up nothing. Im 57yrs old

          • I have a underactive thyroid as well. Been on levothyroxinefor over a year now.staryed with 25mg.now 50mg. And then 75mg. But im still tired . I feel like ive been run over by a truck everyday allday. I just want my life back. Im so tired of being tired. My doctor just increase the amount, but it doesnt change things. Im so sick ofbeing tired until imerisable. Please help me…anyone I stay in bed allday stuggle to just cook, never finish cleanign up nothing. Im 57yrs old.

        • Yes i had that med=levatroxinen and had thesame problems with hart rate + panick attcks that lasted for 8 hours cus’ of this Med now i take Sintro’ i am still Not as good as i used to be But i have taken my helth into my hands leaving the doctors ONLY to writ up prescripshens and for blood tests
          I have/ had Graves , had to have radioactive iodine to remove thyroid , wish some one will talke about ppl , like me , who do Not have a thyroid any more ( hint hint )

          • Read my post I have found everything I need just by going to Chris Kressers site . Listen to ur body and find it on this site . My life is great now and it was a nightmare. . Don’t give up . Get out of ur own head and see the light its there .Good luck .

          • I also have suffered from Graves’ disease and had radioactive iodine treatment 15 years ago. Recently had a baby n my thyroid levels changed drastically throughout the pregnancy. For me I have to just accept that I cannot do what I “should” be doing. I have to trust that God has a plan for me. I have to be merciful to myself and not beat myself up for being lazy. The guilt of having days where I have to force myself to get out of bed where I actually have to wonder if I can handle my daughter alone. It’s the guilt trip I give myself that wounds me the most. Bad week here sorry 🙂 but I’m on levothyroxine 112mcg cytomel 5 mcg celexa 40 mcg because the depression finally got to me when I noticed it affected my daughter and not just my husband and I. I’m also taking 37.5 mcg of phentermine to lose the baby weight. On the phentermine I was able to lose 20 lbs in 6 months. But people with a thyroid would lose twice that amount. The only drawback is that when I stop taking it I gain the weight back very quickly. I will say that Prozac made me gain weight, celexa makes me severely hypo very quickly, I’m able to lose 3-5 lbs a month eating oatmeal, slim fast, lean cuisines n saltines n chicken noodle soup. I hate for people to see me when I’m hypo, so I hibernate, lay in bed, cry a lot, only want to eat peanut mnms n gummy worms. I get full of paranoia, hate and rage when I’m hyper also severe diarrhea, my hair falls out and I fear the graves will come back and I will have big eyes again. So now I’m 33 and I have an awesome daughter and husband who love me and I don’t know who I am. Am I just an angry/grumpy person? Was I ever sweet or kind? Or am I a sad victim? Was I ever happy? Did my horrible personality make me Ill? Or did my illness give me this horrible personality? I’m hypo currently and on day 3 of med increase n still worn out after a 10 hour shift of work putting on my happy face n now can’t even play with my daughter. She must think I hate her. Anyway, thanks for letting me vent and maybe this info will help someone.

  183. I’ve been reading your blog with interest, being uninsured and only able to access my naturopath when I can pay out of pocket. What you report makes me think I’m generally on the right path towards keeping healthy and healing myself as I get older. Here’s my question.
    Will you be talking about the tests to determine the need for iodine? My naturopath suggested I take one and I was put on iodine after that.
    I wonder about all the immune system problems I’ve developed as I’ve moved through my 40’s: Allergies, mild asthma, tinea versicolor, mild eczema, thyroid problems, the list keeps growing.
    I still feel energetic and mostly fine but I can’t help but get stressed out trying to figure out how to keep healthy. What should one do if it seems that their immune system is out of balance? Thyroid is just part of it. A very important part according to this article. Thanks

    • Claire,

      I wish there was an easy answer to your question. Unfortunately, autoimmune disease is complex and each case must be considered individually. That said, I’ll be providing some general steps to regulate the immune system and reduce inflammation that are applicable to everyone. Stay tuned.

      • Hello ,
        I have hashimoto’s. I used to take T3-T4 for my thyroid and while on it, I felt terrible. I felt I have anxiety and insomnia, irritability and depression. so I went to a nutritionist which helped me to get rid or candida, and told me to stop all medications and vitamins. so , I stopped everything, then after 2 months, I started to feel terrible. my anxiety, irritability and insomnia came back. I did some thyroid tests and and TSH is 218.00, T4free is 0.37, T3 total is 53, total T4 is 2.4. so as you see all my tests are not so good. So I went back to my regular doctor and I told him to give me armour thyroid. So he did, but now I can’t even tolerate 1/4 of the armour pill. I started having shaking, nauseous, panic, irritable feeling. My adrenals are a little elevated, I thought it would be my adrenals, but now reading your blog, it makes me think that maybe I’m feeling these reactions because I might have to much inflammation. do you think if I lower my inflammation, I can start to tolerate the thyroid medication? It would be great if you could help me, I am desperate and don’t know what to do anymore. I can’t tolerate thyroid medication, but I feel irritable without it too. so any advice would really help me. thanks

        • My concern is that we all call it inflammation, when Lyme disease is attacking so many. You all need to be put on antibiotics, but, the insurance companies are trying to cover all of this up. Inflammation needs to be detected to see what bacteria is causing this. Especially people that have been sick for a while.

        • I too have been diagnosed with hashimoto thyroiditis and my tsh is 12. My t3 and t4 are within range. In spite of having plenty of energy the Dr. tried me on levothyroxine at the very lowest dose. For three wks I thought my racing mind was going to explode and I did not make the correlation that it was the med. After one wk. off the levothyroxine I felt myself. I have nodules on both side of my thyroid under one centimeter. They say I have thyroiditis but I feel fine. I don’t understand?

  184. Jesse,

    There’s a difference between suppressing the immune system across the board with steroids and dampening the parts of it that need dampening.  And there are many ways to reduce inflammation that don’t involve immunosuppressive drugs.

    • So, if I my conversion rate is over 200% (I have hashimoto’s) and I’ve been taking Levoxyl for 4.5 months. I cut out gluten and sugar….they why are my T4 #’s taking forever to come up? Started at .8, just now got to 1.0. I am feeling a little better, but not losing any weight and I am meticulous about eating.

      • I feel ya cut out soda sugar fake sugar then keep gaining…I get blood test… On my doctor appointment paper it read patient very upset about weight. You try hard and gain. I’ve always been chubby now I’m 301 never been that big. I’m real upset

    • When I was 17 I was diagnosed with the Graves Disease and treated with radioactive iodine. I am now 33 and been taking synthroid and levothyraxine for over 20 years my weight is almost impossible to lose and suffer with irregular periods what do you suggest I do? Thanks

      • I have been on Synthroid since ’99. I felt like a zombie. I finally found a doctor that would prescribe me naturethroid which is generic for Armour. My numbers after three adjustments are perfect and I finally feel normal again. Naturethroid has T3 also and seems to be just what I needed. I would suggest anyone on Synthroid to try the natural replacement.

        • Hi Shel,

          My GP suggested that I see the specialist. He won’t prescribe me any more medication until I see the specialist. Says my numbers are up and down. I’ve been on Thyroid meds for about 18 yrs and this is the first time that I’ve been told my numbers are out of whack.

          I’m about to get an appt. with the Thyroid specialist. I haven’t been on any medication for about 5 weeks now. Is Naturethroid over the counter or a prescription drug?

          For 18 yrs, I’ve been tired – that has never changed. Hate it. Can’t even keep my eyes open on a Saturday night to watch a late movie. 🙂

      • I have hypothyroidism. I had to have half my thyroid removed due to a nodule. Typically a fine needle biospy would have detected cancer, but in my case, rare cells were found and I had to have surgery. After surgery and taking levothyroxine, I went on a low carb diet. Cutting out all starchy foods like potatoes, pasta, corn, and breads, along with ni sweets of any kind was hard to do, but pure self-discipline got me through it. It was the only diet that worked for me. I lost 60 lbs in just under a year. However, I know that all people won’t have the same results as I did, and all people can’t just do a low carb diet, as some other possible conditions along with a thyroid disorder might prevent that particular diet from working. Always consult with your physician before starting a new diet to be sure the diet is safe for you. Good luck with your weight loss.

    • What are those ways that I can fight inflammation, Chris; I really need to know. I am SO sick. I’ve been battling hypothyroidism for over ten years, and each year I’ve gone further downhill. Today I’m to the point where I can barely function. My legs and arms are so painful, weak and shaky, they are almost useless; consequently, all I am able to do is sit here on this wing chair watching TV, nodding off every hour or so, and periodically shuffling to the kitchen for food. This is not living and i don’t want to do it anymore. (My Blood tests over this ten-year period have consistently shown extremely high c-reactive protein, and no doctor has been able to tell me why.)

      • so sorry you are not feeling well and I understand. Do you have a good integrative dr in your area to go to because they can help you with your c-reative protein being high. Do you have a heart dr as well he/she may be able to help you but for me, it is finding a good integrative dr in your area who can run other tests to see what is going on and help you more than the standard western medicine dr. Good luck and hope you feel better soon.

      • I cannot stress enough to encourage everyone on levothyroxin to ask for brand name synthroid. I HAVE lived with this issue for 30 years and anytime a pharmacy slips up and gives me generic…my symptoms worsen…it has been so bad that it caused me to have high blood pressure, high blood sugar, and now…fatty liver!
        When I take brand name synthroid…my symptoms lessen and some times I have periods when the symptoms go away! I love those days!

  185. I’m confused. In the last post you said that depressing the immune system was worse than the disease it would be treating:
     
    “But in the case of Hashimoto’s, the consequences – i.e. side effects and complications – of using immunosuppressive drugs are believed to outweigh the potential benefits. (Thanks to conventional medicine for a relative moment of sanity here.)”
     
    But in this article, you say it is unfortunate that this treatment is rarely done.
     
    Which is it? Am I misunderstanding something?

    • My other doctor was like that i finally got a really good endocrinologist and it is taking time and it is tough as it is sometimes a bit too high or too low. Stress has major effect on us even when we don’t feel it is. He says stress does not
      affect the thyroid my other gp disagrees. Welll, you may want to see if you get a referral to a good endocrinologist . I have only being tested for t4 t3 and free t4 also for autoimmune diseases . It is a roller coaster ride . I wish you the best let me know what happens. Sheryl

      • Yes john i don’t make a doctor lol! Tommorrow i am seeing my family doctor taking all vitamins everything i am taking to see what could be the culprit of making my thyroid off every 3 months. I no longer drink coffee around it and take it before i go to bed cut off all eating 3 hours before . I am hoping this works. I am not taking iodine in the vitamins. omega 3 , iron free multi , vitamin d 3,000 mg daily, and cranberry tablets.

        sheryl

  186. Great series Chris.  Just a quick question regarding iodine (and I appreciate you are busy atm so no hurry).  While I can appreciate that simply throwing large doses of iodine at the thyroid problem may be an issue (people need to realise that often having too much of something can cause exactly the same sorts of issues as not having enough – iron is the classical example), what are your throughts for those who live in known iodine-deficient areas.  I am based in New Zealand and most of our soils are very low in iodine and iodine supplementation has recently been strongly recommended for all women planning a pregnancy in New Zealand and along the eastern seaboard of Australia for this very reason.  Thanks of ryour preciosu time in advance.

    • Jamie,have you sorted your thyriod problem,and would you recommend going off thyriod medication and trying thyriod support

Leave a Reply

[if lte IE 8]
[if lte IE 8]